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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Beverage
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Help! Still sick
Beverage replied to Jherm21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ennis_TX, can you please post a link to that deficiency chart? I can't read it even when enlarged. Thanks! -
Help! Still sick
Beverage replied to Jherm21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the candida test done via a blood test, testing for antibodies, as it can be in many places in your body and a huge burden to the immune system. -
Help! Still sick
Beverage replied to Jherm21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ennis_TX, can you please post a link to that deficiency chart? I can't read it even when enlarged. Thanks! -
I went to a naturopath because of gradually decreasing kidney function and was diagnosed with Celiac's. For me, when I get accidentally glutened, I don't get symptoms until I've had that gluten for awhile, like several weeks. Then, I start feeling like I've got a bad flu coming on. Everybody is different. It's not like an allergy where symptoms are a direct...
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Back from ER
Beverage replied to Washingtonmama's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You say that you are involved in frying foods? Is there any loose flour involved in that? Airborne flour gets into the nose which drains down to the stomach, so same as eating it. Hope you get better soon, it is so very very frustrating trying to figure out where the gluten is coming from. -
Do I need the biopsy?
Beverage replied to lngmk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Also remember that a negative in celiac tests, especially the biopsy, is NOT CONCLUSIVE, is NOT PROOF YOU DO NOT HAVE IT. -
Do I need the biopsy?
Beverage replied to lngmk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The biopsy is not required for an official diagnosis. Positive blood test and response to gluten free diet is all that is required. It was sufficient for me, along with the DNA test (shows potential only), to convince me what I need to do to stay healthy.I have a "prescription" letter for gluten free diet from my doctor based on those things. And pre... -
Lab Results Help
Beverage replied to cdwiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For me, gluten was causing severe systemic inflammation, which is hard on the kidneys. So getting rid of the root cause had an effect. Sad thing is not too many doctors see the connections. -
Lab Results Help
Beverage replied to cdwiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I tested positive on the antibody test, declining kidney function being what I had gone to a naturopath for. I did not want to do the endoscopy, so did a trial of the gluten free diet. I felt like a truck hit me for about a month, like a bad flu coming on, as tons of inflammation left my body. I was not terribly overweight, but lost it all in that month... -
About the hives ... When I do my annual skin prick allergy testing, fungus is always my worst thing. The only time I've gotten hives is when I have had something else going on to do with fungus. One time Athlete's foot, thanks to a roomie bringing it home, and I had hives for 6 months every night until I could finally get rid of the problem. And it...
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anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
And please be careful with anything with caramel coloring as I mentioned already. 20ppm is not necessarily ok for you. I do not do well on all foods, even those labeled gluten free. I prefer CERTIFIED gluten free if I am going to eat a processed food. Many studies have shown that sometimes foods labeled gluten free are at the high end of the 20ppm... -
anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
Why did you think that Coca Cola is gluten free? It's not labeled gluten free in the USA, is it there? The formula for big brands like that can be different in different countries. Anything with caramel coloring can be derived from wheat, so it would not be gluten free. Unless it is labeled gluten free, I would not put it in my body. According to the manufacturer... -
anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
I hadn't thought of that for this poor person, but you may be onto something. I have cut out all grains except for corn tortillas, and feel I'm doing much better. Each person is so different in what they can tolerate. I have watched a lot of the youtube's by another guy that talks about some with Celiac's not getting improvements until they totally... -
Diagnosis has triggered health anxiety and I'm struggling
Beverage replied to Fbmb's topic in Coping with Celiac Disease
You're breaking my heart with how much I felt just like you are saying ... the whole death sentence thing, just a matter of time ... futile ... that poison gluten is EVERYWHERE, no control!!! But it's been almost a year and a half for me since diagnosis, and I must say I don't feel most of that anymore. I think it takes a lot of time for you to figure out... -
anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
I also want to pipe in about the sausages ... it's not just the ingredients that all have to be gluten free, but the processing of them. I used to make my own sausages, and people usually clean them out by grinding through several slices of bread. If the grinder has EVER been used with any gluten ingredients, then it is contaminated and not safe to make food... -
anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
Now this is sounding more and more similar to my experience. The question my naturopath would be asking is what is the root cause of super high histamines in your body so that anything else that you eat or are exposed to has such a severe reaction. I had tested super high for candida albicans antibodies. I really didn't start feeling a lot better after... -
anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
I used to get an itchey feeling in my mouth, and sometimes my throat would close up, after eating many unpeeled fruits and vegetables. I wouldn't get irritated and angry, but did get that feeling in my mouth. There is something called "Oral Allergy Syndrome." I don't seem to have the problem since going gluten free. A test would be to peel an apple... -
anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
Some of the problems you are having may or may not be related to Celiac's. You may also have a problem with a bone in your neck or something there being out of place, which could cause the tingling and numbness in fingers and hands. Have you heard of Thoracic Outlet Syndrome? You might want to read about it and compare your symptoms. Not to throw more ideas... -
Well, shoot, I wish I could eat the Bob's oats. I love oats and the gluten-free muesli. But the symptoms were pretty clear, and they completely stopped the day after the last time I ate them and have not returned. It must be the oats themselves that I cannot tolerate (oats have a protein in them similar to wheat rye barley, and cause problems for some but...
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Yes, right. But what I had been eating was Gluten Free Oats (meets FDA guidelines of less than 20 PPM, does NOT require testing to prove it...I read the actual guidelines and it is quite clear that testing is not required to make a gluten free claim). I had trouble with the Gluten Free Oats by Bob's Red Mill. I do not know if all oats will cause me a...
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Hi. If it's a packaged food product and it doesn't say CERTIFIED gluten-free (or has the gluten-free in the circle)... well, I stay away from it. I was having some of my old symptoms, and I wasn't sure what it was. I was eating Costco Kirkland bagged nuts (not the ones in the plastic jar, the raw ones for baking). Costco does a good job of indicating...
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Are M&Ms Gluten Free?
Beverage replied to Grace'smom's topic in Parents, Friends and Loved Ones of Celiacs
That's very helpful information, Kareng. I'll definately check for the gluten-free labeling next time I'm at the store! -
Are M&Ms Gluten Free?
Beverage replied to Grace'smom's topic in Parents, Friends and Loved Ones of Celiacs
It's good to hear some who are very sensitive can eat them, but I'd have a panic attack at the thought of putting those in my mouth just because there are no direct gluten ingredients. If they are not marked "gluten free" then that means the company is not testing it. There is the possibility of cross contamination from one of their suppliers even if they...