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Estes

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Estes

  1. Estes
    Very interesting about Supplementation. I was recently diagnosed with EPI which is celiac related. The drug for that is Creon. Creon comes with fat soluable supplements as a free add on. I did not know about the cancer connection. I will say Creon and the vitamins that come with it make me feel amazing.
  2. Estes
    I believe my heart issues were deficiencies. Once I ate better, took supplements, resolved my pancreatic insufficiency issues, my heart issues went away. Could you be missing or low on any vitamins? Maybe start by checking D, B, and magnesium.
  3. Estes
    This happened to me too. I was told I did not need an endoscopy to confirm but now I can not participate in studies. I also sometimes doubt my diagnosis. I wish I had that endoscopy.
  4. Estes
    I had this happen to me. The neurological symptoms seemed to be brought on by inflammation caused by the virus or it’s vaccine. I stocked up on turmeric and everything else that naturally lowers inflammation and my brain fog naturally cleared. I do anything and everything natural to keep my inflammation down so I can use my brain.
  5. Estes
    My biopsy was also negative because it took me 4 months to get an endoscopy. I was very sick at the time of the High positive blood test. We are all calling it celiac disease which had healed enough at the time of the endoscopy for it to be negative. It just means the gluten free diet is working. I will always have celiac. Other things went away...
  6. Estes

    Colorado?

    Estes replied to lacey's topic in Meet Up Room

    I am from Colorado but I don’t live there now.
  7. Estes
    I am your symptom twin and I have celiac and EOE. EOE can be helped by swallowing an inhailed steroid. Basically I had to use a steroid inhaler, hold the puff in my mouth, then swallow it instead of breathing it in. Make a bunch of soup with clear broth and over cooked veggies and live on that for awhile. Then look into AIP wellness. I don’t have t...
  8. Estes
    After almost two years I have found eating at home to be enjoyable and delicious. A few of my keys to this are a great source of recipes: www.iowagirleats.com and a way to stay organized: www.plantoeat.com helps take me recipes and create a calendar and shopping list. Please contact me if you plan to sign up for this. I will give you my real name...
  9. Estes
    I like these one-liners! Thank you and keep them coming. It is giving me mental amo for all my holiday stuff.
  10. Estes
    I want a great sentence to use with grandmas, neighbors, waitstaff... I want it to be memorable and not too overly dramatic. I also would like it to be slightly accurate. Here is my current scenario: new friend: What is Celiac? me: It means my body responds to gluten the way yours might respond to rat poinon. new friend got it and understood...
  11. Estes
    My brain fog did not go away until I stopped taking iron. I also noticed a big increase in energy after stopping. Iron gave me ulcers according to my Dr.
  12. Estes
    I have had three different flavors of Ricola cough drops this week with no problem other than a possible sugar headache from so many of them. It could just be a sick headache though.
  13. Estes
    I bet $5 you have an ulcer. I took iron for years and doc says it caused my ulcers. I went off iron and took meds for the ulcers and the pain and nausea went away. That does not explain all your symptoms though. I ran a marathon then had babies. Now I am 42 with celiac. I am choosing not to run that much anymore because I need those nutrients...
  14. Estes
    Popcorn, wine, as well as coffee are my favorite things. Have you identified what is left to enjoy?
  15. Estes
    Yes, we like peanut butter in the blender with frozen bananas and a liquid (juice, coconut water, almond milk...). You can add berries or even ginger and turmeric.
  16. Estes
    I have both eoe and celiac and now that I have been gluten free for 18 months, my anemia is gone. It is good to get off the iron supliments because mine may have been the cause of my ulcers. It feels good to recover and heal! I may work my way down to fewer supliments and lots of feel great days despite eoe, celiac, ulcers, hiatal hernia, and acid reflux...
  17. Estes
    I have enjoyed your posts and responses for a while. I appreciate your level of knowledge and willingness to share it. Your openness and honesty is refreshing. Thank you for all of it!
  18. Estes
    Some of your symptoms sound like my ulcers. I take carafate before every meal now and they are much better. I have 3 ulcers possibly caused by taking iron supplements. They are worse when I eat spicy food and dairy. I might be wrong but for your sake I hope it's just ulcers. They were found by endoscopy.
  19. Estes
    If you hear an ice cream truck playing morbid music, grab your money and run! They sell roasted sweet potatoes from a truck. Live on those. They are delicious. Eat them as you would eat a candy bar. It's just sweet potato. Maybe 300-500 yen for a big one. They are sold by weight. served hot and ready. I have purchased enough for a few days at a time...
  20. Estes
    So sorry it is difficult. There is soy sauce (made with wheat) and fish flavoring in everything! I too have neurological damage from 40 years of gluten. I can feel your pain. Do you want me to look for a base contact for you? I still have a connection at my Okinawa church which is near Camp Foster.
  21. Estes
    I lived in Okinawa for 4 years prior to diagnosis. My son however tried to go gluten free during that time. His school had no idea what I was trying to say and could do nothing for him. Everyone eats school lunch. Period. It was difficult. If I went back I would eat the percooked hard boiled eggs from Lawson's or your nearest convenient store. You may...
  22. Estes
    I say cut the rice. Seeet potatoes are ok. Look at the AIP food lists.
  23. Estes
    I have celiac and eosinaphalic esophagitis. I was put on a steroid inhaler recently. I use it like an inhaler but swallow the air instead of breathing it in. You may want to look into EOE and it's relationship to celiac. Just a thought. My swallowing and celiac seem to be related.
  24. Estes
    My story is yours too. Now I am 42 and after many years of regularity, it is odd, I agree. It's always a surprise. An IUD helps a little. I am however not worried. I asked a few Doctors and it is all normal. I have been gluten free for one year.
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