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TexasJen

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by TexasJen

  1. TexasJen
    I saw this post today and thought of this thread.... https://celiac.org/live-gluten-free/resources/7-day-pediatric-gluten-free-meal-plan/ or this one http://mygluten-freekitchen.com/three-gluten-free-top-8-free-school-lunches/
  2. TexasJen
    I think the heart scan will be very telling. A lot of it (lung fluid, swollen feet) could be his heart but I agree with the other posters that it sounds like he is malnourished too. What was his diet like before he got sick? Does he have any dementia or Parkinson's? Was he an active healthy guy up until a year or two ago? Does he stick to a gluten free...
  3. TexasJen
    I agree with cyclinglady. I don't have the same plan for every place we visit. Every place presents it's own challenges, so I spend a lot of time planning meals everywhere we go. My mom is not really a cook and when she does cook, it's rarely with flour. So I use her pots and pans and clean them well. I buy my own sponge, dish towel, cutting board there...
  4. TexasJen
    Yay! My kids are negative too. I am going to have them screened every 2 years while they are still growing. I don't want to wait until they are not growing to diagnose it. (By then, they probably would have had it for 2-3 years, esp since 50% don't have typical symptoms). Of course, if they develop symptoms, I'll have them retested sooner. I think the...
  5. TexasJen
    Hi Luana- I'm sorry to hear that you are feeling poorly. It seems as though, due to the severe pain after eating, your GI doc would have recommended an upper scope as well (looking for an ulcer, gastritis, or some other disease.) It could also find seronegative celiac (meaning celiac disease that you can see under the microscope with a biopsy but the...
  6. TexasJen
    I'm fine in Austin. Lots of rain. A bit of wind..... Although for us, most of the more severe weather is coming overnight tonight. They are predicting 5-20 inches of rain here. If it's 20inches, probably we'll see flooding. If it's only 5 inches, yay for the extra rain. They are predicting 27-30 inches of rain in Houston. If you have ever been there...
  7. TexasJen
    Well, the biopsy came back just plain old reflux/esophagitis. No EoE. This is reassuring in some ways for me. I didn't really want to give up ice cream! I hope that a gluten-free diet clears up your symptoms for you. For me, I guess it's just no evening snacking, less coffee, smaller meals. Good luck!
  8. TexasJen
    I'm sorry you are feeling so badly! Muscle and joint aches can be caused by a lot of different things - including vitamin D deficiency. I think most people (doctors included) don't think of celiac as the most likely diagnosis when your complaints are muscle. My point is sometimes you can't do every test at the beginning. If you like your doctor, make...
  9. TexasJen
    I think you have 3 questions: 1. Why am I losing weight? 2. What is the cause of the anemia? 3. Do I have celiac? Since your symptoms are new and there is a high suspicion for celiac, you should have a repeated blood test for celiac with the full panel. Anti - TTG - IgA and IgG, deaminated gliadin - IgA and IgG, endomysial antibodies....
  10. TexasJen
    Peanut butter is always my breakfast when I want to stay full for a while. When I am in a rush, I just eat a spoon of peanut butter and a glass of milk with some fruit. When I have a bit more time, I make toast with peanut butter. Cereal doesn't keep me full in general. I know you said you might have trouble with oats (but if you figure out that's not...
  11. TexasJen
    There are plenty of people that have gone gluten free without the official diagnosis because a gluten challenge would make them too sick. I think you are the only one that will know if it's right for you. There are some benefits to getting diagnosed as either celiac or NCGS. 1. If you are celiac, all of your first degree relatives should be screened...
  12. TexasJen
    I was diagnosed with celiac last year on an endoscopy looking for the cause of my anemia. At the time, my GI doc tested m for EoE and it was negative. Fast forward 11 months, I developed sudden heart burn, dysphagia out of the blue. My doc thinks it's EoE. Biopsy was last week and I am still waiting on the results. I have not started any treatment yet, but...
