Nicki Raeleen

You should probably go to the doctors or at least to a Dietition, it could be a  psychological problem. 

Take a breath, lol i promise your not going crazy. I was diagnosed in high school, so i know how scary this can all be. I remember being scared to eat at the though of what could happen, but you live in a world full of gluten, and no on is perfect. Remember that getting mad wont help solve the problem ( believe me when i look at how long it took to diagnose me i wanted to scream), celiac is more of a recent thing. Hint the gluten free fad diet.  

As for things containing gluten, you will cry for the first couple of months; You will have withdraws and it is a little scary. Makeup i wouldn't worry about right at this moment, they only thing that really needs to be gluten free is what goes ON your lips. Focus on food (because it will be over whelming at first) and you will find that the more you look at labels the easier of a time you will have in the future.

Being gluten free doesn't have to be hard, basic foods like fresh fruits and veggies are gluten free.  Almost all meats are gluten free; if they have wheat its because of injections to make the chicken/turkey bigger NOT because of what they ate when they were alive. There are a lot of gluten free options out there now, take advantage of them. You just have to be a little creative. 

There is also some cool microwave things you can buy now that i think taste pretty yummy.

In my experience, be pushy girly!! it took me over 8 months to get diagnosed. they said the tests were not needed, that there was NO WAY i would have it. I agree with Manasota, do the best you can. A lot of my friends thought i was faking it for attention ( I was in high school, what do you expect), and it took along time for even my boyfriend to really understand. 

Remember though, if he does get approved for the blood test( and he is eating gluten free), make him eat A LOT of gluten other wise the test will come out negative. 

Im 19 and i was diagnosed about 4 years ago. I didn't have to much damage, but i would give it a 6 months and if there is no improvement go back to your doctor. Something i found really comforting was making small goals.

What i would suggest is to go to the store a buy a scale; track yourself. Ensures are one thing i loved what i was recovering. They come in different flavors and are great to take to work/ school, just remember to bring some gum because they can make your breath smell!!  Don't rush your recovery. Everyone takes a different amount of time. 

I would start making little goals that are challenging. One thing that became really hard for me was walking up and down my stairs at home without stopping ( I live in a 3 story house), witch was very upsetting because i played 3 sport. I wasn't able to get back to my full athletic potential for about a year. I was then able to hold a solid weight. 

If you are truly worried about the neuropathic pain and breathing problems, go to a doctor. Don't walk out until you have a good answer and you understand what is going on. NEVER be afraid to ask questions, even if you think they are stupid. It took me more then 8 months to be diagnosed with celiac, and it was because i didn't do my researcher and i didn't ask questions. 

I looked it up and it looks very fascinating. I couldn't find much correlation between it and suppressing immune systems. Something did occur to me though ( I feel a bit silly saying it out loud), that maybe my Celia isn't the problem at all. They are putting me on the immune suppressants to make me feel well enough to do more testing. Even though my tTG, Atg, and other levels related to celiac are extremely high, maybe it might be something more serious. The Celiac was just the scapegoat. 

I have head of some non-responsive celiac patients developing other autoimmune diseases over time ( like Crhons, lupus, and cancer) witch would explain why the go to would be immune suppressors. 

 I understand that, and I am doing a food log. But even my doctor agrees something out of the ordinary is going on. 

My doctor is prescribing them to me, my question was wither or not someone else was having this done. 

This a new this doctor (my old one sucked) did a new full panel b4 and after my food log and my number are still really high.... My sister has chrons so I no how nasty these drugs can be. 

Unfortuanlly having an intolerance to something dose not really make your antibodie level rise. They will make others like neutrophil (witch are a type of white blood cell) but not tTg and IgG. 

Omg finally someone!!!! YES! I have just been  prescribed  them for my celiac. My GI doctor told me it's extremely rare.

they determined I needed to take it because even after blood test, food long, simple diets, and MRIs looking for  lymphomas, my body was still producing an extremely high level of antibodies (about 27-35). I haven't started them yet, but my sister has chrons so she takes a much high does of them and tell me the side effects are worth the results (if it even works). 

I'm 19 years old and I have been diagnosed for about 4 years now. Everything had been wonderful following the gluten free diet until 8 months ago. I began to get all of my GI symptoms back and new ones. My skin broke out in rashes, my skin around my lips are so chapped they bleed and my scalp is peeling. Nothing is my life style has changed. After numerous doctors, one came up with the idea that my body never stopped producing antibodies, therefore giving me these symptoms. I am now being put on immunosuppressants. This has really hurt me emotionally with how I look and physically.

does anyone have this? Or even ever heard of it? If so, is there advice you would give me. I'm a bit frighten for my health. ??