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apprehensiveengineer

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by apprehensiveengineer

  1. apprehensiveengineer
    Will it make you feel better? Maybe. But if I drink a six pack of [gluten-free] beer, I will also feel better. Is alcohol a cure too? Neither will change the amount of damage you sustain from inadvertently consuming gluten. Don't fool yourself by trying to mask it.
  2. apprehensiveengineer
    Homeopathy is a placebo, and doesn't do anything. Anyone who tells you otherwise is a quack making a buck off of it. It is quite literally "active ingredients" (I use liberally - none of the active ingredients have any plausible mechanism of action) diluted to such an extent that there is not one single molecule of the active substance remaining in whatever...
  3. apprehensiveengineer
    As @cyclinglady said, being super strict was necessary for me to make any headway against the rash. I have been gluten-free for 4 years, and I still get dinged every once in a while when I try a new brand/thing. In my first year gluten-free, I was not very careful about CC with my gluten-eating roommates, and was fairly relaxed about what packaged foods...
  4. apprehensiveengineer
    My scalp's hella messed up. It's gotten a lot better though - I didn't seek a professional haircut for years because I've been too embarrassed about it. I still have a few lesions occasionally, but nothing super chronic (now I cut my own hair to save money lol). There are also some other skin conditions that can cause lesions on the scalp though. That...
  5. apprehensiveengineer
    @PaigeyPants It really depends what province/region you are located in as grocery stores here are rebranded regionally, and have different brand loyalties in different regions. I've done grocery shopping in a lot of provinces, and you have to know what's happening more locally to be sure. As a general rule, most Loblaws-owned grocery stores will have...
  6. apprehensiveengineer
    Hi, I'm in Canada and had a lot of trouble finding beans initially. I use Unico canned beans, and their other products that are CCA certified (canned tomatoes, pizza sauce etc.). I am careful to look for the symbol as we sometimes get cans manufactured at their US plants, which do not have it. Unico does dried beans as well that are certified. There...
  7. apprehensiveengineer
    This is perhaps not helpful to you specifically, but I eat Kraft peanut butter (not available in the US in stores, but the most ubiquitous brand in Canada). It is not labelled gluten-free as Kraft does not test incoming ingredients. Normally I don't mess around with packaged products that don't claim to be gluten-free, but this is my only exception. I...
  8. apprehensiveengineer
    There was a point where I felt like you do, like I was going crazy being contaminated by everything. However, it actually turned out to be issues with some of the foods I was eating. All of these foods were single-ingredient foods that should be low risk in theory. However, anything can be made on a shared line, and may contain warnings are optional. Aside...
  9. apprehensiveengineer
    @Alaskaguy With regard to the timing, I think that everyone is a bit different! I used to have a shorter time to onset when I was first diagnosed (within 24h). As time has gone on, and I've glutened myself less and less, I have noticed that the time gets a bit longer. Recent history seems to matter a bit too - if I've been glutened recently and then...
  10. apprehensiveengineer
    @Alaskaguy Almost 4 years. The first 1.5 years or so I was not very careful about CC and got glutened a lot. I'm in my late 20s now, but probably ate more gluten in the first 2 decades of my life than most people could dream of ingesting in 40 - British family (everything is served with bread, bread is a snackfood) + endurance athlete (high carb...
  11. apprehensiveengineer
    For what it's worth, I've noticed that if it's just iodine I will not get any other symptoms. In addition to the rash, I typically get GI symptoms, fatigue, and sometimes joint swelling when I ingest gluten. I don't typically eat seafood or stuff with lots of iodized salt, but sometimes I do on special occasions knowing that there will be some relatively...
  12. apprehensiveengineer
    Teff is fine as long as it is marked gluten-free or in a gluten-free product. It's common in Ethiopian cuisine (used to make a savoury crepe-like thing called injera). Sometimes it is cut with wheat to extend it as teff is expensive (watch out in restaurants serving injera!). Since it's a grass that kind of look similar to wheat and might be processed/packaged...