  13. TexasJen
    You sound a lot like me (although my arthritis presented first). I developed an unusually arthritis 7 years ago when I was pregnant. Morning stiffness in both hands, but no other symptoms. It got a little better after pregnancy but never really went away. I figured eventually I'd get some other symptoms and have it checked out but nothing ever happened...
  14. TexasJen
    I believe the American Gastroenterology association says that screening for celiac is just the Anti-TTG IgA and a total IgA level if you have low suspicion and the full panel if you have a high suspicion. The test missing from yours that would make it a "full panel" is an endomysial antibody. Do you have a family history?
  15. TexasJen
    I'm sorry you are feeling so poorly. Yes, people have a lot of the symptoms that you have, but sometimes not all of the symptoms can be attributed to celiac. Here are some thoughts.... 1. Keep eating gluten but don't overdo it - the equivalent of 1-2 pieces of bread should be enough. Maybe if you limit your gluten a little (and it really is celiac...
  16. TexasJen
    The fullness of the Eucharist is found in the wine alone. glutenfreewatchdog did an article on the low gluten hosts recently. She tested a single host from the Benedictine sisters and found it to contain 0.0017 mg of gluten. Compare that to the 0.57mg found in a piece of gluten free bread. The amount of gluten you are exposed to is negligible if you take...
  17. TexasJen
    The fullness of the Eucharist is found in the wine alone. glutenfreewatchdog did an article on the low gluten hosts recently. She tested a single host from the Benedictine sisters and found it to contain 0.0017 mg of gluten. Compare that to the 0.57mg found in a piece of gluten free bread. The amount of gluten you are exposed to is negligible if you take...
  18. TexasJen
    Well, whenever I make a decision, I look at the plusses and the minuses. Getting tested: Minuses - actual testing - you have to see a doctor and pay a copay and any coinsurance for the blood tests (or go to an independent lab and order the tests yourself - about $300 out of pocket), blood draw - a little pain and annoying. If the results are positive...
  19. TexasJen
    I was diagnosed 1 1/2 years ago. I had some restless leg symptoms and fast heart rates all related to anemia. The anemia is what prompted the evaluation. Within 2 weeks of being gluten free, the fast heart rate and leg symptoms went away. By 4 months, I was no longer anemic. In retrospect, there were other symptoms - worse migraines, anxiety, PMS that I...
  20. TexasJen
    Can I say that I don't think you have to stop planning your dream vacay just because you need to eat gluten-free (feeling bad - I understand that) I just got back from 2 weeks in the northeast. Careful planning and an extremely boring diet and I ate very safe the entire time. I didn't eat in a single restaurant though except a completely gluten-free restaurant...
  21. TexasJen
    I'm sorry you are feeling so poorly! I agree with the advice above..... I think rechecking the antibodies is a great start. If they are negative, you have confirmation that your diet is at least on the right track. You can pursue an elimination diet to determine if you are getting some very mild cross contamination. If they are still positive then, back...
  22. TexasJen
    Did your doctor test for eosinophilic esophagitis (EoE)? It is like "asthma of the esophagus. Typically, it causes heartburn type symptoms that often times get better with anti-acids but the cause is an allergic reaction.70% of the time it's from either gluten or dairy. The other 30% of the time it is soy, fish, nuts, eggs or something else. And it typically...
  23. TexasJen
    There is a lot of hidden wheat/gluten everywhere. Anything that goes on your lips or in your mouth should be gluten free. So, in addition to the above advice, look at the following: restaurants, your home, lipsticks, makeup etc 1. Restaurants - this is a place where a lot of ppl consume gluten unknowingly. I would suggest not eating in any restaurants...
  24. TexasJen
    Crazy! But just to make you feel better, the bristles are made from Bamboo Charcoal. So you more than likely couldn't get glutened using it......
  25. TexasJen
    Usually, it takes more than a couple of weeks for the symptoms to really improve. Often times the GI symptoms will improve in a couple of weeks-months but the neuro symptoms like brain fog, mode issues can take 1-2 years. So, this may be a silly question, but you said you had the scope in December, but have only been doing the gluten-free lifestyle...
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