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Beverage

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Beverage

  1. LilyR, the bottle works like the nedi pot, the saline water goes in one nostril and comes out the other. If your sinuses are plugged, it can drain down to your mouth (instead of out the other nostril). But you do this with your head bent over the sink with your mouth slightly open anyway, so anything that doesn't make the round trip comes out your mouth...
  2. I order from nuts.com all the time. They have a lot available in their gluten free section. The nuts are really really fresh, you won't realize how not fresh other nuts have been until you get these. I love them, I ask for them as a gift for Christmas and birthday. I order enough to get me free delivery and store the extra in the freezer. Delivery is...
  3. I can't take any steroid based things of any kind, including the nasal sprays, they all give me high blood pressure and mess with my beauty sleep. To get started on the nedi pot, you could first try the Neilmed Nasamist Saline Spray. https://www.amazon.com/Neilmed-Nasamist-Saline-Spray-Fluid/dp/B00I8NKNZ8/ref=sr_1_4_a_it?ie=UTF8&qid=15360147...
  4. Find that article that was in one of these emails a little while back. It was about getting glutened as little as once a month gets you a 40,000 times more chance of colon cancer. Is that what you are striving for?
  5. Hi. I'm a diagnosed celiac. I don't get symptoms unless I've eaten gluten for awhile. I had tried gluten free oats (which are not always gluten free enough or the protein is similar enough to wheat rye and barley to cause the same reaction in some) against my doctor's advice, and it took about a month. My doctor explained that no symptoms does not mean...
  6. I tried Bob's Red Mill gluten-free oats and had problems. I also tried the best certified gluten-free oats, and had problems with them too. I'm one that cannot eat oats, some celiac's cannot. The protein strand is very similar to the other bad ones, so the body just acts the same. I now follow my doctor's orders that he gave me before I thought I could...
  7. Caramel color can also be from gluten.
  8. My doctor said to stay away from oats. I ignored it, thinking I could eat the gluten free CERTIFIED kind, found the one with the best reputation, ha ha, I know so much. NOT. After being complete off all grains for a few months, I ate them and it took about a month, and got sooooo sick. No to oats for me.
  9. I agree, the cleaners would not contain gluten, however, what you are cleaning might. As my doctor told me, anything that goes into the eyes, ears, nose, or mouth all drain to the same place. If you inhale any dust created from most building or remodeling products that might contain glue, then you would in essence be eating gluten. The particles remain...
  10. I dropped 30 lbs after going gluten free in a MONTH. It seemed to be a lot of water flushing out of my body. Underneath I was underweight and looked emaciated. I've since built back 10 lbs of good weight in muscle and probably bone, and much healthier.
  11. Oat protein is very close to wheat, rye, and barley proteins. My body reacts to oats the same as the others, yes even gluten free oats, and even certified gluten free oats of the best most strictest brands. For some, it's close enough to the others to cause the same auto-immune response. Try cutting out the oats for awhile and see what happens.
  12. Great you know what the situation is, and I'm so happy you are all going gluten free. It really is the safest and best for the ones that have Celiacs. You're an awesome mom!!!
  13. Good for you! You'll be a great example to your wonderful son of facing an adversity and dealing with it in a positive way.
  14. The most effective thing that keeps me on the right track is, especially after reading a recent article here about how many more times a Celiac has of getting colon cancer if they get glutened as LITTLE AS ONCE A MONTH (I can't remember if it was 4,000 or 40,000 times more, but it doen't matter, not good if it was even 4 times) , I just one glance at my kitties...
  15. Cooking wine is the worst of wines with lots of sugar and salt, just stay away from it. You can use vinegars (gluten free ones of course like apple cider) or lemon juice instead. There might be some low tannin wines available, I don't know, but I am sensitive to sulfites and get mail order from dryfarmwines.com, but it's expensive.
  16. I'm so glad you are getting them tested, but sorry it has to be behind his back. However, this is such a serious problem, it has to be done. He can hit the roof all he wants, but he will still be wrong about it, his choice to remain ignorant about the facts. Better diagnosis is not the reason more celiac disease exists, it's that more of it is getting...
  17. Hi. Anything that goes in the eyes, ears, nose, and mouth ends up in the digestive tract. Flour in the air from making scones and cake stays in the air for days, which then gets inhaled and down it goes, , not to mention everything it settles on. It's hard enough to make sure no cross contamination happens in preparing food, but it really is not safe for...
  18. I had no symptoms. I'm left with permanent kidney damage. You also need a new doctor. All this is contrary to everything we know.
  19. The children should absolutely be screened (the blood antibody complete screening panel) immediately, regardless if symptoms or not. Some guidelines say that they should be screened annually for the rest of their lives. I have read that the medical community is now expanding from 1st degree relatives getting screened to 3rd degree. Any diagnosed celiac...
  20. hello. I had similar issues with hair falling out, tested low for T3 although TSH was in the bottom edge of the OK range. I tried liothyronyn synthetic thyroid supplementation, and that did help with the hair, but it caused other issues and I lost my sense of smell, which has been one of my ongoing signs when there is inflammation going on somewhere, so decided...
  21. Everyone here has been so nice and supportive to explain why it's so important to stay gluten free for your disease. I however am going to have to take the tough love way in hopes you will see the seriousness of this. Going to the bathroom several times a day is just a minor symptom of your body destroying your ability to absorb nutrients, for which all...
  22. I strongly suggest a different doctor, find one who is more educated on NCGS. He/she gave you very bad advice. Doctors work for you, find one that have help you better.
  23. I use Andalou shampoo, body wash, and body lotions, absolutely wonderful stuff, I ask Santa for it as my Christmas present. Afterglow cosmetics (a lot like Bare Minerals which I had used for eons but does not guarantee gluten free). Also Red Apple Lipstick...I just tried their mascara and I absolutely love it, not gloppy. These are verified or...
  24. I also went through a discussion (that's mildly putting it) with my doctor who refused to do the complete thyroid panel. My TSH test came back on the low end of normal, but I had all the typical symptoms. There are plenty of good articles out there about the full panel and why it is important. You definately need a different doctor. Only testing for...
  25. I mean I might get a prescription refill, or a new vitamin pill for example, and take it for awhile, with absolutely no symptoms. As we know, no symptoms does not mean no damage being done. I will feel fine for weeks, but then I start feeling awful, like a bad flu coming on. I never did get the intestinal symptoms others get. This for me is the...
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