Nina98

Thanks for the reply,

Last night we went out for dinner and guess what? My glands are swollen and they hurt, stomach bloated like a balloon, sore throat and my neck hurts!! Also very tired (I just woke up).

Hopefully seeing my doc tomorrow, will call them as soon as I wake up.

Do you know about a connection between mono and celiac? I had mono almost two years ago and I haven't been the same since. I don't think I ever fully recovered from it because I still have the same symptoms + a lot more. The last 8-10 months all my symptoms got worse and new ones came in. It sucks.

  On 8/29/2015 at 12:38 PM, Maddi said:

I'm not am expert by any means on this subject but like you I have a lot of your symptoms and I'm still waiting to get the call from my dr's office for my blood test results but from what I was told you can still get a blood test for Celiac since you've only been gluten free for a few days. Also, if you want an endoscopy you'll probably want to be on gluten so that your biopsy is accurate. Maybe try to get back on gluten until all your testing is complete. (After I was gluten free for about a week or 2 with some issues being glutened, I then tried to go back to gluten but my reaction was worse than I expected and my severe anxiety came back along with dizziness and insomnia and a pretty bad tummyache so I decided I didn't want to go back to gluten but I went to my doctor and he did a blood test). If you can go back to gluten get tested (to see if you have Celiac or Non celiac gluten sensitivity) and then after testing is done just go back to your gluten free diet since it seems to be helping you!

Thanks for the quick reply!!

Yes I will eat gluten again, I guess I have to.. I also forgot to mentoin that I did get dizzy and lightheaded a lot. Also have really tight muscles especially in my thighs. It sucks and honestly I hate living like this, no wonder I feel depressed. No one (not even my family) takes me serious anymore because the doctor says im fine. It hurts when they get mad at me for being in pain and wanting to go to the doctor again!!

I used to be full of joy, lots of energy, play lots of different sports and be very social, happy and just a nice person to be around. Now im nothing like that anymore, I feel like my personality completely changed and I don't feel like myself anymore

Hi everyone,

I am a 17 year old girl living in The Netherlands, Europe. (Dont know if this is important but im 5'8 and weigh around 145 lbs) Two years ago I was diagnosed with glandula fever. Unfortunately it felt like this has never went away! I don't feel like a normal teenager. Im always tired, too tired to even get up sometimes. All my symptoms are:

- extremely tired

- retaining fluids in legs face and lower stomach

- bloated stomach

- bruising easily

- pain in my bones/joints!

- very pale face

- tired looking eyes

- puffy face and water retention under eyes

- depression

- mood swings

- angry for no reason (I get very angry for almost everything even when someone just asks me something I already feel that im getting angry)

- started having anxiety and panic likely attacks a few weeks ago

- I eat very healthy (nuts fish veggies and lots of fruits) but feel like im DYING.

- one of my friends told me this: sometimes you look so pale and then the next day you look tan, like you're wearing make up (I don't besides mascara) how come? THEN I knew the pale skin wasn't imagination!!

I started eating gluten free for a few days and I felt great doing it. Puffyness went away, less fluid retention, felt way lighter, no headache, less stomach bloat and less PALE!

I have been to my doctor for over 10 times in the last 2 years but nothing was ever found. His conclusion: it's in your head.. After this I started doubting myself too and started thinking, what are my symptoms? Am I just imagining them?

I started googling my symptoms and came out on a LOT of different things but then I saw celiac disease and read forums for like 2 full days (lol). I felt releaved because I really think this could be it. I now started to eat gluten again because I read you have to eat them before testing your blood.

My family (mom grandparents and uncle mainly) have history of stomach issues, depression, thyroid problems and borderline disorder. They have never been tested for celiac disease.

Now, what do I do next? Please help me