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pikakegirl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by pikakegirl

  1. pikakegirl
    I always have a high positive ANA. Diagnosed 13 years ago. Militant gluten free, I don't eat out at all. My thyroid causes many of the symptoms you describe if it is out of my comfort range, which is individual on a large scale of normal. The normal range is to wide and I feel that is why many are not properly diagnosed. My perfect number is 1.5 but I am...
  2. pikakegirl
    My research showed me my D3 was derived from lanolin. I have a wool allergy so I buy Bluebonnet D3 I found on Amazon which is derived from fish. I feel much better with no adverse effects.
  3. pikakegirl
    Hi, I am 15years diagnosed and gluten-free. After a decade of sickness before diagnosis I decided to be militant gluten-free. I called manufacturers and farms to research how food was grown, harvested and packaged for all my purchases. It took 6months for my CRP inflammation to be in normal range as well as my Celiac blood test markers. At first as I was...
  4. pikakegirl
    After 11 years diagnosis and gluten free clear blood testing I developed sharp lower right abdomen pain 2 years ago. I thought it was either a kidney stone or appendix. It was worse upon waking when the bladder is full. I had a sonogram clearing my theory. I then had Celiac blood testing, colonoscopy and a small GI pill camera. I found mine was a reaction...
  5. pikakegirl
    I found I had a problem with D3 from sheep/lanolin which most are made from. I now use Bluebonnet fish sourced D3. Also I am not converting folic acid, K2, B6 or B12 so I get the l-methyl folate, menoquinane K2 , p5p b6 and methylcobalamin b12 instead and they are show high in my bloodwork now.
  6. pikakegirl
    Agree with Admin. My Celiac diagnosis was by blood test and biopsy. There is importance in proper diagnosis and the difference between Celiac and Gluten Intollerence. That said my diagnosis took 30 years so I have needed other specialists to assist in healing and management. Gastroenterologist followups, Family Doctor for vitamin panel screening, Cardiologist...
  7. pikakegirl
    Silent Celiac as well. Took years of recovery for me. Malnutrition took its toll on my organs and nervous system as well. Getting the right medical help was difficult because of lack of doctor knowledge. Energy came when I found I was not metabolizing many vitamins even though I was supplementing. Once I took the l-methy form of folic acid my energy returned...
  8. pikakegirl
    I see your dilemma. I have silent Celiac or so it is called. Not much GI symptoms, none when I accidentally ingested it once after years of being gluten-free. But before diagnosis I had biliary dyskinesia meaning my gallbladder was not emptying and had to be removed. My symptoms were Thyroid being attacked, fatigue, muscle pain, anxiety, kidney stones, weight...
  9. pikakegirl
    Diagnosed Celiac 3 biopsies 2007. Been gluten-free and tested every 6 months since. Lots of nerve pain. Found my folic acid crashed and have the MTHFR gene so 3000k l-methyfolate daily helps the nerve pain. Also on FODMAP helps bloat. Found an inolerance to citrus/citric acid/ascorbic acid. Causes stomach and bladder pain immediately. Read that citric acid...
  10. pikakegirl
    Glutenda. I also have Hypothyroid from Hashimoto's and advise everyone with anxiety/panic to have thier thyroid checked. Here are the 10 exercises for stopping a panic attack. 1. Breathing technique. Breathe in through nose down to stomach ( not chest) at count of 8. Hold for 8. Out through mouth slow for 8. Repeat and lengthen count if you can. ...
  11. pikakegirl
    My weight went up to 230lbs before I was diagnosed. I started dropping 5 lbs a week as soon as I stopped eating gluten. Lost 90lbs of inflamation. Kept it off for 8 years until surgical menopause and Gabapentin for nerve pain related to MPS and old car accident.
  12. pikakegirl
    It took a while before a Dr. Tested me for MTHFR and found I had one of the 2 genes. I had been 9 years militant gluten free ( no eating out either) but still exhausted. I now avoid folic acid foods and take 3000mg l-methylfolate daily. Boost of energy and outlook on life. Check out NIH library site and search depression and folate. Great study results for...