  13. apprehensiveengineer
    Lol! I sympathize - I was greatly disappointed myself! 2010-2015, gluten-eating me I ate oats every single day for lunch more or less. They are convenient because you can throw 'em in a container dry, and then find somewhere with hot water (or a tap and microwave) and hey presto! decent, cheap, nutritious meal. I'd recommend not eating them for a while...
  14. apprehensiveengineer
    This was absolutely the breakthrough that helped me get better. I was sloppy with the GFD in my first year because I didn't know better, and still kept getting sick a lot. I did some research, and complied with what most specialists would agree is a competent GFD for a celiac. I still was getting sick - not as much, but my iron and other blood values...
  15. apprehensiveengineer
    I totally get the possibility of being glutened in a lunchroom (it makes me a bit nervous), but it is possible to not get glutened from this environment if you have a protocol. I eat in a university cafeteria most days (tables crumby, never cleaned), and often eat at other similar venues while traveling. I think that with celiac there is a danger of social...
  16. apprehensiveengineer
    Depends on how sustained the relationship is. Are they likely to ever get you a gift again, or is this a one-time thing (eg. goodbye gift)? If you'll not see them again, don't trouble yourself and give it away (I try for donation/food bank if possible). If it's someone you'll be interacting with again in the future who is likely to see you in food situations...
  17. apprehensiveengineer
    I think that soy "intolerance" is a bit of an urban legend/very much overstated for people with celiac disease. Soy is often cross-contamined with gluten (like other legumes), or implemented in a manner that does contain gluten (soy sauce), which I think leads to many people coming to the incorrect conclusion that they have a soy intolerance. If you're buying...
  18. apprehensiveengineer
    I've had a lot of trouble with tea... I think the issue is that many herbal teas contain spices/flavourings which may be CC'd, and that most teas come from Asia where there is a bit less allergen awareness/less likely to have allergen management plans in factories (shared lines, some teas contain barley). I think the tea bag thing is a bit of a myth - wheat...
  19. apprehensiveengineer
    @Nikki2777 I wouldn't necessarily worry about it too much. For me, the issue was isolated to college-y type bars where everything is drenched with spilled beer. I make a bit of a snap judgement about a place by looking at the bar to see what's going on. If stuff looks clean, glasses are stored in a way that makes it unlikely for them to get contaminated...
  20. apprehensiveengineer
    Yes, that is exactly how it feels. No one wants to deal with patients who have ambiguous/complicated conditions because it is not satisfying and hard to know how to help them. I don't actually think DH is all that rare - I think it is just not something that is not diagnosed often, which makes it seem rare. Many confirmed celiacs I have heard from (online...
  21. apprehensiveengineer
    I tried to pursue a formal diagnosis while on a GFD (no chance of me doing a challenge - I would have been so sick that I would have had to drop out of school on the other side of the country from home!). I knew I was still getting CC'd a bit (rash had not gone away completely), so I was hoping that this might be enough to elicit a positive test result. ...
  22. apprehensiveengineer
    I have found zinc oxide and epsom salts helpful as well. I find that they dry out the lesions, which seems to speed up healing a bit. I also find that the lesions that I pick at are prone to getting infected (fingernails are dirty!), and that both of those topical treatments seem to mitigate that a bit. Sweating also causes me pure misery during an active...
  23. apprehensiveengineer
    As an aside, Life Brand always says somewhere on the bottle which company/factory they outsourced to for manufacturing. Many of their OTC medications that I have come across are made by Apotex, which says it does not use gluten in its factory. These meds are not labelled gluten-free (unlike some of the vitamins/minerals, made by a different company/factory...
  24. apprehensiveengineer
    Benadryl and other allergy medications won't help much unless you are allergic to wheat. Celiac/DH is a different immune system pathway, and so allergy meds won't affect it much. Benadryl might feel like it helps because it knock you out (hard to feel bad if you're passed out), but probably not something you want to be falling back on. I'm a little skeptical...
  25. apprehensiveengineer
    That's good to hear! I have had good luck with small-time local ciders. I always choose ones that say they are gluten-free on the label - most do in Canada these days it seems, which is nice. I'd say you should feel pretty confident about the Glutenberg. They test their products at an independent lab and don't put it out unless the result is below the...
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