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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Fbmb
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Hi all! its been a little while since I've been on here because I've been feeling pretty ok. It seemed like around 11 months things started to feel consistently normal for me. I've been grateful. My gastroenterologist had me repeat my ttg in July and then again today. When I was diagnosed it was sky high (>100) and in July it was 4. At the lab 0-...
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I have a weird question and I think I know the answer but I always come here with weird questions. I got my flu shot today, and I got my kids their shots too. Tonight my husband asked me if flu shots are gluten free. I never thought to ask the doctor and I assume that they are, but I didn't research it beforehand so I feel like I should ask. It's 11:15 pm...
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How much gluten is in a communion wafer
Fbmb replied to Deades's topic in Coping with Celiac Disease
My church uses Rice Chex for communion, which I think is so sweet (and adorable). They do this because they're gluten free. That said, they don't hand them to us. They're in a silver dish and we go up and get our own. They serve donuts and things like that before church so I don't like grabbing out of the dish. Also, I'm a germaphobe. Also, I don't know if... -
Hi everyone! Im almost a year out from my diagnosis. Things seem to be going ok, but I wasn't super symptomatic when I was diagnosed (despite having stage 3b damage), so I don't know if I would feel terrible if I ate gluten. I'm obviously not willing to try it! I'm really diligent. When I was diagnosed I read tons of articles about how scary this...
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This post is all about poop.
Fbmb replied to CaroCaroCaro's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, I'm not a poop expert, but I can tell you that I know a lot about it because of this silly condition. I can also tell you that I'm 9 months in and I still have loose stools frequently, usually in the morning. They fluctuate all the time throughout the day. I honestly think my issue is more IBS than my celiac because at diagnosis my TTG was through the... -
I've heard of Dr Dunphy, but wasn't sure if she knew much about Celiac. Fort Collins is actually really close to me. About 60 miles away. Maybe I should give her a call? also, are you in Fort Collins? I just ask because we go there a lot and I never know where to eat except at Beau Jo's I might have to bug you for pointers!
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I live in Wyoming and I'm looking for a new gastro. in Colorado. I'm right on the border so I'm fine commuting. I have a gastro. in Denver but I'm not thrilled with his office and I don't feel like he and I really "get" each other, despite the fact that I think he's a good doctor. I know that not all GI docs know a lot about Celiac so I'm hoping to find someone...
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Hi all, my TTG/iga came back. It was 4. 0-3 is considered negative and 4-10 is weak positive. In January it was 12 and before my endoscopy in October it was >100. it plummeted those first 2 months but seems to be taking more time to get lower. Should I feel optimistic? I guess 4 seems ok.
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9 month follow up labs tomorrow...
Fbmb replied to Fbmb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's true. My doctor was telling me back in January that he expected to see a big drop if I'm doing well on the diet, and I was so nervous. But then when it came back at 12 (we got the result together in his office) he was elated. He said, "This is a significant decrease!" So my hope is that it's lower than 12 now. But I was over the moon in January. I... -
9 month follow up labs tomorrow...
Fbmb replied to Fbmb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You're the best I hope the TTG/iga alone is ok. My doctor said it is. I'm trying this new thing where I don't second guess or argue with my doctor. It's tough for a sass like me. -
Tissue Transglutaminase IgA testing
Fbmb replied to VioletFemme's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It depends on what your TTG was. When I had mine done (it was all I did) it was >100. I asked my doctor if it could be from something else and he said, "with a number like that, not likely." I had an endoscopy a couple months later it and confirmed it. My mom has an AI liver disease and is negative for celiac. I know that people say that some AI... -
Hi all, Im having my TTG/Iga drawn tomorrow for my 9 month follow up. I had them drawn initially in September and they were >100. I was officially diagnosed with my biopsy on November 8 and stopped eating gluten that day. My GI doctor wanted me to repeat my TTG in January, and it was 12. He wanted it done again 6 months later, which is now. So I'm...
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Stomach ulcers maybe?
Fbmb replied to WinifriedA's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I know you don't want another endo, but that's going to tell you if you have an ulcer. My mom has to go in for an endo in August because her doctor thinks she has one. And really, it's a relatively quick and easy process and you'd have an answer. You can develop ulcers anytime, and they aren't always going to be because of gluten. I get canker sores (usually... -
I'm sorry, but not having enough lactase to break down dairy and taking enzymes to replace them is hardly poisoning yourself. It's not like someone having Celiac and eating gluten. Most people are lactose intolerant and there's nothing wrong with taking digestive enzymes if a person wants to have cheese. I have seen many people on this site suggesting that...
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Finally was diagnosed.
Fbmb replied to sddave's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Mine still gurgles. Last night during dinner it was going wild and I asked my husband (not a celiac) if his does that and he said "yeah all the time." you mentioned stress, and I feel you there. When I'm stressed my belly is unhappy. Gurgling tummy isn't always because of celiac. Plenty of people have gurgling, indegestion, etc and they don't have celiac... -
Mucusy string substance in stool?
Fbmb replied to blossomx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You'll probably notice really weird things with your stool for the next few months. Be prepared for ups and downs.- 4 replies
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I also like Canyon Gluten Free Bakehouse. Franz makes a good one too and it's easy to find. I live in a smaller town so the canyon bread isn't as easy to find. But I can buy Franz at Walmart. I like it a lot more than Udi's.
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Ask them for a copy of your results and find a good gastroenterologist in your area. Go there and give them the results. That's what I did. I didn't even bother with my GP. I got the results from the health fair and called a GI in Denver. My insurance didn't require a referral. My GI was the one who put me on the track to being accurately diagnosed. And regardless...
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Also, I had my bones checked a few months back (In January), and they were awesome. I'm still shocked at how well my body did with Celiac. I hear about all of my friends on here who had crazy horrible symptoms and I never did. I'm grateful. Because those ugly things would come eventually.
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Ok, two things: 1. I never had symptoms either. I'm 29 and I've always been healthy. Never had bad blood work. Never had any issues. I had two healthy pregnancies and never in a million bazillion years thought I had celiac. Last September I got a weird stomach bug and it just wouldn't get better. After about 3 weeks I started wondering what the heck...
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Are Kashi Gluten Free Waffles safe?
Fbmb replied to Forman337's topic in Gluten-Free Foods, Products, Shopping & Medications
So in most cases with gluten-free foods it isn't the traces of gluten that makes you sick, but other ingredients? It's just good to know because any time I feel off or have an issue with something I assume it's gluten and that it's setting me back. But knowing it could be an additive at least lets me know my immune system isn't destroying my intestines after...- 8 replies
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Are Kashi Gluten Free Waffles safe?
Fbmb replied to Forman337's topic in Gluten-Free Foods, Products, Shopping & Medications
My understanding is that they couldn't say that they are gluten free if they aren't. Is that not correct?- 8 replies
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frozen bags of veggies
Fbmb replied to pdm1981's topic in Gluten-Free Foods, Products, Shopping & Medications
I read that C&W is safe. I buy their frozen zucchini. I had a weird belly this morning after eating Walmart brand frozen green beans yesterday. They don't say on there that it could contain traces of wheat - their broccoli does. So I thought they were ok. Maybe they are and it was a fluke.