pikakegirl
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pikakegirl's Achievements
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I always have a high positive ANA. Diagnosed 13 years ago. Militant gluten free, I don't eat out at all. My thyroid causes many of the symptoms you describe if it is out of my comfort range, which is individual on a large scale of normal. The normal range is to wide and I feel that is why many are not properly diagnosed. My perfect number is 1.5 but I am...
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CottenCandyDream reacted to a post in a topic:
Can't find Vitamin D that doesn't give me hives?
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knitty kitty reacted to a post in a topic:
Can't find Vitamin D that doesn't give me hives?
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My research showed me my D3 was derived from lanolin. I have a wool allergy so I buy Bluebonnet D3 I found on Amazon which is derived from fish. I feel much better with no adverse effects.
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Hi, I am 15years diagnosed and gluten-free. After a decade of sickness before diagnosis I decided to be militant gluten-free. I called manufacturers and farms to research how food was grown, harvested and packaged for all my purchases. It took 6months for my CRP inflammation to be in normal range as well as my Celiac blood test markers. At first as I was...
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BetterLiving reacted to a post in a topic:
Did anyone else experience lower right-side pain of abdomen?
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After 11 years diagnosis and gluten free clear blood testing I developed sharp lower right abdomen pain 2 years ago. I thought it was either a kidney stone or appendix. It was worse upon waking when the bladder is full. I had a sonogram clearing my theory. I then had Celiac blood testing, colonoscopy and a small GI pill camera. I found mine was a reaction...
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Is Malabsorption Permanent?
pikakegirl replied to von's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I found I had a problem with D3 from sheep/lanolin which most are made from. I now use Bluebonnet fish sourced D3. Also I am not converting folic acid, K2, B6 or B12 so I get the l-methyl folate, menoquinane K2 , p5p b6 and methylcobalamin b12 instead and they are show high in my bloodwork now. -
symptoms of Celiac?
pikakegirl replied to Tracey E's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Agree with Admin. My Celiac diagnosis was by blood test and biopsy. There is importance in proper diagnosis and the difference between Celiac and Gluten Intollerence. That said my diagnosis took 30 years so I have needed other specialists to assist in healing and management. Gastroenterologist followups, Family Doctor for vitamin panel screening, Cardiologist... -
Asymptomatic
pikakegirl replied to Matt C's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Silent Celiac as well. Took years of recovery for me. Malnutrition took its toll on my organs and nervous system as well. Getting the right medical help was difficult because of lack of doctor knowledge. Energy came when I found I was not metabolizing many vitamins even though I was supplementing. Once I took the l-methy form of folic acid my energy returned... -
I see your dilemma. I have silent Celiac or so it is called. Not much GI symptoms, none when I accidentally ingested it once after years of being gluten-free. But before diagnosis I had biliary dyskinesia meaning my gallbladder was not emptying and had to be removed. My symptoms were Thyroid being attacked, fatigue, muscle pain, anxiety, kidney stones, weight...
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Diagnosed Celiac 3 biopsies 2007. Been gluten-free and tested every 6 months since. Lots of nerve pain. Found my folic acid crashed and have the MTHFR gene so 3000k l-methyfolate daily helps the nerve pain. Also on FODMAP helps bloat. Found an inolerance to citrus/citric acid/ascorbic acid. Causes stomach and bladder pain immediately. Read that citric acid...
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Extreme anxiety
pikakegirl replied to Crispy chick's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Glutenda. I also have Hypothyroid from Hashimoto's and advise everyone with anxiety/panic to have thier thyroid checked. Here are the 10 exercises for stopping a panic attack. 1. Breathing technique. Breathe in through nose down to stomach ( not chest) at count of 8. Hold for 8. Out through mouth slow for 8. Repeat and lengthen count if you can. ... -
My weight went up to 230lbs before I was diagnosed. I started dropping 5 lbs a week as soon as I stopped eating gluten. Lost 90lbs of inflamation. Kept it off for 8 years until surgical menopause and Gabapentin for nerve pain related to MPS and old car accident.
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It took a while before a Dr. Tested me for MTHFR and found I had one of the 2 genes. I had been 9 years militant gluten free ( no eating out either) but still exhausted. I now avoid folic acid foods and take 3000mg l-methylfolate daily. Boost of energy and outlook on life. Check out NIH library site and search depression and folate. Great study results for...
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Colonoscopy Prep solutions
pikakegirl replied to AngieJoy's topic in Gluten-Free Foods, Products, Shopping & Medications
My gastroenterologist works with me on homemade prep since I can not tolerate citric acid, magnesium, salt, dyed, flavorings. I boiled a huge pot of water with potatoes, peas, green beans, carrots and cooked duck for an hour and everything was mush. Strained it twice until I had an almost clear broth which I refrigerated. I drank a glass every 2 hours for... -
Have you had a vitamin panel done? My bloodwork showed my folic acid was terribly low. I thought it was the Celiac but my gene testing showed I had one MTHFR gene. I now avoid folic acid rich foods and take 3000mg L-methyfolate daily. This helped my joint pain. It has to do with the inability of my body converting folic acid to the absorbable l-methyfolate...
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Makeup to cover DH scars on forehead?
pikakegirl replied to NoGlutensToday's topic in Coping with Celiac Disease
I use Gabriel, Zuzu, or Andrea Rose cosmetic concealers, all Gluten Free and Fragrance Free. I have scars from surgery and red marks from hemangiomas. I just dab some on and let dry happy a second coat in those areas. With my age I avoid powders that make skin look more wrinkled.
