egs1707
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by egs1707
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Hemp was the other one I've been recommended to, now in theory lactose free sounds good but... ...noticed the other day when I loaded up on dairy (protein drink, milk chocolate etc) I felt a bit more queasy and slight headache so thought I'd try swapping dairy for some alternatives to see if it helped... ...big mistake it seems. Had lactose-free...
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Bit of an update... Had a good spell the other week where energy levels shot up and felt really sharp mentally too, was beginning to think I might have some hope there and made the most of it in sports, going out etc but... (and it seems with this condition there's always a but...) Now I feel terrible Over the last week or so I've developed a new...
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They're certainly meant to be, maybe it's the concentration of it that was just a bit too much perhaps. Went to see a dietitian today, they seemed to think I'm on the right track and as per many of the replies on here it's a time thing before seeing any real benefits. Found a few websites that can supply homecooked gluten-free meals in frozen form to...
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@Gemini so much of that longer post above resonates, thanks for taking the time to post it. Send restaurants have an accreditation from Celiac UK in terms of their preparation standards which is good. Others are more understanding of it now and say they'll prepare food in a clean area, separate utensils and so on but with the caveat they can't 100% guarantee...
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Not sure if the quote has worked correctly there but anyways... being in an active lifestyle, lots of sport etc. takes a lot of protein to maintain (or gain) weight and needed top-ups with shakes, bars, meals involving the Quorn products etc. Basically need every source of non-meat protein I can get but now those are shrinking by the day and not even got...
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It's an ethical choice and one I won't change whatever the knock on effects. The thought of killing and eating another living creature is something I just couldn't be doing with. Been referred to the dietician who's meant to be a specialist in this field but not heard anything from them yet. I'm guessing there isn't but is there any test to show...
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No meat, no fish at all. Read somewhere lentils and beans can end up with the same effects, if so then what? I need to be around 12-13st but if I don't find a protein shake replacement to top up between meals I'll be down to 10st in a month's time given the speed I was losing weight on gluten-free last time. Managed to get some back on with the...
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And therein lies my worry, can't see me getting anywhere near the levels of protein I need without them. Seems lose-lose whatever option I take
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Will reply to the points above shortly but in the meantime I'm experiencing what I can only describe as a rebound effect, now back feeling how I did after first going gluten-free. Shoulder pain has returned, pain both sides of the abdomen and a rather unhappy gurgling stomach area. Muscles also feel like they're burning, which was the horrible sensation...
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Not had any blood tests since the ones that were done pre-diagnosis. Have to go back to the NHS for those and that means having another battle with the doctors to tell them what tests I need doing (as it seems their 10+ years of training are easily outsmarted by someone with Google and a forum login). Having said that none of the levels were of concern...
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So I haven't updated this in a few weeks... a quick summary... Endoscopy gave the result I knew anyway, intestinal wall damage and with the blood test pretty much certain diagnosis. No surprise there, talk about a lot of pain for little gain Have to see a dietician for the complications of being vegetarian and have a Dexa scan as per the usual follow...
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Yup they took samples as I don't get the results for a week or so, something about microscopic analysis in a lab? Only remember a few minutes either side of the procedure so looks like the sedatives did the trick. Deep down I know the result anyway just based on the reactions I've had since being back on the gluten, this is just a (very expensive) box ticking...
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So nearly at the end point of the gluten challenge, body has somewhat adjusted to the gluten intake and settled back to the original symptoms of head tightness, muscle soreness, dizziness and general GI malaise. Almost used to that given how it's how I've been feeling most of the year so definitely seems 3-4 weeks is my adjustment timeframe. Endoscopy...
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Kept the quote short for ease of reading but yeah I've cut a few people loose in the past few weeks after seeing their reactions. Fortunately balanced out by the positive, helpful comments on here though. Main reason for putting myself through this gluten challenge business isn't so much to get the diagnosis but more to find out just how bad the damage...
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Already had that looking on experience and in the end had to leave the room as it was unbearable just sitting there with people laughing at me not being able to eat, yup people are cruel and really show their colours at times like this. Tbh based on the reactions I've had from people my age so far the kissing thing will be irrelevant as no one will stick...
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Going private no problem with getting the tests now, adds financial pain to the physical pain but better than 6 month waiting list on the national health service. Just feels like a lot of pain and aggravation to tell me what I already know deep down. Feels like my whole future has been taken away with this and I have a feeling I haven't even seen the...
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Back on the gluten foods for about a week now and it's hell, if there was any doubt that the blood test wasn't accurate I can say with unerring certainty now it's definitely gluten causing the problems. The headaches, muscle pains, sore throat (reflux no doubt) and general feeling of malaise all back with a vengeance. As predicted it's worse this time round...
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So had the private appointment on Monday, make a refreshing change to talk to someone who seemed to actually know what they were talking about and have symptoms checked right back from the beginning. As everyone on here correctly stated I have to go back on gluten for 4-6 weeks before being able to have the endoscopy, all seems a lot of effort to confirm...
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Yup that sounds a sensible way to approach it, seems to be the direction I'm going in by looks of things Private appointment with a gastro specialist now booked for next Monday so will see how that goes, money talks I guess
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Bit of an update... So today was meant to be my appointment with a gastro specialist where I thought I'd start to get some answers about the next steps and what I should be doing but oh no... ...I take time off work, travel down to the clinic I was booked in with and get to front desk... "your name's not on the list"... hmmm. I sit and wait for...
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Yeah I do some relaxation class once a week (could do with it every day at the moment!) which really helps for the time I'm there. Never able to replicate it outside for some reason, must be the environment that makes a difference. Unfortunately I had a bad reaction with acupuncture when treating a sports injury which actually flared the muscles up so...
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Sadly it does seem that the health profession is now driven by money and some shady dealings with pharmaceutical companies rather than putting the patient's well being first. Such is the way the world seems to work these days. Thanks for the good wishes, fingers crossed
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Indeed, unfortunately most of the ones my age react the same way... social isolation here I come...
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Oh no they're not putting any effort in at all, requires constant complaining to get anything out of them. Only got diagnosed because I had a list of tests from my Google research that I wanted done (still haven't completed the list yet, thyroid is next up) ESR \ CRP is particularly scary because of GCA \ Temporal Arteritis and right now I have tender...
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Unfortunately my so-called friends think it's one big joke and so far doing a great job of making me feel even worse about it. Constant jibes and comments like "nice dose of gluten on that for you" when making tea and so on. Really showed their true colours over the past few weeks that's for sure. Can't help but remember a quote I saw, I think on a thread...
