Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

apprehensiveengineer

Advanced Members
 View Profile  See their activity

  • Posts

    196

  • Joined

  • Last visited

  • Days Won

    14

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by apprehensiveengineer

  1. apprehensiveengineer
    Hey. I feel this post. I am quite sensitive, and am still on a more-or-less Fasano diet. I did the official version (plus whole bean coffee, plus wine), and eventually started adding in additional gluten-free foods as tolerated. Personally, I have done ok with almost all wines, gluten-free labelled cider, and gluten-free (not removed!) beers from...
  2. apprehensiveengineer
    @cyclinglady I grew up in an agricultural area, but had not been back since being gluten-free except during the winter/spring. A lot of our recreation trails go through crop fields. Mostly corn and soy, but still quite a bit of wheat/barley/oats. I used to joke that it didn't worry me too much, since the only problem would be if the field was being harvested...
  3. apprehensiveengineer
    If everyone had that attitude, there would be no gluten-free regulations at all! Other people have complained, and once complaints build up, change can happen... and if it doesn't, I'd rather say I tried to make things better for myself and others. Advocacy for other medical conditions and disabilities (eg. wheelchair users) has only been successful because...
  4. apprehensiveengineer
    That's a violation of the FDA gluten-free regulations. Malt vinegar is not allowed as an ingredient regardless of whether it is under 20 ppm gluten. Gluten Free Watchdog has called out Kroger for this product: https://www.facebook.com/258784214186574/posts/product-alert-kroger-brand-salt-vinegar-chips-remain-on-store-shelves-these-chip/1803670996364547/ ...
  5. apprehensiveengineer
    I get lesions like those that OP attached on my hands when I get glutened, usually on the joints by my fingers. I have not had my skin biopsied, but I'm otherwise (symptoms, presentation, sensitivity etc.) consistent with DH. In my case, I find that my lesions start to appear more distally (farther away from the core regions of my body) the worse I have...
  6. apprehensiveengineer
    Er... a study on celiac disease would say that the biggest risk factors are being white and female, but that doesn't mean that men or POCs can't have celiac. Epidemiology alone isn't a good way to rule out illnesses. The study does not say that people who have asthma and sleep apnea are always overweight, just that it is a significant risk factor. Being...
  7. apprehensiveengineer
    To be fair, you can not know you have asthma. The only real way to tell is doing objective testing. I also didn't think I had celiac disease because I ate bread at every meal and assumed that someone with celiac would be dead if they did that for 20+ years. I didn't have asthma attacks like they show in movies/TV (movies/TV aren't real, whodathunk!)...
  8. apprehensiveengineer
    Have you ever been tested for asthma (ie. spirometry test)? I have asthma, and was diagnosed as a child because I kept having these very alarming sleep apnea episodes. I would stop breathing in my sleep, wake up (and panic!), and not be able to recommence breathing for several minutes. I think I would have passed out (2-3 minutes is a long time to not be...
  9. apprehensiveengineer
    Ditto this... I have yet to find a brand of gluten-free nuts that haven't caused me issues . There aren't many gluten-free labelled nuts to begin with. Nearly all nuts have a 'may contain wheat' warning, which I would not take lightly as nuts are often processed on the same lines as pretzels, wheat-containing chips/crackers etc. There are a few brands...
  10. apprehensiveengineer
    This is good for people to know (I was already aware of this, but you explained it well!). My hypothesis is that some of the difference is from the variations in HLA DQ genes. It has been shown that T-cells from people with 2.5 vs. 8 vs. 2.2 vs. others grab on to different parts of the "gluten molecule" (usually gliadin in the studies). For this reason,...
  11. apprehensiveengineer
    Good hint @Ennis_TX. I've never seen that product, but I'm sure it would be great especially for cookies. Though I think the taste might scare me at first. I usually make grits (corn or rice) and put the same stuff in that I would when I made oatmeal - peanut butter, honey, berries, nuts, seeds etc. You can also get quinoa flakes, but I've had issues...
  12. apprehensiveengineer
    Same. I used to eat oatmeal every single day, sometimes twice a day... so believe me when I say that I wanted oats to work very badly! It's convenient for packed meals/traveling, and nutritionally quite good. I was very disappointed when I did the oat challenge... the results were unambiguously bad after only 2 days and I had to stop because I was so...
  13. apprehensiveengineer
