ironictruth
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ironictruth
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Might be time for a new GI doc. To officially rule it out. I am seeing a celiac specialist to rule it out and he informed me that people do not always get symptoms on a gluten challenge.
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Ttg 6 is the antibody involved with the brain. There have been studies on ALS symptoms being related to gluten. There is also a correlation between celiac and MS, but it is just that, a correlation. God, I read somewhere about a guy on a plane who had Celiac neurological symptoms and happened to be sitting near a physician who told him a minimum...
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You did not have the whole celiac panel. DGP and EMA should be tested. The PPI can cause a lot of bathroom trouble. PPI's can interfere with digestion as well. Do they have you on a plan to taper off?
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Have you cut out coffee and acidic foods during the time you were trying to heal the gastritis? As well as aspirin? Because if not, you are probably not healed. Use low acid coffee if you must (I use Rich Rewards) and DGL licorice root. Make sure it is DGL as plain licorice can mess with potassium. The chewables taste yummy! I did the above and...
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@cyclinglady Yes, I made a few delicious stews per your advice over the last several months. I may be due for one this Sunday.
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When did you start the Carafate? Why did you start it? It sounds like the biopsy did not show inflammation? I was on that drug as well and bagged it. It can cause tummy troubles which is counter intuitive considering it is used to treat ulcers. It is hard to determine what are initial symptoms and what are side effects of drugs you are taking. For example...
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Xifaxan? Probably could not hurt. Make sure to take probiotics after so you can rebuild the good bacteria.
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My h. Pylori was negative too. The bacteria is probably SIBO. Usually diagnosed by breath test. Which I happen to be sitting and waiting for myself as i type.
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I was originally diagnosed with duodenitis and a small hernia but then the pain then was usually mild with some nausea. there was no mention of a stomach biopsy so I'm not even sure if I Had/have gastritis but my guess is probably yes. I did have some BouTs of pain that were severe enough to wake me up in the middle of the night. One was after 2 glasses...
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Unfortunately I think you're going to have to wait this one out and keep testing. I also tried Protonix and then later found out I did not have GERD. When I stopped the Protonix I used Pepcid and magnesium to control the acid rebound. It sounds like you might be getting some cross-contamination though. For a while when my stomach was really bad I also...
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Diagnosis has triggered health anxiety and I'm struggling
ironictruth replied to Fbmb's topic in Coping with Celiac Disease
I am so sorry. I have this as well. Most of my anxiety comes from not actually having an official diagnosis and still being quite sick. I am terrified that by the time they figure out what I actually have It will be been too late. But I can totally relaTe. Unless you are extremely not capable of functioning during the day I would highly recommend... -
That is exactly how mine started! At the tail end of eating gluten again before an endoscopy last year. Same way, waking up in the middle of the night at first. Then it worsened, now better but I get some transient stuff in that arm.
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I will look this up. When the ulnar nerve was happening I found some exercises on line that helped. Would be nice tobget my leg back!
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Lower back pain in the am when I first get up. And I did notice some in the left hip today. Thinking about ditching the heels for awhile to see if that helps. Also my left leg. Dealt with a ton of ulnar nerve issues on that side as well. I bruised the left leg pretty badly awhile ago, but also noticed some pain back when I was running (stopped...
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I wish I had the answer. My left leg has been hurting and is now vibrating. I of course worry about a clot, but have a hunch it us nerve related. Is it your extremeties? If I find anything out I will keep you posted. I already take Mag too.
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anyone feel like it was an ulcer?
ironictruth replied to ironictruth's topic in Coping with Celiac Disease
Yes, the pain us much worse since August. Let me know how you make out! -
I was dx with duoedenitis end of August. No mention of a stomach, esophagus or duoendal ulcer. Just a small hernia. Less then 2cm. But I have a LOT of pain right below the breast bone and I jumped when it was recently touched on exam. I can even feel a small bump in the area. I feel so dizzy and unwell, like some kind of bacteria is invading my brain and...
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I am so sorry. How scary. I do know others get swollen lymphnodes. It was mentioned to me twice that mine might have been but no other doc found it and my labs were good. I have had night sweats for years as well. I hope they rush your appointment so you can get an answer. This is coming from someone who is totally freaked out herself so you are in good...
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ibgard
ironictruth replied to ironictruth's topic in Gluten-Free Foods, Products, Shopping & Medications
I totally ended up getting Traditional Medicinals peppermint tea instead and am sold. -
Anyone used this? It says it is gluten free. GI doc suggested it for continued pain on right side. Looks like it is mainly peppermint oil.
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Overwhelmed and unable to accept
ironictruth replied to egs1707's topic in Coping with Celiac Disease
You mentioned the tight head. Yes, both my celiac sibling and I had head pressure. Mine was horrible last glutening with eye pain as well. Like someone put a vice around my temples. I swore it felt like a parasite infected my gut, thyroid and brain. It is going away mostly, still have it on and off a bit. My brother said his naturopath informed him...