  13. pikakegirl
    My gastroenterologist works with me on homemade prep since I can not tolerate citric acid, magnesium, salt, dyed, flavorings. I boiled a huge pot of water with potatoes, peas, green beans, carrots and cooked duck for an hour and everything was mush. Strained it twice until I had an almost clear broth which I refrigerated. I drank a glass every 2 hours for...
  14. pikakegirl
    Have you had a vitamin panel done? My bloodwork showed my folic acid was terribly low. I thought it was the Celiac but my gene testing showed I had one MTHFR gene. I now avoid folic acid rich foods and take 3000mg L-methyfolate daily. This helped my joint pain. It has to do with the inability of my body converting folic acid to the absorbable l-methyfolate...
  15. pikakegirl
    I use Gabriel, Zuzu, or Andrea Rose cosmetic concealers, all Gluten Free and Fragrance Free. I have scars from surgery and red marks from hemangiomas. I just dab some on and let dry happy a second coat in those areas. With my age I avoid powders that make skin look more wrinkled.
  16. pikakegirl
    After diagnosis and gluten-free diet I became intolerant of many foods and additives. Citric Acid and Ascorbic Acid cause a sharp kidney stone like pain in my lower right side. It took forever to figure out that is what the pain is from, I never had a problem with citrus or citric acid before. Wonder it is from over exposure in lifetime or how it is processed...
  17. pikakegirl
    Gluten free since diagnosis 2007. Militant about it and have not eaten out in 13 yrs. Clean pill camera and colonoscopy. Clear blood work for 12 yrs after first year gluten-free. Panic attacks have stopped by 2014 helped by clearing my body of benzodiazepines previously prescribed before and after diagnosis and balancing my hashimotos. My biggest issue is...
  18. pikakegirl
    Always good to use the support we have here. I have found products that have the Gluten Free label like vitamins but there is yeast not derived from beets. It is good to be sceptical when you have Celiac.
  19. pikakegirl
    I think GFinDC has sound advice. I was IgA and CRP elevated and read about Celiac. I have silent Celiac and had lots of strange symptoms and it was missed for over a decade. The endoscopy was a breeze. No pain afterward, no overnight stay. Biopsy positive for damage and I only had 2 feet of undamaged Small intestine. It has been 13years of healing and GI...
  20. pikakegirl
    For many years after diagnosis my bowel was frequent. Time to heal and an elimination diet down to 10 foods had me regular. Found Magnesium rich foods are triggers as are some oils like palm. Of course many preservatives were as well and am now off processed foods. After 13 years I have a pristine colonoscopy and pill camera study of the small intestines...
  21. pikakegirl
    Yes. I had no after care after diagnosis. Mine stopped when I had a vitami panel done and found my folic acid crashed as well as D3, B2 K2. Others to check are B12, B6, Magnesium. Processed foods have lots of vitamins added and a sudden lack while the GI is still damaged can cause havoc. Also check your genetic marker for MGHFR if your folic acid is low...
  22. pikakegirl
    I was diagnosed at 39 and had a Dexa scan which was normal thankfully. Many things can cause bone loss or bone pain. A hormone panel would help to see if there are any issues there. K2 can be low for celiac and it is essential in bone health as is calcium and D3. They all work together. Checking your CRP can determine your body inflamation level. A rheumatologist...
  23. pikakegirl
    I believe you have a gluten free home. I do too and have not eaten out on my 11 years post diagnosis. It took 6 months for my blood IgA and CRP/Westergreen levels to go to normal. They have been normal for 10.5 years. That said it took years for my GI to be normal. Healing can be slow or fast. Seems each person is different. Like you I had no follow up care...
  24. pikakegirl
    It took over 6 months for my numbers to get in normal range. I am Silent Celiac and I ate gluten free beginning in 2007 when there was no legislation for ppm gluten free. I wish my doctors had done more extensive vitamin panels and genetic testing which in later years finally helped me add or subtract nutrients for healing. It has been 11 years and I am now...
  25. pikakegirl
    Yes on the nightmares. Usually I know I am Celiac and my family gives me food but it has gluten in it and I am furious. That has never happened and they arensuper supportive to the point my home is gluten free so go figure. As for food allergies and inollerences. I had blood tests for food but they are 50% accurate at best. I never had these before going...
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