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Mermaid's Mom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mermaid's Mom

  1. Mermaid's Mom
    My daughter had itchy eyes and redness from SIBO. We learned about her SIBO at the same time that I stumbled across the Nemechek Protocol for SIBO and it made such sense that we went straight to his protocol to resolve SIBO (which has no food restrictions or special diets) - so while I can't give you feedback on the diets I can tell you that the Nemechek...
  2. Mermaid's Mom
    You should research SIBO. It sounds identical to what you are describing and also has Gluten intolerance as a symptom. I put my daughter on the Nemechek protocol for SIBO a few months ago and all of those symptoms cleared up. I wrote and update about it on here not long ago. You should read it!
  3. Mermaid's Mom
    OH and it turns out that WORST thing for SIBO - the thing that causes it to grow out of control and make things worse in Probiotics!
  4. Mermaid's Mom
    Thanks!! I think about you often as well - you were such an "anchor" for me to cling to when I first landed here!
  5. Mermaid's Mom
    Hi Everyone. I haven't been on here much but some of you may remember me. I am just returning to give you our update. So what brought me here originally was that my daughter was textbook Gluten Ataxia and when we put her on a gluten-free/DF diet she improved so much. But like everyone else - she seemed to get "glutened" all the time and was...
  6. Mermaid's Mom
    Oh wow! I haven't been here in days because I have been POURING over the most recent SIBO literature! Have you heard of Dr Nemechek? https://www.nemechekconsultativemedicine.com/ His approach is very simple and essentially you STOP using probiotics and start taking Inulin. It is all very fascinating and falling in with what we are seeing with...
  7. Mermaid's Mom
    Love reading this story as it is rare (I think) to find someone else with the swallowing issues! Hate that this is your experience however! My daughter also has the swallowing issues and it got so severe (we had no idea about Celiac) that she had to do intensive therapy to learn how to swallow again. It got better but never resolved. Once she went gluten...
  8. Mermaid's Mom
    Lots of these places are Buffet style...and from what I understand it is ALL cross contaminated. If where you are going is not and you order off a menu I might be less concerned but you really do still run the risk.
  9. Mermaid's Mom
    Could you have a shellfish allergy? That reaction sounds like my husband when he is exposed to shellfish. It is a gradual allergy and can get worse with each ingestion so I would not consume shrimp again without being prepared with liquid Benadryl or an epi pen. Or get tested!
  10. Mermaid's Mom
    I liked your post because it was so hopeful to read that you think she may have a chance at a full recovery but I HATE that you had to suffer that long with those issues. It has been painful to watch this beautiful girl waste away. I hate that anyone else has suffered that way. Definitely we are see HUGE differences in her personality. Over the last...
  11. Mermaid's Mom
    wThis is such a timely post for me as we are just realizing that my daughter has neurological issues related to celiac/gluten intolerance. Almost 3 years ago, hen she was 10 she was no longer able to swallow food. Prior to that there were of course issues with anxiety and sensory things but the inability to swallow was what started the nightmare. She...
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