Awol cast iron stomach
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Everything posted by Awol cast iron stomach
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Desperate for Help.
Awol cast iron stomach replied to KariB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi checking in on you again to finish with your inquiries to the best of my abilities the physiological based details. "What fo you mean your Gallbladder was a trickle of bile?" As you know I explained I went gluten-free prior to my challenge. So I knew what my body felt like before and how it functioned physiologically better after I removed... -
Desperate for Help.
Awol cast iron stomach replied to KariB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi checking in on you again to finish with your inquiries to the best of my abilities the physiological based details. "What fo you mean your Gallbladder was a trickle of bile?" As you know I explained I went gluten-free prior to my challenge. So I knew what my body felt like before and how it functioned physiologically better after I removed... -
Please also give a review if this works for you. I avoid gluten as much as possible (entirely gluten-free home etc no eating out) and after my last cc incident. I have issues they seem like mast cells or histamine related. I up the B-12 in addition to what is in my multi, it seems to help, but not enough. So I may have to follow your lead. I do also wonder...
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Desperate for Help.
Awol cast iron stomach replied to KariB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many like cycling lady and Ennis on here said to whole foods. I had to go a step further and blend. In general anti inflammatory food lists items. Think smoothies and soups. Lots of greens, fruits, veggies, I stayed off meats or anything that required gallbladder and pancreas/ bile and enzymes. So initially I was blending broccoli as quasi soup. Blueberry... -
Desperate for Help.
Awol cast iron stomach replied to KariB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
After my gluten challenge I literally blended my food as most of my organ systems were inflamed,damaged , and sub par functioning. They could not perform, do their job, they were injured. When I walked my spleen hurt. My spleen! My gallbladder was at a trickle of bile, while I knew it worked well before ( as I was gluten-free before my challenge that is a... -
Thanks for the update Mr. Adams. I know this news may upset people, especially those who were willing to undertake the role of test subjects in the advancement of celiac research. In my opinion it is wise to pull the plug at this stage, and I am certain that is not easy for the researchers either. The wisdom is also knowing when to extinguish a non viable...
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I would say they are late to the game. Ed Debevic's in Chicago has been insulting customers for decades. Lots of sass and zingers. Although Ed Debevic's they were not specifically attacking gluten free , food intolerant, and food allergy customers. They were politically incorrect to all, I think before politically incorrect became a common term. So late...
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Thanks for the information poster boy. Yes,the last few months have been hard on my body. As Ennis pointed out I might be unrealistic about the ataxia/neurology component and healing. As MCAS was something my diagnosing team diagnosis and I didn't fit / check all those boxes. Some days it makes me wonder did they miss something. My husband reminds me they...
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I am still working on it. I appreciate the feedback. I do often have similar symptoms to you. I am not sure if it is an immune issue or more of a neurological issue. As you said I may just be unrealistic about how long the neurological stuff takes. So many of our organ systems can get challenged or need to heal. Meanwhile I am trying to return to the workforce...
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Any one with Ataxia often have symptoms that could fall under MCAS, POTS, or autonomic dysfunction? Since returning to work I've been working hard to keep some Celiac\DH symptoms under control. I have been doing well for most part. Even stopped eating in work lunchroom to ensure I am safe from cc. I have had struggles on\off last 8 months with neuropathy...
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Glutened
Awol cast iron stomach replied to newmanky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi there, One incident of cc at a restaurant my left arm went completely numb within 30-45 minutes after consumption. My symptoms fall like dominos and often in a similar pattern, but it can vary . I avoid gluten, but I also was misdiagnosed for 20 plus years . I have had symptoms my lifetime. After diagnosis and living more strict I found... -
Yes , personally my stomach was horrendous on my endoscopy seen by naked eye in scope photos. I must stay gluten-free for not only my intestines , stomach, nerves, brain, gallbladder, pancreas and hormones. I probably forgot something else. Edit - I forgot to add I was negative h pylori etc . So that was ruled out.
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Symptoms have returned
Awol cast iron stomach replied to sbuck's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome as gluten-free in DC says we often have issues. I had 13 additional food intolerances after my diagnosis. My immune system was quite dysfunctional after my gluten challenge, and almost every organ was inflammed and not functioning properly. I got some foods back over time with healing. I now personally avoid gluten, corn, milk, and oats. During... -
Good points. Plus many of us get a variety of symptoms and if alternative helps then so be it. So glad to hear it was identified and you were able to improve.
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Most of us have had similar thoughts and feelings to you about the aisles we don't bother going down. On some level I appreciate they are all in one place. As Ennis said in time we make our own recipes etc. My children and husband can eat gluten free items from the store. I have found my immune system likes me to make my own bread and pizza items. In...
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Bagles
Awol cast iron stomach commented on Ennis-TX's blog entry in Gluten Free and Specialty Diet Recipes
Thanks I'll give your bagel recipe a try some time this summer. Best wishes on the farmer's market selling season.- 5 comments
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Alternative Dr 's/practitioners I have seen or research use the term digestive issues. They do not use celiac/ncgs specifically. They do ask what your medical history/western diagnosis is, but digestive issues and my gi symptoms or immune symptoms are what is discussed. personally I find most are compliant with regulatory "boxes" for Dr's terminology and...
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Ending a gluten free diet
Awol cast iron stomach replied to trailblazer02's topic in Coping with Celiac Disease
I am sorry to hear this challenging situation for you. My diagnosis took longer than usual same with my cousin. Similar to the posters above I share multiple intolerances etc as they say. DH, ataxia, and while my Dr was a MCAS expert I am not diagnosed as such, I get symptoms of it in addition to my DH/ataxia/malapsorbtion stuff. a cc exposure causes all... -
Ditto and during my challenge I felt sharp stabbing pains there . My husband came in once because I yelped out in pain. He brought me a drink of ginger and warm water and got me my epsom salt bath with my meditation music. I took the advice of many on here as a newbie to stop eating out. It was good advice.Respectfully, the decision is yours, but it...
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Ditto above posters Those deficiencies I notice are a problem for me. Vitamins D, all b's particularly b 12 for me and magnesium are an issue if gluten enters my life. I did attempted the 2 week challenge for endoscope and colonoscopy as I went gluten-free out of desperation for no one ever tested me and my misdiagnosis' seemed to stick for 20...
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Looking for Advice
Awol cast iron stomach replied to rfitzgibby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had to do the challenge since I had gone gluten free before. Long story and 20 plus years misdiagnosed. At this time I don't think researchers have come up with a method other than the challenge . Even though I was gluten-free before the challenge I lived in a gluten home and kept food separate etc. In the end my DH and ataxia especially in addition... -
My bread machine has a gluten free button/mode. It is a Cuisinart the gluten-free button is #5. I never owned a bread machine until I was gluten-free. The one neagative to the bread machine is the paddle leaves a hole in the bottom. In general not a big deal. I do still use it on occasion and does have just a knead button I think it is the pasta dough...
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My 2 week challenge was for both scopes. The endoscope and colonoscopy. While on the challenge the symptoms became progressively worse. I still had my GI symptoms, but the neurological and emotional issues were even more pronounced than before since I had been eating gluten-free for 3 years previously. Although I was not living a strict gluten-free life as...