pdm1981
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Glutening symptom? oily stool
pdm1981 replied to ognam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's also a symptom of EPI. -
Scott Adams reacted to a post in a topic:
Vaccines
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When I went to the Mayo Clinic back in 21' it was pretty amazing. The doctor sat and went over everything with me for a couple hours. I finally had to ask him if he had other patient to see. He said that not until he was done with me. I went back to my hotel room that day after some blood work and then got an itinerary of tests to be done over the next 5...
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I've been to the Mayo Clinic. Outstanding place. Did they test to see if you might have refractory celiac disease? This may explain why the symptoms persist but what numbers are off the charts? Are they antibodies, liver enzymes?
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Does anyone out there have any good slow cooker recipes? I got one a couple months ago and love it but I found trouble tryting to find quick prep times combined with easy recipes. I tried the paleo sites but they always have a strange ingriediant or take a certain skill set to cook it abd have it turn out good. I'm looking for stews, soups, chilis, Stuff...
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So I hear a lot of back and forth on whether it's okay to drink coffee or not. There was even a back and forth from 2007 on this site. Now things are different than they were back then so I decided to put this out there. IS COFFEE SAFE FOR SOMEONE WITH celiac disease? I would love to have some coffee in the morning, maybe with some flavored cream.
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Gluten Challenge: What would you eat?
pdm1981 replied to pdm1981's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I forgot about Oreo cereal! Going out and getting some tomorrow! I'm not doing this to tease anyone. I've been there and still might have celiac disease. For whatever reason I react to tomato sauce, garlic, and onions. Still avoiding those foods right now. I had my SIBO breath test today and will get the results next week. Also I have a followup with the... -
I'm a big soda lover too. Most soda is gluten-free to 20ppm. I personally drink too much Dr. Pepper. Why give up every thing you like? Personally, I tried the Zevia and hated it. It's no regular soda. I agree with Ennis though, flavored sparkling water is a nice alternative and doesn't cost that much. As far as vitamins, there are some gluten-free certified...
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Gluten Challenge: What would you eat?
pdm1981 replied to pdm1981's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm on the same page as a few of you. I've had a couple different kinds of bread now. Sorry Ennis but there are no Bennigans up here in Ky. I have eaten there when I was stationed at Ft. Hood though and that sandwich sounds awesome. White Castle does sound great but whether you have celiac disease or not, it'll make you suffer afterwards. I find myself not... -
I'm 1 week into the gluten challenge to put this diagnosis to bed. All of us were able to eat real food at one time or another and I'm sure you can remember the taste as I do. What would you eat if you were doing the gluten challenge? Real Pizza Deserts Cookies Hawiian rolls Crossants Maybe a Doughnut A Chili 3 Way What...
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My Gluten Challenge
pdm1981 replied to pdm1981's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Turns out the reason a biopsy wasn't taken the 1st scope 6 years ago is that everything looked normal. I'm still moving along with this gluten challenge and so far nothing has changed. The symptoms of these "flare ups" are still the same whether gluten is there or not. I actually improved slightly with the probotics (Florastor). The gas didn't go away but... -
In my last post I told the story about how I had almost every possible test done and there was no sign of Celaic Disease that they could find. In fact, my diagnosis stems from a single blood test taken over six years ago. One test. I told this story in which some people said that I should ignore my new results and get new doctors and that they must be wrong...
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What the F***!?
pdm1981 replied to pdm1981's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
All biopsies are normal and negative for celiac disease. No damage was seen. This current GI doctor ran every test except for the breath test which is scheduled for June 15th. As far as the original doctor, he is only going off the 1st blood test I got, and this was the only positive test. No biopsy was ever done with the 1st doctor who diagnosed me. I saw... -
So I was diagnosed about 6 years ago and have been putting up with the same symptoms ever since. I was very surprised when the GI doctor was going over a battery of tests I had done when she came to the conclusion that I never had celiac disease. I had to ask her to repeat that several times. All the tests were coming back normal and the so called "gold standard...
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So anyway, I've been having some problems with my diet. A doctor told me to go on a low FODMAP diet. I didn't know what in the hell it was til I looked it up and thought to my self there was no way I was going to restrict my diet anymore than it already is. Well I've had enough to where I'm going to give it a go. I stumbled across a company called FODY who...
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Well I had the whole work up this week. Scopes on both ends appear to be normal but many biopsies were done and they're not going to be in for about a week. There were a couple of ulcers but that's it for the most part. They took a lot of blood and also are running the genetic test for celiac disease. One of the tests for celiac disease, not sure which one...