AristotlesCat
-
Posts
39 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by AristotlesCat
-
This isn't what is going on. I was fine on the previous brand of coffee. People here really should stop diagnosing people with things remotely.
-
Thankfully creamer isn't an issue for me. I only use it occasionally and since I've been on the look out for the problem, I've only been taking the coffee black until I get to the bottom of things.
-
Thanks for the information. I just want to clarify something here as well, since it didn't occur to me this might be what people are zeroing in on: Peripheral Neuropathy is not an unusual celiac symptom. If some of the other posters were trying to suggest that my PN was caused by some other condition I have, let me assure them: my neurologist, my GI...
-
The cross contamination issue came up in other threads with some of the same posters. My statement about that was taken those other threads into account. I am saying there are a few key posters downplaying the risks or possibility of cross contamination. I also think saying flat out it is virtually impossible that I had a reaction to the coffee is odd...
-
And one last time I'd like to point out, all I asked here was for some coffee recommendations.
-
Severe reaction to accidentally eating gluten
AristotlesCat replied to Blessedmewith4's topic in Super Sensitive People
Everyone is different, that sounds like a big reaction. Still I've had some unusual reactions to gluten exposure myself in the past, and even something as seemingly minor as the cramping can get pretty intense. I would definitely agree with cyclinglady that getting the antibodies test soon is a good idea (at the very least you get a data point to have handy... -
I was diagnosed with celiac about seven years ago I think. At the time it showed up on an endo and I tested positive for antibodies. I was having tingling in my legs and feet and other symptoms. Went on the gluten free diet and my antibodies went down, my symptoms went away. No more tingling feet. This lasted for years. Then about two years ago symptoms returned...
-
Also I do want to point out, because I think it is important, that I started a thread asking a community called celiac.com what coffees they would recommend, if they knew of any certified gluten free coffees. I don't think anyone recommended a single brand except Ennis_TX. Most of the responses were either people telling me coffee should be fine, people suggesting...
-
I am a member of gluten free watch dog. They tested it for one report. That doesn't mean it is safe forever or that there are no cross contamination issues with the brand. You could have ten boxes that are fine and one box that isn't, and that one box is going to create issues in your body for weeks. I think Gluten Free Watch Dog is great, but you can't rely...
-
Again, I should specify, this isn't about the coffee creating any stomach symptoms. I have both celiac and crohns and generally find I handle coffee just fine. The problem is something in my diet within the last couple of years has triggered other celiac symptoms and so I am attempting to find a brand I can be more certain is gluten free. One of the changes...
-
No. I am not giving up coffee or caffein. Been drinking coffee since I was 13, so stopping now is a non-starter. We have narrowed it down to the coffee though it seems and switching to the certified brand will likely improve things. The issue here isn't stomach upset. It is peripheral neuropathy and other issues like vitamin deficiency due to a celiac...
-
They do not think I have refractory celiac disease. My celiac was completely under control for years, then I started showing symptoms and the GI doctor, as well as my neurologist and a celiac specialist agreed that the problem was something I introduced into my diet later was likely causing the problem. Doctor doesn't have an issue with me drinking coffee...
-
Gemini I already explained to you, MY DOCTOR has concluded this is celiac not being well controlled and believes gluten is getting into my diet somehow. The coffee is the most likely source I was able to narrow down. Not 100% for sure, but the most likely. So I was looking for recommendations on reliable coffee brands. You replied by saying you have never...
-
maybe you are not the sole source of experience on all things gluten gemini. It is pretty obvious to me, having narrowed down the suspects, this K Cup is likely the source of the problem. And I've even found a certified brand. You can poo-poo peoples' concerns and just dismiss them. But it only takes about a minute of thought to see how cross contamination...
-
With medications I think they should be forced to test for them and they should make all medications that can be gluten free. If you have to take a pill every day and you have no choice, you shouldn't have a question mark on it. It should be gluten free.
-
I am the only one who uses the machine. I don't consume oats. My GI physician hasn't tested me for any reaction to oats themselves, but because things are not under control and I also have crohn's disease, he has advised that I not consume any oats at all just in case I am in that camp of people who also can't digest them. I have have been diagnosed...
-
Also, I just found a certified brand. Terra Farm apparently makes certified gluten free coffee.
-
Thanks. I have considered switching to Republic of Tea (since i noticed they do have a certified gluten free label). I've been a coffee drinker my whole life so that is more of a last resort thing.
-
I have to push back on this. I am not saying everyone should drink certified gluten free coffee. I am saying I was looking for certified gluten free because MY DOCTOR SAID my celiac is still not under control and coffee is the only thing I am currently eating that it could be coming from. So I am hoping to find a better brand than the one I am currently using...
-
Gemini. Just because something is naturally gluten free, doesn't mean cross contamination can't happen. Many things are naturally gluten free in their original state but can easily stop being gluten free if they come into contact with something like flour. I am frankly astounded that you haven't been cc'd if you've been freely drinking just any brand of...
-
I am a coffee drinker and have celiac, and my doctors are telling me my celiac isn't under control. I am getting really bad peripheral neuropathy as a result and my energy levels are insanely low. I've been fanatical about checking labels and in the past few months (just out of pure vigilance to get to the bottom of things) I've only eaten food that is certified...
