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kam00096

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kam00096

  1. kam00096
    I had positive blood tests for celiac 2 years ago and immediately went gluten free because I was really ill and couldn’t face continuing to eat gluten during the 10 month wait for an endoscopy. I opted not to do a gluten challenge when I finally got my appointment and had a negative biopsy but with inflammation of the intestines/ stomach which was diagnosed a...
  2. kam00096
    Hi guys, Just wondered if anyone had any advice about travelling to the Canaries? Heading to Fuerteventura (Morro Jable) at the end of the week and it's my first holiday since Celiac/ going gluten free. Have printed restaurant cards, sussed out restaurants which say they have gluten-free options, am taking supplies with me and there's a supermarket that...
  3. kam00096
    Lots of things for me to think about. Right now I'm back to completely freaking out that it's nothing to do with celiac and is something way more serious. Thanks for all the suggestions though.
  4. kam00096
    Thanks for this reply. I've been completely freaked out about it being something more serious but I've had loads of bloods done, plus ultrasounds of the lymph nodes and everything has come back completely fine. Is there anything else you think I should be pushing for?
  5. kam00096
    Thank you for the replies. I'm going to go back to the doctor and ask them to check my levels. Really reluctant to restrict my diet any more when I'm not even convinced it is celiac but I will if I have to. Was meant to be planning a holiday abroad (first in 10 years!) this weekend but between struggling to find decent places for gluten free (within budget...
  6. kam00096
    Hi, I'm really struggling and would love some input from you guys (I have posted on here before... usually when I'm feeling crappy!). I had 2 sets of blood tests come back for celiac around 18 months ago. Because of the NHS being hopeless I had to go gluten free straight away and haven't been able to do a gluten challenge, so don't actually have a...
  7. kam00096
    You guys are absolutely right. I rarely eat out these days but a couple of big family events meant I kind of had to. I'm back to being super careful and taking it easy again now. Still dealing with feeling boaty and shaky (plus the after effects of too much pepto bismal) but at least it's nowhere near as bad as it used to be before I went gluten free.
  8. kam00096
    Thanks for the reply. I was really constipated for a few days last week before all the nausea started. Happily it all seems to have settled and I haven't had any more horrendous nausea for the last two days, which is a massive relief as it used to go on for weeks and weeks and I was worried it was starting up again. Still having a few 'boaty' spells but again...
  9. kam00096
    I haven't posted on here for a while but I'm having a really difficult patch and guess I'm wondering if others have similar experiences. Basically I had two positive blood tests for celiac but no actual diagnosis (it's a long story!). I'm pretty strictly gluten free and some symptoms had improved a bit but I've still been having ongoing issues with night...
  10. kam00096
    Thanks for the replies. Am sorry other folks are having similar problems. I'm trying to tell myself that I had noticed the swollen lymph nodes before my last set of bloods and they all came back great, and that the night sweats have been on and off for the last few years (in which time I've had hundreds of normal bloods done, and a clean chest X-ray) so it...
  11. kam00096
    Hi guys it's been a tough day. I had to decide whether to go ahead with an endoscopy next week. GP wanted me to do it despite not having done a gluten challenge and being gluten-free for 5 months. I wasn't sure if there was any point at all at the moment and after spending most of the morning trying to get advice from anyone at the hospital the endoscopy...
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