    IMHO, none. Evidence for the safety of avenin (the protein in oats that is similar to gluten in wheat) in oats is patchy. Yes, there are some feeding studies (from Europe) that show that people seemed to tolerate eating pure oats well, but I have some major concerns about these studies: large drop-out rates from these studies that were not investigated...
  14. apprehensiveengineer
    I've had mega issues with glassware at bars as well. Part of it is that the glasses are sanitized (kills bacteria, viruses) but not cleaned (removes particulate matter, such as gluten residue). Another part of it is that bars with taps are very messy, and servers don't have time to wash their hands much. Beer is everywhere. Taps for non-gluten drinks can...
  15. apprehensiveengineer
    I live in Canada and haven't had much trouble finding gluten-free labelled supplements. As far as I have noticed, all Life Brand (Shopper's Drug Mart store brand) vitamins are labelled gluten-free, and they make their pills in Canada. Most other inexpensive and common brands are labelled gluten-free, insofar as I have noticed. The ones to watch out for...
  16. apprehensiveengineer
    Organic has nothing to do with gluten-free, and a lack of "may contain" statement does not necessarily mean that a product is safe. In the US and Canada, manufacturers are only required to list ingredients they put in on purpose. If a product was processed on the same line as an allergen, there is no duty to warn consumers of this risk. Some choose to give...
  17. apprehensiveengineer
    Diet pops contain artificial/no-calorie sweeteners (polyols), which are well-known to have a laxative effect, and cause diarrhea in some. Diet coke contains aspartame, while diet pepsi contains aspartame + acesulfame potassium. Perhaps the acesulfame potassium in the diet pepsi is a no-go for you personally. These ingredients aren't inherently unsafe...
  18. apprehensiveengineer
    I use the McCormick brand spices, and am not aware of them causing me any problems. I only use the "single" spices, but that is mostly because I prefer the versatility of making my own mixes. I live in Canada and Club House (made by McCormick) has many mixes that carry the Canadian Celiac Assoc seal. I don't use them, but don't have any reason to believe...
  19. apprehensiveengineer
    This seems like you might have issues other than celiac disease. I think my advice would be to see a registered dietitian. Patterns noticed from elimination diets are notoriously difficult to interpret because foods are chemically complex, and eliminating one food often inherently changes the way we eat other foods. Sometimes the things we think are...
  20. apprehensiveengineer
    Could be that you have an issue with FODMAPs. Broccoli contains FODMAPs, and so if you eat a lot of them it can result in similar GI symptoms to celiac. It might be a forever thing, or it might be just because your GI tract is still healing, and having trouble with things that are more difficult to digest (ie. FODMAPs). I get some GI issues if I eat...
  21. apprehensiveengineer
    Glad you took it the right way :), sometimes the internet makes tone hard to convey. I think it is tough because people with other medical dietary restrictions (eg. anaphylactic peanut/nut allergies) tend to be able to eat out pretty normally. I know many people with such nut allergies, and honestly some of them don't even mention it at restaurants/catered...
  22. apprehensiveengineer
    It is an unpopular opinion, but I think in the balance of things that eating out at normal restaurants is something that should be avoided unless necessary (and it is rarely necessary if you have some forethought and mental/emotional flexibility). Fact is, most restaurants are not truly able to cater adequately to celiac customers - I've lived in with gluten...
  23. apprehensiveengineer
    I get a rash in my armpits. It's terrible. I've been told this is hidradenitis suppuritiva (also an autoimmune condition), but I'm not entirely convinced there isn't some overlap between the two conditions. HS is known to be improved by a diet that happens to exclude sources of gluten (though it is never described as such in studies). I have found that...
  24. apprehensiveengineer
    If you're an adult, the minimum for good health is 150mcg (equivalent to 3 eggs): https://ods.od.nih.gov/factsheets/Iodine-Consumer/ Iodine is naturally-occurring in sea salt, but when it is refined/processed the iodine is lost. In most countries, it is a regulatory requirement to add it back in. Iodine is also naturally occurring at low levels most...
  25. apprehensiveengineer
    I had an endoscopy and biopsy done once I was already gluten-free (for 2 years). It came back clean, but I was still experiencing minor GI symptoms, rash and was anemic (and not responding too well to the iron supplements I was taking) at the time. Some people might be inclined to interpret the clean biopsy/endoscopy as meaning that my problems were...
×
×
  • Create New...