egs1707
-
Posts
80 -
Joined
-
Last visited
-
Days Won
1
Content Type
Profiles
Forums
Events
Blogs
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by egs1707
-
Ennis your passion for leading the gluten-free lifestyle certainly shows through,and although I wouldn't necessarily advise following through the punching method I get what you're trying to say. On the flip side I could equally show you the shocked \ disgusted reactions people display when the celiac secret comes out... and trust me it always comes out one...
-
No chance of denying it after I pretty much found it and the result was well beyond any doubt that's for sure. The tips from here and avoiding a few of the dubious ingredients like barley malt, oats etc. no doubt helped get the numbers down. Trouble is I've got to a point where I'm contemplating an impossible choice... stay on this miserable gluten...
-
Yup that form scared the **** out of me even though I had an experienced doctor performing it. Being in a hospital operating theatre is also an experience I don't want to revisit in a hurry. Tbh the formal diagnosis doesn't really change much, in the UK it used to be a way to get discounted food but that's all gone now so apart from confirming what you already...
-
That tallies with something I read elsewhere the other day actually. No way I'm going through the biopsy again unless there's some serious concern driving it as I found the process very stressful. Even then there's not much I could do about it anyway as the AIP diet (last resort if healing isn't working) is pretty much incompatible with being vegetarian so...
-
Quick question before getting onto the quotes - with antibodies reducing significantly but still enough of a positive result to be a diagnosis where does that leave the villi healing process? Would they be repairing as the levels are coming down or is the presence of antibodies mean the villi are still likely to be "flat" as there's still something there...
-
I've had the results of the 6-month levels check now (under a new doctor fortunately who is actually being proactive rather than denying me the tests I need)... gone down from off-the-charts to "weak positive". So, as expected after a short timescale not healed but tTg going in the right direction. Other tests for the common autoimmune conditions come back...
-
One of the things that I noticed en-route to getting diagnosed was that I had to loosen my belt whilst driving or even changing to looser trousers due to the discomfort. Has almost (not 100%) gone back to "normal" since going gluten-free.
-
You're right on the extremes, I'm sitting in a gluten-free food festival right now and still unsure if to eat anything which I guess means I've hit the extreme end of the scale. Seem to be noticing the recovery pattern over the course of 6 weeks or so after a gluten hit. Will be very interesting to see what the blood test readings come out like when...
-
Reality check in the past few weeks, looks like I got glutened at what should be a "safe" restaurant for gluten-free and gone right back to the beginning again recovery-wise Now too scared to eat anywhere and turning down social opportunities because of the food issues, what a miserable way to live this is.
-
Vegetarian here too, celiac really makes it tough as all the Quorn meat replacement products bar the odd one or two are out Then there's all the scare sites saying only paleo type diets will repair your insides but guess what they're all heavily meat / fish based. @Ennis_TX has some good ideas for meals
-
What kind of meals are in that regime? Wondering what else I could have for lunch but most of these protein / fat diets are all animal product based.
-
Random question for you all, did your appetite change over time after going gluten-free? At the moment I feel like I can eat and eat and eat. Not putting on any weight as such but holding steady at least. May also be because my activity level has gone up a *lot* recently (beginning to catch up on me now actually, feeling a bit tired at the moment...
-
Also already using my experience of having done the gluten-free diagnosis route the hard way to help some others I've been speaking to elsewhere. May already have saved a few people by recommending them to vitamin tests, how to get through gluten challenge and so on. Giving something back after getting the help here, that's what it's all about right
-
So it's been a while since the last post, nearly 2 months in fact (time flies!) The vitamin D pills I mentioned on the previous page have been a revelation Started noticing them kicking in about 2-3 weeks after taking the first one, regained muscle strength and that inflammation feeling has reduced too. Internet research beats the GP once again (who...
-
Yeah I think there's a company over here that does Cyrex tests on demand so does sound like an option. Again quite a bit of Internet self-diagnosis going on to be asking for the tests but thyroid does seem an overlooked possible side-effect so may be worth it for peace of mind. Keep being tempted by the food allergy Array 4 (think that's what it's called...
-
Had some blood test results back today, B12 level is normal but low in vitamin D. Been given some 20000IU supplements to get it boosted up, according to the doctor can be a source of the muscle soreness so fingers crossed it'll help. Also been sent for a repeat TSH test but told the labs will never run the T3 / T4 tests when TSH is normal. That...
-
Cider seems to be where it's at now, doesn't seem to affect me anywhere near as much as beer did (kinda makes sense now I guess, pint of gluten please?) Yeah that's the thing I'm hyper-vigilant watching out for at the moment, perhaps too much so. Being vegetarian complicates it further as I'm looking at the calories for the gluten-free replacement...
-
Thanks, me too, with enough information I'm hoping to piece the puzzle together in a way doctors seem unwilling to put the effort into doing (something that really has surprised me during this process) Definitely got it unfortunately, blood test, two gluten challenges and biopsy doesn't leave much doubt Couldn't put it better myself! Won...
-
Celiac is the only problem that's single handedly destroying my life right now so would respectfully disagree with you there, sorry. Was actually reasonably looking forward to 2016 at the time before all this started, never saw it coming that's for sure. Sure, I can safely say that's been the aim of everyone on this thread. Nope, they're just...
-
Really need these blood test results to come through now as these latest symptoms aren't good at all. Seems any minimal exertion (not talking sports, more like moving stuff around etc.) makes my muscles feel weak and start shaking inside (can't seem to visibly see it but certainly feel it) then get a feeling of unease \ dread in my stomach, followed...
-
Interesting, I won't even say the "c word" as it's just got such a horrible ring to it and the word disease is even worse. I stick to some wooly phrasing around gluten when I have to explain to people as that's not quite as threatening.
-
Nothing wrong with cats, the more the merrier The 1% thing I why I'm so down on hopes of recovery. If I'm unlucky enough to be in that percentile then 33% chance of never healing doesn't sound good odds to me. In a world where I just want to fit in I now feel like in order to live I'm going to end up an outcast, defined and isolated by the celiac...
-
There's a simpler explanation to the quoting stuff you mentioned... it's actually the forum software drives me nuts trying to cut a quote into multiple parts especially when posting from a mobile. No offence taken at all from any of your replies, there's only been one nasty post in the entire 6 pages of thread and I shot that troll poster down double quick...
-
You pretty much hit the nail on the head there, no counsellor can change this situation, in the same way the bereavement counsellor I tried many years ago couldn't bring back the relative who was no longer here. The loss of health, which I always feared happening doesn't change and there's no good to come out of this celiac, physically seem to be getting...
-
@Jmg appreciate the thought but I have no time for counsellors, simple fact is they can't change the fact of this evil illness and what it's taken from me. They haven't got it, don't have to live with it and can't possibly understand. That won't change, I hate my lifestyle now and hate it more with every passing day - a living hell, especially for a young...
