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Juliem

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Juliem

  1. Juliem
    Hi there, sounds like you're managing the celiac disease & travel gig quite well. I notice you say "we" though. I'm on my own now, my so called friends got sick of me and my illnesses. But my main gripe is not the food issue, it's the fact I can't travel at all now due to associated illnesses (FM, neuropathy, DH). I barely make it up one aisle of the...
  2. Juliem
    Oh yes, the travel issues. It breaks my heart to think how my life virtually screamed to a halt when diagnosed 5yrs ago. My best friend and had I vowed to travel to a different country each year. Of course I couldn't go, but she does still. I miss everything, milestone parties, weddings, visiting new family babies, even coffee dates. I'm virtually a...
  3. Juliem
    I totally relate to your happiness at diagnosis but then instead become more and more disabled. I've said this before, at least with cancer there's either remission or death. celiac disease is a life long sentence with umpteen co-problems. I'm 59yo and my 87yo mum is better off physically and mentally than me.
  4. Juliem
    I can't tolerate bananas not due to celiac disease but due to IBS.. I find many Celiacs have IBS as well.
  5. Juliem
    I'm Celiac and lactose intolerant. But after 3 years becoming even sicker, I've finally deduced that corn was the extra culprit causing IBS that was far more painful than any gluten symptoms. Just when you think it maybe safe to venture out again, whammo, here's another ingredient to be put on the no-no list. Does anybody else have vivid dreams of eating...
  6. Juliem
    This is me, exactly! I thought, when I was diagnosed with celiac disease 4 yrs ago, that I would simply adhere to gluten-free diet and all would be well again. Not so. Mind, I'm 59 this year, so to be finally diagnosed was a relief but alas the permanent damage being peripheral neuropathy and now fibro myalgia leaves me with severe chronic pain. I've...
  7. Juliem
    All the above plus, "oh, so you can't eat bread". And being oblivious to undiagnosed celiac disease causing myriad organ/nerve damage.
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