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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by apprehensiveengineer
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Others have given you good advice with regard to getting screened/diagnosed, but I wanted to chime in since I am a fellow "serious" runner. I spent much of my teens/early 20s training at a high level with increasingly intrusive symptoms, much like you described. I normalized a lot of it for years, but got to a breaking point where I simply couldn't any more...
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Pork and brown rice
apprehensiveengineer replied to Emily45's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For the brown rice, it could be the fiber (assuming you mean whole grain rice, which still has husk on it). If I have been glutened recently, whole grain brown rice and other fibrous foods are not digested well by my GI tract. Because I get non-GI symptoms, I am quite sure that the cause is not gluten. You might stay away from whole grain rice for a bit,... -
I think what is going on for a lot of people experiencing being glutened by vapours is that they are perhaps mis-attributing the experience to the vapour, when in fact they were glutened by other means (swallowing airborne flour particles, splatter, touching contaminated surfaces). Proteins (eg. gluten) are heavy, and cannot evaporate or be suspended in water...
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I wouldn't worry about it too much. Pool chemicals at public pools are tightly regulated, and are meant to handle this sort of thing. Short of you having something majorly pathogenic, or depositing major amounts of bodily fluid in the pool, I wouldn't worry. Actually, you're the vulnerable one if you're entering the pool with an open sore - pathogens can...
- 2 replies
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- chlorinated pool
- hemorrhoids
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DH and related complications
apprehensiveengineer replied to Alaskaguy's topic in Dermatitis Herpetiformis
That makes sense. Smaller pools (eg. therapy pools, hot tubs) are more easily thrown off-balance chemically because of the lower volume of water and warmer pool temperature. Typically, they require higher concentrations of chlorine, so I can see why using iodine (which is less irritating to skin/eyes/airways if used in high concentrations than chlorine) in... -
DH and related complications
apprehensiveengineer replied to Alaskaguy's topic in Dermatitis Herpetiformis
I've noticed that going in the ocean for prolonged periods makes my skin worse. This seemed to happen regardless of whether I submerged my head. No idea if this is to do with topical iodine exposure or not, but it seems that topical iodine can induce a flare, as it can be used for diagnostic purposes: https://onlinelibrary.wiley.com/doi/abs/10.1111/j.136... -
Symptoms questions about being glutened
apprehensiveengineer replied to Bookgirl32's topic in Coping with Celiac Disease
I travel a decent amount for competitions/conferences, and don't eat out before those (because if I get sick, the whole point of my trip is nullified!). Domestic car trips are easiest, as you can bring coolers with ice packs and don't have any security/border restrictions on what can be brought. That said, I have managed week+ trips internationally without... -
Fatigue - Athlete
apprehensiveengineer replied to Jmun5's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's a bit of a newer thing (last 6-7 years). Previously there was a condition called "female triad syndrome" which was anemia, amenhorrea, and poor bone density caused by under-eating/disordered eating in female athletes. Researchers have found more recently that the symptoms are a bit more systemic than this, and that male athletes too can be affected ... -
Fatigue - Athlete
apprehensiveengineer replied to Jmun5's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
(In case you're having trouble finding info here are some links... not to dox myself, but I'm a few data points in some of these studies listed ) International Olympic Committee statement: http://bjsm.bmj.com/content/48/7/491 Diagnosis/Return to Play advice: http://bjsm.bmj.com/content/bjsports/49/7/421.full.pdf I competed at the intercollegiate... -
Canadian celiacs: Do you trust bulk barn?
apprehensiveengineer replied to Pepper88's topic in Meet Up Room
@pepper88 In my experience it works best if you use a partially pre-cooked brand (eg. minute rice)! Otherwise the rice flour doesn't absorb the liquids properly during cooking, and you get some weird/sad runny baked good. -
Fatigue - Athlete
apprehensiveengineer replied to Jmun5's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You might consider Relative Energy Deficiency Syndrome (RED-S), which is caused by underfueling. Basically, it is an updated and expanded view on what used to be known as the "female triad syndrome." Symptoms/consequences include anemia, poor bone health, amenorrhea/hormonal disturbance, fatigue, depression, reduced response to training stimulus. In... -
I mean, could be... but did you get tested for worms? 10% of American adults have worms, regardless of socioeconomic status and personal hygiene. If you did not get tested for worms by your doctor, you should before ruling that out. [Good shocker fact from one of my pathology courses... ] I am not aware of any OTC anti-helminth medication that is...
