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apprehensiveengineer

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by apprehensiveengineer

  1. apprehensiveengineer
    I'm not sure that this is the original study I looked at, but it does describe the different antibodies found circulating in the blood that is specific to DH (anti-eTG, which is analogous to anti-tTG in regular celiac disease). At any rate, it seems that they can test for it, but many labs do not have the ability to do so or doctors do not know to ask for...
  2. apprehensiveengineer
    I have not been diagnosed with DH via biopsy, but my rash is mainly centered around my neck/jawline/ears and upper back/spine. Despite what many doctors have told me (as an excuse for refusing to consider DH), these are common locations for the rash. You said you get it on your hands and knees, so be sure to mention that as well as those are considered more...
  3. apprehensiveengineer
    That's horrible about your son though. I suspect that the meds I was on didn't help my bone quality, but luckily I was not on them for most of the time I was growing. Fortunately, my asthma has always been on the less severe side so I've not really had too many scary moments.
  4. apprehensiveengineer
    Well, I think it was more that my sleep apnea was a symptom of asthma, so controlling that got rid of the problem. Since most asthma inhalers act to relax the respiratory muscles and/or reduce mucus product and inflammation in the lungs, I'd guess that this strategy wouldn't work unless the sleep apnea was due to asthma/inflammation in the respiratory tract...
  5. apprehensiveengineer
    I'm Canadian and don't have a endoscopy diagnosis... yet (had a scope done a few weeks ago, waiting on the lab results). The missing piece of info here for non-Canadians might be that specialist wait times can be quite lengthy depending on where you live, and cannot necessarily be transferred easily between provinces. Not sure what OP's timeframe is looking...
  6. apprehensiveengineer
    As far as I recall, I only saw my GP. Basically, I went in and my mother described the episodes and gave me an inhaler to see if it would help. Don't recall what medication it was specifically as I was too young, but it did actually control the apnea episodes at that time (as far as I was aware at the time). Since it did seem to help, no further investigation...
  7. apprehensiveengineer
    I was formally diagnosed with asthma twice - once at age ~8, then again at age 16 (they thought I grew out of it... they thought wrong). My primary symptom that prompted my parents to take me for visit to the doctor was persistent sleep apnea wherein I would stop breathing completely in my sleep, wake up and be so terrified that I would launch into a full...
  8. apprehensiveengineer
    I've been told a lot of things over the years... from allergic dermatitis, to "sensitive skin" to ???? to acne. I have tried to no avail to get the skin biopsy, so take my statements with a grain of salt. I am fairly confident (as was the GI I saw recently) that I have DH as my outbreaks are always directly linked to GI distress from gluten ingestion, and...
  9. apprehensiveengineer
    Former lifeguard and competitive swimmer here. There could be some potential issues, but I think it's pretty unlikely. Here's why I think that: 1. The water volume in a standard 25m pool is enormous (hundreds of thousands of liters). Assuming there are people swimming in the pool, any hot spots are likely to get dissipated pretty fast, so you'd have...
  10. apprehensiveengineer
    Hey, So I ran collegiate track and cross-country and trained at a high level while undiagnosed. Had I not been an elite level athlete, I do not think I would have been so insistent that there was something wrong with me. I suffered many stress fractures and had a lot of problems with anemia, but also had a lot of soft tissue injuries as well (herniated...
  11. apprehensiveengineer
    I have a true soy allergy (mouth and throat begin to itch immediately upon ingestion, positive skin prick test). I personally avoid soy lecithin, although I know that it should not contain any protein, which is the part that people with allergies react to. I don't worry about soybean oil (which can be labelled as vegetable oil in Canada) as much, though I...
  12. apprehensiveengineer
    Err... don't know what happened to this thread in my absence, but thought I'd add some input that might be helpful. I'd been having some weird low-level CC issues for the last few weeks and couldn't figure out what it was - I eat very conservatively (only eat certified products or fresh meat/produce/dairy) and it was driving me crazy! I saw this thread and...
  13. apprehensiveengineer
    Not sure if they get distributed outside Canada/PNW, but Que Pasa makes certified gluten-free corn chips and tortillas if anyone is looking for extra safety. They are mainstream in most grocery stores here, and are the least expensive corn chips you can buy. Also legitimately very good. I've never tried Mission, but I've had problems with gluten-free...
  14. apprehensiveengineer
    I believe it is ~$20-25 CAD for the standard jar (600g) at Whole Foods here, so more expensive. This is however, a bargain compared to most other protein powders I see (upwards of $50 for similar amounts!). Packaged food, animal products and alcohol in Canada are stupid expensive, especially if you're off the "main line" (ie. Great Lakes/St Lawrence corridor...
  15. apprehensiveengineer
    Thanks Ennis_TX! That's what I was hoping to hear I've never been a big protein powder user even pre-diagnosis despite being a fairly high level endurance athlete, so my awareness of what's out there is low. I've always preferred "real food," however, I was trying to find a protein powder because I have some extended job-related travel coming up, and...
  16. apprehensiveengineer
    Has anyone tried this product (Whole Foods carries it in the PNW)? http://www.omeganutrition.com/pumpkin-protein-powder-21-oz-epppp021 Its only ingredient is pumpkin seeds, which is appealing to me as I am allergic to soy/pea protein on top of celiac. The company says it's gluten-free and elsewhere states that all of their products are gluten-free/produced...
  17. apprehensiveengineer
    Yikes... beer was actually the thing that made me suspect I had celiac in the first place, so this article isn't even anecdotally reasonable. I noticed that I would have beer, any amount and the next day I would have what I thought was a terrible hangover. Then I realized this didn't happen when I drank other types of alcohol... Anyways... I'd be careful...
  18. apprehensiveengineer
    I thought the style of your post was funny I've recently been dealing with a similar situation and have finally gotten to the bottom of it (I think). I like you, live in a shared kitchen. Although my roommate is very considerate and doesn't eat much overtly glutenous food, I've developed a few strategies that seem to work: separate everything buy...
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