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emma6

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emma6 last won the day on January 25 2017

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  1. emma6
    emma6 changed their profile photo
  2. emma6
    im sorry you havn't been able to access the blood tests but im really glad your rash has made such a great improvement in just a week thats amazing hopefully you will continue to improve even more i believe there are home testing kits if you really want to pursue it but i dont know how accurate that would be and getting a negative results wouldn't rule...
  3. emma6
    awesome thank you so much! im not in the us so i can't find those particular brands, are they "young green jackfruit in brine" is that the right type? im asuming the ones in syrup would be too sweet. those ideas sound great i didn't even think about using it in a stir fry. i actually just bought some bbq sauce as well. freezing it is a really good...
  4. emma6
    hey krstannkaty did you get tested and rule out celiac disease before going gluten free? if not now is your best opportunity to since you've only been gluten free for a week. most people find it very hard to do a gluten challenge to be tested months or years later. there definetely alot of great vegan and gluten free options, being vegetarian the hardest...
  5. emma6
    thats so exciting! let me know if you need any help with finding gluten-free products or brands when you move here
  6. emma6
    i do take iron and b12 tablets as well but i think it depends on the person and what your levels are at but definitely keep at eye on it thats so exciting! where are you moving to? i'm from sydney, i havn't ate out yet but i know there are alot of options. the grocery stores carry lots of gluten free options so i wouldn't worry too much especially if...
  7. emma6
    i usually buy pre made falafels as the majority i've found are gluten free and vegan. they are really good on a wrap with hummus, lettuce, tomato/salads or even the same on a sandwich. i also eat them with a salad or as a side with a curry. the only recipe i've made from scratch is from http://www.hotforfoodblog.com/recipes/2015/05/04/baked-falafel-sliders...
  8. emma6
    hey i've been vegetarian for 8 years and gluten free for almost a year. its difficult since they are kind of opposites. i actually just noticed the advertisemnts from the cancer counil here is australia now has meat listed next to alchol, cigarettes and the sun. a few years ago when i read about it, it seemed hot dogs and super processed meats like salami...
  9. emma6
    same stairs and squatting are the absolute worst for me. for pain relief ice and ibuprofen gel are the most helpful for me. for me exercise wise, i've given up on most of the physio exercises and am doing the most i can of movements that don't aggravate the pain. walking as much as i can and exercising as much as i can but stopping a soon as im in pain. im...
  10. emma6
    Yes i have celiac been gluten-free for 10 months, had an iron deficiency (was hoping that was the cause of knee pain) and am being treated for suspected sjogrens syndrome. im surprised they didn't do other bloodwork for you, one of the first tests i had in relation to joint pain was for rheumatoid factor, ANA and a few other arthritis type diseases. ...
  11. emma6
    i have a very similar experience i never injured my knees. started getting mild joint pain in 2012 was told it was PFS and given exercises, they didn't help and caused me alot more pain. then in late 2015 its started to get worse saw a new doctor, got xrays and an mri and said PFS and sent me to a physio. the physio pushed me extremely hard on the first appointment...
  12. emma6
    everyone tests differently, most people arn't postive for every test. so having only one positive can still indicate celiac disease. ttg suggests there is tissue damage in the small bowel. i guess it depends on the doctor. the GI i saw was only interested in the endoscopy, he was very much in the school of thought that the biopsy is the only way to diagnose...
  13. emma6
    @Jm34 how are you doing now? i was following your posts since i have similar symptoms hope you're alright
  14. emma6
    thats so funny i can imagine you walking through the store haha im very over sensitive to alot of smells like paint, perfumes, candles which make my allergy symptoms worse but it still persists 24/7 regardless of where i am or what im doing. that's very interesting yes i'm still hoping i will have some improvement from treating celiac even if its minor...
  15. emma6
    @Jmg thanks for the link, i didn't know you could have refractory celiac even with normal antibody levels. i thought i was out of the danger zone with that one. i've already taken eating whole foods while avoiding gluten and cross contamination to the absolute extreme because with every month i wasn't getting better i thought there must be a tiny...
  16. icon emma6 reacted to a post in a topic: advice for autoimmune immunologist appt
  17. emma6
    thank you so much Gemini, my appointment went really well, he straight away suspected sjogrens syndrome before i even had a change to bring it up!! he found markings on my legs called livedo raticulitis which i was unaware of and the rash i assumed was DH, he thinks is something else although i didn't catch the name of it. he also thinks my poor circulation...
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