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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Beverage
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I had major issues with acid reflux even after going gluten free. Acid reflux is NOT USUALLY CAUSED BY TOO MUCH ACID, IT'S TOO LITTLE!!! As we age or have digestive issues from Celiac's the hiatal spincter can get damaged. Also as we age, or from Celiac's, our stomach acid gets REDUCED. Yes, REDUCED. All this adds to not digesting your food (and reduced...
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Please reread...I made it clear that it is different, but a peanut allergy is how sensitive it is, not immediate: " ...how just the littles bit, even something they can't see, it can kill them, and this is how careful you have to be, that a littlest bit, even something you can't see can give you a reaction that although it will not kill you right then...
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Also, I have found that for people that really do not understand how serious it is, as the naturopath who explained it to me, put it in terms more of how people react with peanut allergies...how just the littles bit, even something they can't see, it can kill them, and this is how careful you have to be, that a littlest bit, even something you can't see can...
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Oh gosh, that's horrible. It will be a lot of work, but you'll have to just scrub and clean everything in your kitchen and replace any wooden spoons, pans with non-stick, and toaster or other appliances. It is what you will just have to do, it will be fine, it is fixable. They do not have a clue how serious it is. You need to tell them kindly and...
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You have to be careful of what it is injected with, but I'm super careful and I don't buy it unless it is actually marked gluten free. I can't remember what brand, but I have been able to find just the breast with the bones (not boneless) marked gluten free for the last 5 years at my local grocery store. You can easily debone it and make a boneless roast...
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And a note about the weight...I was a little overweight, figured it was just me getting older. But as soon as I found out I had Celiac's and went gluten free, I dropped 30 lbs in a MONTH!!! and I was literally a bag of bones underneath from not absorbing any nutrition. It's taken me 5 years, but I've built back up muscle and bones and doing great at 6...
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Be aware that you need to be back on gluten for quite awhile before your endoscopy. You can search the group for how long...it's very important to be eating gluten before the endoscopy, and for quite awhile, but I don't remember...12 weeks? 8 weeks? equivalent of 1 slice of bread a day? And I have read that once someone is gluten free that does have...
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One of mine does that too! Awful part is when you've slugged down half a glass and then spot the bit of kitty litter in the bottom. Yes, lids are essential. But also, cats and dogs lick themselves, and then you pet them. I switched my cats to grain free so I don't have to worry about it (cats are obligate carnivores and the cats they are descended...
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Look in Facebook, there are a few support groups for you state: https://www.facebook.com/search/top/?q=celiac%20oklahoma
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In re-reading this article, it says "Thiamine deficiency leads to impaired glucose metabolism, decreased delivery of oxygen by red blood cells, ... " I just had a wow moment. I also have Thalassemia, which is a genetic anemia where the red blood cells are small and have less hemoglobin, and thus carry less oxygen. Since taking the thamine, I have had...
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I had a really great reaction by following knitty kitty's advice and adding extra B5 Thiamine in the form of Benfotiamine. I go to a naturopath and have resolved most of my issues from all the years of not being diagnosed with Celiac's, but the asthma was hanging on and getting worse each year. I turned blue regularly, albuterol inhaler almost hourly...
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I reacted STRONGLY to Bob's Red Mill Gluten Free Oats. Oats are one of the most cross contaminated in the growing process. Even if they are processed at a gluten-free only facility, even if they are below the 20ppm legal standard to specify them as gluten-free, they can still be at that upper 10ppm limit and be labeled Gluten Free, BUT this is NOT SAFE...
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Beans are naturally gluten free, but one of the most cross contaminated foods because they are often rotated with barley or other gluten grains in growing in the fields. Buy only beans, dried or canned, labeled gluten free. I purchase from Nuts.com, they have a gluten free section. Sign up for their newsletter and they have discounts from time to time...
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Yes, Trents is correct. I reacted strongly to regular gluten free oats, various brands including Bob's gluten free which is processed at a dedicated facility. Remember gluten free by legal definition is less than 20ppm, which is not low enough for Celiac's. And since oats are easily cross contaminated in growing and harvesting and maybe transportation...
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Fasteddy: I'm not in the UK, but I love your attitude about pursuing this until you get to the bottom of it. I'm in the US, and because I did not have typical symptoms, it took a lot to finally get diagnosed. Proud of you not willing to give up! And keep your sense of humor as much as you can. You write well, maybe you will start a forum or blog about...
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Rice for celiacs
Beverage replied to Freedee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you making sure that the rice is labeled gluten free? There have been studies that tested rice and they do find cross contamination. I use Lundberg brand and have not had any issues. I follow Dr. Peter Osborne, the author of No Grain No Pain. He strongly advocates for completely eliminating all grains, and they all have a gluten protein of... -
You're amazing to have gone this far with it in helping your son. I understand how you feel, doctors missed all my signs since I was probably a teenager because I didn't have the so-called typical intestinal symptoms. I finally gave up traditional docs and went to a naturopath, and in 15 minutes of conversation, he said I think you have Celiac's, we just...
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muscle ache ?
Beverage replied to DJFL77I's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
High doses of really good turmeric can help with inflammation that may be causing your pain. It's used for people with rhumatoid arthritis. I take about 2000 mg a day for allergy issues, it really helps with the swelling in sinus tissues, but I find it also helps with aches and pains from aging. I get it at procapslabs.com, who was into the turmeric way... -
best multi vitamin?
Beverage replied to DJFL77I's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, that's exactly the one I take, with the extra vitamin D3. If you click on the "read label" just below the description, you get an enlargement of the actual label on the bottle. It says "contains no milk, soy, yeast, wheat, gluten......" They have a big annual special on it in around March, and I buy a year's supply then, but looks like it's on a special... -
best multi vitamin?
Beverage replied to DJFL77I's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have done really well with Procaps Labs ( https://www.procapslabs.com/ ). I discovered them eons ago before I knew I had Celiac's and before they were selling their stuff on HSN. They have monthly specials on their website, which is where I buy. Most everything is labeled gluten free, but they do have a few products with wheat grass, which I stay away...