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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Beverage
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Yes it's confusing and overwhelming and distressing. But it will get better as you learn. The best advice I was given was by the naturopathic doc that diagnosed me (after decades of mis-diagnosis from traditional docs)..."remember eyes, ears, nose, and throat all lead to the same place." I'm extremely careful, no gluten in my kitchen, but accidents...
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Confusing blood tests results
Beverage replied to Olfy75's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks. Recently I was pushed by a naturopath I hadn't gone to before to start taking Folic Acid. I questioned it at the time, but I went ahead and took it. OMG I felt horrible. My BP systolic went from 110's-120's up to 140's and diastolic from 60's-70's up to 80's. I felt awful, felt heavy heart pounding, exhausted, irritable, not my sweetie pie... -
Confusing blood tests results
Beverage replied to Olfy75's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Wheatwacked why does it say avoid on B9 FOLIC ACID??? -
Could this be symptoms of celiac?
Beverage replied to itaca's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I didn't have the so-called typical celiac symptoms. Mine were more like you are having. Remember to keep eating gluten every day until you do get screened. Best wishes. -
Source of "glutenated"
Beverage replied to Xsmama's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Also consider if you are getting exposed to any airborne gluten. feeding farm animals (I got glutened bad from feeding my neighbor's chickens), home construction going on? Glue? Playdough? Petting or getting licked by pets that eat gluten? -
Supplements?
Beverage replied to Flower Fairy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have osteopenia also had a really hard time swallowing pills. I find capsules, rather than hard tablets, much easier. Capsules also don't have binders and in general are better absorbed. I take procapslabs.com and no digestive upset like I used to get. I have also read articles by Dr Jonathan Wright, a well known naturopathic doc here around Seattle... -
An update-More tests and information
Beverage replied to pikauchu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"High RBC, and low MCH, with borderline low MCV" That sounds like my blood tests. I have Thalassemia, aka Mediterranean Anemia, a genetic anemia. I'm half Portuguese, a few family have it also. What is your heritage? -
Definitely get rid of the pizza stone. Those are usually unglazed and porous. If the cast iron is coated like Le Creuset, clean really well. I boiled water in mine to soften anything possibly there, and lightly washed with Soft Scrub. They're fine. If regular plain cast iron, definitely pass on to someone else. They are porous. I donated all my...
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Reacting to almond butter anyone else
Beverage replied to Raquel2021's topic in Coping with Celiac Disease
I've tolerated this b12 really well, I take it in the am before any food: https://www.amazon.com/gp/product/B003BHUZ68/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 B Complex without many additives that some have, methyl forms, I really like it: https://www.procapslabs.com/Products/High-Potency-B-Complex/301320/ I also take additional thiamine... -
Some of the things that got me early on, that I didn't think of, was airborne gluten, like grain dust from feeding my neighbor's chickens. We also have done a good deal of remodeling in our older home, and finally figured out the old plaster and wall board was an issue, also cutting chip board or plywood. I'm real leery now of going down the grocery store...
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Ahhhh it's awful. You get your hopes up that now that you've identified the culprit, if you just eat gluten free, all your problems will start going away. But like others have said, sometimes it's worse before it gets better. For me, within days of going gluten free, I felt like I was hit by a truck. I could barely stand up from a chair, weak, aches and...
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Several of my cousins have severe shellfish and bug allergies. I'll never forget when visiting my family in Hawai'i, one of those big flying cockroaches flew from a tree and into my little cousin's mouth, the allergic reaction almost killed her. With all the people with shellfish allergies that are likely also allergic to cockroaches and crickets, bugs...
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Gluten and rice causing neurological issues
Beverage replied to bechari's topic in Food Intolerance & Leaky Gut
Yes I realize. I was more concerned about cross contamination in the processing/packaging of it. Worth examining. -
Diagnosis issues
Beverage replied to AmandaLynn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Try a different doc. I was diagnosed by a naturopathic MD based on 3 things : high positive blood test, DNA test, response to gluten free diet. I have a letter from him with that diagnosis. -
Gluten and rice causing neurological issues
Beverage replied to bechari's topic in Food Intolerance & Leaky Gut
Probably a lame question, but is the rice you are eating labeled gluten free? -
Feels like I can’t eat anything
Beverage replied to SargeMaximus's topic in Related Issues & Disorders
If you have been eating gluten free oatmeal, try not eating it for awhile. I used to not be able to eat it at all when first diagnosed with celiacs, but now I can eat purity protocol oats. -
I had a lot of acid reflux before and after my Celiac diagnosis. I apparently had a slight hiatal hernia, as in following the procedures in this article for heel thumping, I actually felt something slither down and suddenly a lot of my symptoms were greatly decreased. I continue to do things in this article, and have had only minimal symptoms ever since...
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What's Gluten-Free at Whole Foods Bakery?
Beverage commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
With all the open bread bags and flour in the air at a Whole Foods bakery, nothing is safe for someone with Celiacs.- 1 comment
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- bakery
- gluten-free
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Nausea and fatigue almost all day
Beverage replied to itarachiu's topic in Related Issues & Disorders
Excellent info. Thank you so much for taking the time to respond. I'm taking 300mg benfotiamine, but since I had covid early last year, I've found a little asthma returning. I wasn't sure if I should increase or not. This really helps. And I'm going to research about that form needing the red blood cell to get across ... I have Thalassemia Minor, a genetic... -
Nausea and fatigue almost all day
Beverage replied to itarachiu's topic in Related Issues & Disorders
@knitty kittyI'm a big fan of benfotiamine. How much do you take daily? Thanks. -
Nausea and fatigue almost all day
Beverage replied to itarachiu's topic in Related Issues & Disorders
@knitty kittywhat dose thiamine do you take daily? Thx. -
Nausea and fatigue almost all day
Beverage replied to itarachiu's topic in Related Issues & Disorders
@knitty kittywhat dose thiamine do you take daily? Thx. @knitty kittywhat dose thiamine do you take daily? Thx.