Estes
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About Me
Eosinophilic esophagitis
Hiatal Hernia
Gerd
Diagnosed Celiac with blood test only in March of 2016. Was denied endoscopy by Dr. and insurance because blood test was extremely high. I disagree with their rejection.
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Tyee reacted to a post in a topic:
Gold Standard. is it necessary and why
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Estes reacted to a post in a topic:
Has anyone heard of the Covid vaccine/boosters triggering the celiac disease gene to cause celiac disease ?
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Very interesting about Supplementation. I was recently diagnosed with EPI which is celiac related. The drug for that is Creon. Creon comes with fat soluable supplements as a free add on. I did not know about the cancer connection. I will say Creon and the vitamins that come with it make me feel amazing.
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I believe my heart issues were deficiencies. Once I ate better, took supplements, resolved my pancreatic insufficiency issues, my heart issues went away. Could you be missing or low on any vitamins? Maybe start by checking D, B, and magnesium.
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OmaDeb reacted to a post in a topic:
Gold Standard. is it necessary and why
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Gold Standard. is it necessary and why
Estes replied to OmaDeb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This happened to me too. I was told I did not need an endoscopy to confirm but now I can not participate in studies. I also sometimes doubt my diagnosis. I wish I had that endoscopy. -
I had this happen to me. The neurological symptoms seemed to be brought on by inflammation caused by the virus or it’s vaccine. I stocked up on turmeric and everything else that naturally lowers inflammation and my brain fog naturally cleared. I do anything and everything natural to keep my inflammation down so I can use my brain.
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Margarita reacted to a post in a topic:
Brain Fog Recovery.
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My biopsy was also negative because it took me 4 months to get an endoscopy. I was very sick at the time of the High positive blood test. We are all calling it celiac disease which had healed enough at the time of the endoscopy for it to be negative. It just means the gluten free diet is working. I will always have celiac. Other things went away...
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I am from Colorado but I don’t live there now.
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Does Anyone Else Have Dysphagia?
Estes replied to Demetria77's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am your symptom twin and I have celiac and EOE. EOE can be helped by swallowing an inhailed steroid. Basically I had to use a steroid inhaler, hold the puff in my mouth, then swallow it instead of breathing it in. Make a bunch of soup with clear broth and over cooked veggies and live on that for awhile. Then look into AIP wellness. I don’t have t... -
After almost two years I have found eating at home to be enjoyable and delicious. A few of my keys to this are a great source of recipes: www.iowagirleats.com and a way to stay organized: www.plantoeat.com helps take me recipes and create a calendar and shopping list. Please contact me if you plan to sign up for this. I will give you my real name...
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I like these one-liners! Thank you and keep them coming. It is giving me mental amo for all my holiday stuff.
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I want a great sentence to use with grandmas, neighbors, waitstaff... I want it to be memorable and not too overly dramatic. I also would like it to be slightly accurate. Here is my current scenario: new friend: What is Celiac? me: It means my body responds to gluten the way yours might respond to rat poinon. new friend got it and understood...
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Hidden Malt in Iron Supplements
Estes replied to MissT's topic in Gluten-Free Foods, Products, Shopping & Medications
My brain fog did not go away until I stopped taking iron. I also noticed a big increase in energy after stopping. Iron gave me ulcers according to my Dr. -
I have had three different flavors of Ricola cough drops this week with no problem other than a possible sugar headache from so many of them. It could just be a sick headache though.
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I bet $5 you have an ulcer. I took iron for years and doc says it caused my ulcers. I went off iron and took meds for the ulcers and the pain and nausea went away. That does not explain all your symptoms though. I ran a marathon then had babies. Now I am 42 with celiac. I am choosing not to run that much anymore because I need those nutrients...
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Peripheral Neuropathy, gluten, and dairy
Estes replied to Raspberry's topic in Related Issues & Disorders
Popcorn, wine, as well as coffee are my favorite things. Have you identified what is left to enjoy? -
Yes, we like peanut butter in the blender with frozen bananas and a liquid (juice, coconut water, almond milk...). You can add berries or even ginger and turmeric.