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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Beverage
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Testing for comorbid auto-immune disorders?
Beverage replied to bostonceliacer's topic in Related Issues & Disorders
I felt better after my diagnosis after a few months, but still lagged in energy for a long time Good quality B vitamins, with methyl forms, like Designs for Health B Supreme, or Procaps Labs High Potency B-Complex really help. I also take Liquid Health B12 recommended by someone here and B1 oil form Benfotiamine recommended by KnittyKitty. All that helped... -
Fecal test
Beverage replied to Katerific's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I got very sick on Bob's gluten-free oats, they may be near higher limit of gluten free. I am able to eat "purity protocol" oats. I have been eating gluten-free Harvest brand with no issues. Here's an article: https://www.glutenfreewatchdog.org/news/oats-produced-under-a-gluten-free-purity-protocol-listing-of-suppliers-and-manufacturers/ I was... -
I just want to caution on anemia being always from iron deficiency. There can be other causes. I tested low iron for years and years, docs always telling me to take more iron, but it never improved. It took until I was 19 years old in college to figure it out. A young medical student in the student health clinic did additional blood tests that showed...
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Should I List Celiac in my Medical History
Beverage replied to Ginger38's topic in Related Issues & Disorders
I got a formal diagnosis from a naturopatic medical doctor (in the US). It was based on 3 things: 1. positive blood tests for antibodies 2. positive DNA test 3. positive response to a gluten free diet -
Probably from cross contamination in their kitchen, but one thought ... Did you have french fries (chips) with it? If something is deep fried in a fryer that also fries gluten foods, it gets contaminated.
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I had a lot of acid reflux issues before I was diagnosed with Celiacs, and they lingered on for quite awhile even after going gluten free. Things in this article really helped me: https://drjockers.com/hiatal-hernia/ especially: 1. raising head end of bed a little by putting on 2 pieces of wood 2. the heel thumping exercise when any bad symptoms...
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Could there have been any oat flour in the pancake mix? I can only eat oats if they are purity protocol oats, not just gluten free, not just certified gluten free, purity protocol. So I stay far away from any pre-made item or mix that has oats, but I do eat oats separately, like brand gluten-free Harvest, which are purity protocol.
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Question about test results
Beverage replied to driftwood7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was also a little overweight before I was diagnosed, especially for me that had been super skinny most of my life, just figured it was part of getting older. I was finally diagnosed by a naturopath at 59, and he told me he's had several Celiac's patients that were HUNDREDS of lbs overweight. one 300 lbs over. I went gluten free and dropped 30 lbs in... -
I had a lot of success with the strategies in this article...he may not have a hiatal hernia, but the things here help regardless. https://drjockers.com/hiatal-hernia/ If he is taking any antacids, not good, we need acid in our stomach to absorb many vitamins, for example, vitamin D. I had great success with the heel thumping maneuver, also...
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I didn't show any thiamine deficiency, not alcoholic, but sure did have a very positive response to taking a thiamine supplement in the oil form, benfotiamine. After going for allergy shots for years, complaining about asthma, many pulmonologist visits, bad reactions to steroid inhalers (severe high blood pressure when I'm normally low BP) that the pulmonologist...
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Endoscopy results
Beverage replied to Oliverg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't let them put you on antacids, PPI's, etc., except for a VERY short term to heal. I had a doc try to prescribe me that, bragging that he takes it every day, real athletic young guy...and when I said...but we need acid in our stomachs to break down the vitamins especially D so that our intestine can absorb them!...He went silent. The info with the drugs... -
My guess is you are probably getting glutened, but here is something to try while you are figuring it out. I had a lot of improvement in overall digestion and consistency in intestines, even being strictly gluten free, by taking Butyrate capsules. Butyrate is a short-chain fatty acid that's produced in the small intestines, you can do an internet search...
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Blood pressure and headaches
Beverage replied to Oliverg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Lots of dis-ease symptoms can be connected to Celiac's, and it causes malabsorption, which leads to vitamin deficiencies. Eating gluten free doesn't just suddenly build back those deficiencies, it takes a very long time, depending on how long you have had malabsorption (I was diagnosed at age 59 and probably had it for a very long time). Once I got... -
It's how it's always been for me when I get glutened, it doesn't hit right away on one time, it's cumulative over weeks, so it is hard to figure out what the culprit is. I didn't even used to get the diarrhea. Drives me nuts, but it's why I'm very strict in my house with no gluten allowed.
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I tried the gluten free Oreo's. I had noticed they contain oats, and was concerned as I assumed they most likely were not "purity protocol" oats. No noticeable reaction after going through half the bag, having 2-3 about once a week. Then I forgot I had the bag as it got to the back of the cabinet, so when I found it, I ate a few every night after dinner...
- 29 comments
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- celiac disease
- gluten-free
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Celiac and Sinus/ear problems?
Beverage replied to LJR1989's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I finally got my sense of taste and smell back (been gone since before 2015)!!! I started following a flush niacin (nicotinic acid, not niacinamide) protocol for prevention of covid and overall health. When l-serine and a few other co-factors were added, BAM! In a few days, it all came back. That was late January. Even when I got covid, I didn't lose... -
I agree with the recommendations for K2. I take it at the same time as D3. I was not having much success getting my D levels up until I added K2, and voila, in the normal range. I think it's K2 MK7 that is the one to take.
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I thought I hit perimenopause early, but 37 is really early. Just one thought...did it start after getting one of the covid vax's? I have a friend about your age whose periods went really wonky after her vax, and now we are researching and reading a lot of women are having the same issues.
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I am now experimenting with another B vitamin...niacin. Naturopaths have long recommended the flushing form of niacin (nicotinic acid, not nicotinamide) to clear out atherosclerosis. My boyfriend has that really bad, had a heart attack and 4 way bypass, so we were trying it for him, and I started with it also. I read some studies about flush niacin and...
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Hi. I also had big improvement by taking B-12, but not until I used the methyl form Methylcobalamin. I take this one as recommended by others here: https://www.amazon.com/gp/product/B003BHUZ68/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 My other big improvement, especially with asthma was B-1 Thiamine, as recommended by @knitty kitty , to...
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Traces of wheat
Beverage replied to Oldturdle's topic in Gluten-Free Foods, Products, Shopping & Medications
Never ever for me. No noticeable symptoms does not mean no autoimmune response. -
Make sure you are going to a hematologist or doc really knowledgeable about blood tests. I was told all my life to take more iron as I had anemia, but this was very harmful to me. Not until I was 19 did I finally get to a hematologist for some other issue (probably when my Celiac's was first triggered) that diagnosed me with Thalassemia. His diagnosis...
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And eliminate oats. Some are sensitive to oats the same as the other grains. And oats are the next most cross contaminated grain. I eventually was able to eat purity protocol oats, but I strongly recommend you eliminate them for awhile until you know for sure.
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Before I was diagnosed, I was 30 lbs overweight. Dropped it all and more in a month after going gluten free, I was a skeleton underneath. It's taken me 5 years to put back on muscle after that. The naturopath that diagnosed me said that he regularly has patients that are 100 lbs and MORE overweight, some even 300 lbs overweight before diagnosis. So yea,...
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Look into candida albicans overgrowth in the intestines. It could be dying off as a result of cutting out the foods that feed it, which is a good thing, but when it dies off quickly, it feels horrible. I had it and it felt like I was hit by a truck, a very big truck. My naturopath had me go on a rotating supplementation of vitamin C, garlic, oregano oil...