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artistsl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by artistsl

  1. artistsl
    @juliac What you describe sounds very much like Eosinophilic colitis (EC) and Eosinophilic Esophagitis (EOE). It can only be diagnosed via biopsy. You may consider finding a GI doc who specializes in Eosinophilic gastrointestinal disorders, if you haven’t done so already.
  2. artistsl
    Sorry, you said it feels like the sensation of a walnut caught in your throat. I thought you indicated this sensation took place after eating a walnut. Either way, nuts, eggs, dairy, wheat and shellfish are very common triggers for EOE. But environmental allergies also play a big role. Worth looking into.
  3. artistsl
    You very likely have a different autoimmune condition called EOE and from what you wrote it would seem that wheat and nuts are a major trigger. Highly recommend you see an allergist and GI specialist experienced with EOE as soon as possible. They will likely start with an endoscopy, take several biopsies and meanwhile you will want to get tested for environmental...
  4. artistsl
    Update: We haven’t looked into FMT yet. Currently the GI and allergy team are looking for an autoimmune condition also aggravated by gluten called EOE which can occur anywhere throughout the digestive tract. Our next steps are a two week unrestricted diet followed by endoscopy and biopsy.
  5. artistsl
    Did they perform biopsies to look for EOE? It can occur anywhere in the digestive tract. It’s an allergy response that occurs in your digestive tract. Blood work can be negative, but biopsy can be positive. You mentioned environmental allergies so that got me thinking.
  6. artistsl
    I hope they did biopsies to look for EOE. It can occur anywhere in the digestive tract, not limited to the esophagus.
  7. artistsl
    I feel like it helps with anxiety. He's had antibiotic exposure while in the womb, and four occasions prior to age four. I believe there is definitely something to it. Have considered and will likely try an at home FMT.
  8. artistsl
    He is taking Garden of Life for Kids which contains 14 live cultures. I tried giving him coconut kefir, but that backfired on me due to the unknown coconut sensitivity.
  9. artistsl
    We use pure cherry juice with our snow cone machine. Makes for a nice dessert after dinner.
  10. artistsl
    Garden of Life brand Dr. Formulated Organic Fiber. It's certified gluten free. Also free of psyllium husk, dairy and soy. Also found that just simply increasing fiber intake works wonders. Perhaps try skipping a protein for at least one meal and fill up on veggies and fruits.
  11. artistsl
    Thank you for posting. Your honesty and openness is refreshing. My son is five years old and experiences the same as you, to include hallucinations, insomnia and stereotypies to name a few. His symptoms are all neuro psychological. Have you looked into trying a mild blood pressure med to control the accidental glutening? We were prescribed clonodine. It's...
  12. artistsl
    I've never used GFWD. I assume that is a website called gluten free watchdog? I've heard others mention it. I do have pictures. I will look them up. Thanks
  13. artistsl
    I reached out to Divina to inquire as to whether their olives contain gluten. The customer service representative replied informing that the blue cheese stuffed olives contain breadcrumbs therefore contain gluten. 1) The Divina brand blue cheese stuffed olive label does not list gluten as an ingredient. 2) All Divina brand olive...
  14. artistsl
    I never knew steroids made it worse. Thank you for posting this. I too have the rash on my knuckles, but it's undiagnosed. The allergist prescribed steroid cream and it only seemed to make it worse so I stopped using the prescription. My intent is to do an eight week gluten challenge after the holidays, but after reading this original post I'm fearful that...
  15. artistsl
    I have what I believe is or are hemorrhoids and my chronic joint pain seemed to come about at around the same time. These symptoms all came about immediately after the birth of my daughter. Because my son started experiencing major health concerns our family made a decision to trial a 100% gluten free diet. I'll be damned, my joint pain entirely disappeared...
  16. artistsl
    I'm sorry you are dealing with this. My son deals with food intolerances that are not identified by any biomarker as well. I hear the same response from doctors in that, "if the food makes him feel bad then it's probably best to avoid the food." (Thanks for your insight doc!) His symptoms are not dermatological though. His symptoms are mostly neurological...
  17. artistsl
    I highly recommend the brand Forager Project. It's made from cashew milk. It contains 10 different live active cultures. That stuff is like liquid gold. It's currently sold out at our local store right now. Kite Hill almond milk kefir only contains 4 cultures and Harmless Harvest coconut kefir contains 8 cultures. I found all of these at Whole Foods. Our...
  18. artistsl
    I'm not sure about gluten, but many do contain lactose according to my pharmacist. So if you are sensitive to dairy then that could be an issue. I would look into vitamin deficiencies in regard to your sudden onset of symptoms. I've been told magnesium can help with sleep. Regarding anxiety, I started drinking dairy free kefir and that healed my DH and anxiety...
  19. artistsl
    I guess we, as a family, won't be using OTC pain relievers anymore. Simply not worth the risk. Thanks for sharing.
  20. artistsl
    Curious. Thinking about trying supplements for my son. How many hours of sleep has this regimen added to your total duration of sleep?
  21. artistsl
    Has anyone reached out to Tropicana recently to find out if this is still the case?
  22. artistsl
    Thanks! Where can I find these? Are they sold at any super markets that you're aware of?
  23. artistsl
    For those who are hypersensitive, is there a particular brand of herbs and spices that you can guide me towards. Thank you!
  24. artistsl
    Does anyone know of a doctor who is familiar with gluten related disorders (dermatitis herpetiformis and/or gluten ataxia) in the Cincinnati area?
  25. artistsl
    I've heard it can really help with DH.
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