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Gluten free in canada
apprehensiveengineer replied to Bec the Lemon's topic in Gluten-Free Restaurants
Also, I'll add that ever popular Tim Hortons is a gluten nightmare (I don't even get coffee there lol). They used to have prepackaged macaroons that were gluten-free, but those have disappeared since the company was bought out. If you look at their allergen chart, you'll notice that the chili is nominally gluten-free. I'm not sure I'd risk it, since... -
Gluten free in canada
apprehensiveengineer replied to Bec the Lemon's topic in Gluten-Free Restaurants
This is not correct. McDonald's Canada does not list its poutine as one of its gluten-free items: https://www.mcdonalds.com/ca/en-ca/about-our-food/making-informed-choices/gluten-free-options.html The reason is likely due to one of the ingredients in the gravy - yeast extract - which may be derived from barley. Barley is not an allergen that must... -
Canadian celiacs: Do you trust bulk barn?
apprehensiveengineer replied to Pepper88's topic in Meet Up Room
NO. Bulk food bins are not safe for celiacs ever! Some reasons: 1. bins are not dedicated, and unlikely to be cleaned thoroughly between product changes 2. scoops get mixed up 3. wheat flour aerosolizes and gets everywhere. This happens when customers scoop out flour, but also when the bins are refilled by the staff. Unfortunately... -
Gluten free in canada
apprehensiveengineer replied to Bec the Lemon's topic in Gluten-Free Restaurants
I wouldn't trust McDonald's on anything but black coffee. Many of their items are nominally free of gluten-containing ingredients, but the fast pace of the restaurant and teenage/low skill workers means that it is unlikely that proper care will be taken to minimize CC risk. The same is true of most fast food restaurants in any country, unfortunately. Starbucks... -
Products (makeup?) to cover DH?
apprehensiveengineer replied to disgruntledceliac's topic in Dermatitis Herpetiformis
I use Physician's Formula, which is inexpensive and labelled gluten-free. They have various cover-up creams, powders and concealer sticks. I just use the BB cream. Since it's going on your face (and hands unless you use a sponge to apply), I think it's worthwhile to care about the gluten-free part. Most make-up companies will say that wheat/gluten sources... -
I've glutened myself from old clothing/fabric. For example: a pair of gloves that would have likely seen a lot of cookies, bread during the gluten-eating times of my life. Put them on several years later, touched my face with them a bunch, got sick. Washing fixed the problem. For dish rags, there might be some concern as those are in a bit more of a...
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- bedding
- cross contamination
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I use Sun Bum, which is labelled gluten-free in the US and is widely available/inexpensive. They have many different products (sport, normal, spray, lip balm) and strengths (30, 50). I am a redhead, so I wear a lot of sunblock and care very much that it is gluten-free as I wear it while exercising outdoors on a daily basis (ie. face sweat drips into my mouth...
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Itching of short duration.
apprehensiveengineer replied to Grad1202's topic in Dermatitis Herpetiformis
Are you currently gluten-free? Did you have the rash while you were still eating gluten? I have found that though I still get flares, that they are much less itchy now than when I was eating gluten on a daily basis. My words come with a grain of salt as I have not had my rash biopsied (I am however, quite confident it is DH). When I was eating gluten... -
Mars bars
apprehensiveengineer replied to Twizz's topic in Gluten-Free Foods, Products, Shopping & Medications
Got bored waiting at the grocery checkout and remembered to check the packaging. In Canada Mars Bars appear to not be gluten-free, as they contain barley malt. It is indeed clearly labelled on the packaging/allergen warning. -
If you suspect you have lyme disease you should get tested for it. You don't necessarily need to have the classic "bull's eye" tic bite reaction. I've not had it, but know people who have and it can be quite devastating if left too long before treatment. The symptoms of lyme disease and celiac disease overlap quite a bit, so difficult to tell unless you test...
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Stopping Dapsone Question...
apprehensiveengineer replied to Metoo's topic in Dermatitis Herpetiformis
I have not taken Dapsone, and cannot provide any experience with regard to any potential side-effects coming off it. Here are some things that have helped me. People with DH appear to be more sensitive than "regular" celiacs, so an extra layer of caution may be required to get rid of the rash: 1. Don't eat out. 2. Don't eat food that you have... -
Gluten ingested by the mother does not transfer to the breast milk in a sufficient amount to cause intestinal damage in a baby with celiac disease: https://www.breastfeeding.asn.au/bfinfo/coeliac-disease-and-breastfeeding Organic food is also irrelevant - organic farming practices still involve the use of pesticides, just ones classified as "natural...
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Please please please take your child to a doctor for advice on changing his diet and/or testing for celiac disease. Growing children are very susceptible to malnutrition, and a restrictive diet should be avoided unless medically necessary. Last year an infant died because their parents insisted on keeping the kid on a gluten-free, vegan diet due to a...