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ironictruth

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ironictruth

  1. ironictruth
    About once or twice a month I eat these. After still having some damage on my year follow up endo, I am looking closer at what I am eating. I just noticed that they contain isolated oat protein. What is this stuff? I assume it is just as subject to cross contamination as regular non-certified oats?
  2. ironictruth
    Wow. I feel dumb for not looking on the website. Lol. Thank you for the link. Eased my mind.
  3. ironictruth
    I have a hankering to make carrot bran muffins (after I get over my current tummy issues). I found a gluten-free recipe but it calls for Bob's oat bran. The package says gluten-free but the back ingredients list does not indicate certified gluten-free oats. I sometimes eat certified gluten-free oatmeal and have no trouble. What's the deal with Bob...
  4. ironictruth
    Can anyone tell me about their experience with symptoms after iron infusion? My doc wants me off of iron pills as they may be contributing to my continued abdominal pain. My ferritin is back up to 42 which is awesome, but not near my baseline. Since I also am a distance runner now, we knew that if I stopped the pills that it will quickly tank (I was...
  5. ironictruth
    Yes. That assay should be the one they repeat (sorry for my late response, I see it is Friday), not the one you initially had. Just so you know, my brother has biopsy damage and was TTG and EMA negative (no deamidated gliadin was done for him). I only tested 1 or 2 points elevated to deamidated gliadin IGA (DGP herein) twice. Both major Celiac Center...
  6. ironictruth
    This will be fun. My son will enjoy doing the different colors and it looks easy.
  7. ironictruth
    Anyone know of a good EASY sugar cookie recipe? Anything out of a box or bag would be better. We need some icing ideas too! My 6 year-old will be making gluten-free cookies for santa this year...
  8. ironictruth
    They told you that you were 100% celiac free?!!! It is hard to make out what test you had done but I am GUESSING It was a dual TTG/DGP screen. I had a dual DGP test, but my assays always separated the TTG from the DGP. The problem with the dual screen is that you have no idea what is positive. TTG can be positive in other diseases and so can DGP...
  9. ironictruth
    So, I know Wegmans is awesome about gluten-free labels. The ricotta they use does not have a a gluten-free label and in one of their online recipes for gluten-free lasagna they actually use Belgioioso ricotta. That being said, they will not label a product as gluten-free unless the manufacturer can guarantee it. I did contact the company but was...
  10. ironictruth
    Thank you Ennis! You always have great nutrition advice. I bought those nibs. I do use magnesium a couple of times of week and am stocked on pumpkin seeds as well as coconut water. I may want to increase the magnesium though.
  11. ironictruth
    By far probably the best advice i have gotten overall. I have been so frustrated with gluten challenges, the diet and the whole process, I have not been as cautious as I could be. In part because the symptoms seem so not text book. Granted, I am new to running and just did my second half out if three in nine weeks. I am busting my butt to make sure...
  12. ironictruth
    Thank you! Yes, my intestinal damage was more mild Marsh 2-3A. But I knew with the running on top of that I would need to keep it checked. I honestly thought perhaps I was taking TOO much and this was causing issues. Clearly not the case I guess. I was doing 65 mg with vitamin c most days and some days I alternated between a lower dose 2x a day as you have...
  13. ironictruth
    I bought some liquid yesterday, which I read is actually easier on the stomach than pills anyway. I am fortunate that I haven't had any major issues with deficiencies. And that may also be in part Because I have more mild damage and I also am obsessive about making sure I get enough of the nutrients into my diet and in protein shake form. I...
  14. ironictruth
    I've been an iron supplements for over four months because my ferritin was starting to border on too low. I knew the range I was in was no good for somebody trying to run long distances. Anyway my iron, ferritin and saturation have been tested three times since May. I was unaware that my one doctor had run the test back in August until today...
  15. ironictruth
    No ulcers in April, but yes, I think iron pills are contributing. I do not feel super hungry but red lentil pasta, ground beef and kale pasta sauce is on the menu tonight! I am only doing halfs. Was hoping I can maintain my nutrients. I eat a lot. No weight loss. Will see what the doc says about rechecking it. Maybe it is something else.
  16. ironictruth
    Thank you Ennis. I do take magnesium. I forgot I have a certified gluten-free hot cocoa with 20% iron in it. I will try the nibs and pea protein! I think my drinks I mix with water are plant protein based.
  17. ironictruth
    The flu aches, performance slowed and dizziness. But I am not sure if that is the cause, hence my asking the doc for the panel again. Waiting to hear. Hoping I can can the iron to see if it helps my tummy. My supplement had vitamin c in it.
  18. ironictruth
    So, my ferritin levels went from 74 to 20 despite being on a high iron diet. Nothing alarming, but since I was training for a half marathon, and now a second one, I figured 20 was getting close to the danger zone and I started to supplement with iron back in May. My primary gave me the thumbs up. I have had gastritis in the past and a pill cam in early...
  19. ironictruth
    So....somewhere your pathology slides are in storage. You can seek a second opinion and have the slides sent to be read. Mine were sent from Upstate NY to Boston and back. I also said to heck with it and did a gluten challenge. They said 3 months. I was so used to feeling poorly that it really was not any worse for me.
  20. ironictruth
    My doc is a celiac specialist and I was told that you do not always react right away and that the symptoms ebb and flow if you wil Your doc should have kept you on gluten for blood work. How long have you been off? The inflammatory process releases cytokines which can cause pain anywhere. Did they do a stomach biopsy too? They never did for me but...
  21. ironictruth
    Congrats on getting an answer so you can start feeling better!
  22. ironictruth
    You have given me hope!
  23. ironictruth
    We do not have gluten in my home other then the bread he Uses to make school lunch sandwiches. however I am divorced so he spends a good part of the week at his dad's as well where he can eat whatever he wants. My son is a terrible eater and has been very picky since he was 2 years old, he's now 6. Up until recently he literally would only eat 5 things...
  24. ironictruth
    Funny though, my brother and I were just discussing this. He has celiac and both his son and him are gene positive. Both were TTG/EMA negative but never tested for DGP. My brother had damage on endoscopy. They have not scoped his son. He feels his son is symptomatic but not his daughter. I have conflicting positive and negative DGP, recent damage on...
  25. ironictruth
    I had a pillcam done two and a half months after I went gluten-free and it only showed gastropathy. three and a half months before the pillcam and endoscopy showed damage consistent with celiac. That damage was after a 10 or 11 week gluten challenge. prior to that I was gluten-free for a number of month, though probably not cautious enough. endoscopy...
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