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About Me
I had extreme pelvic, lower abdominal pain in 2007, and DH. DH was confirmed by derm. No mention of celiac. Steroid cream give, no effect.
No doctor knew why I was having the chronic pain. Had tons of tests and scans, but no blood test for celiac. Had a colonoscopy one week and the next week they removed my uterus, on my birthday! Nothing was wrong with the uterus. I was on so many pain meds and so used to them that I woke up twice during the hysterectomy. Docs didn't believe me until I told them about the basketball game discussion they were having a discussion about.
husband was trolling the internet in January 2008, looking for ideas why I was out of work for so long and in so much pain. He came up with the possibility of celiac because of the dh and all the pain. I gave the gluten free lifestyle a try and never looked back. Dh went away, pain mostly subsided. Every doc now accepts I have celiac, although I have wondered if I should have the tests done periodically.
recently diagnosed with hypothyroidism- June 30, 2017- and starting lowest does of levothyroxine for it. Hope to see a difference soon.
still have bipolar, on a low dose Latuda for it, although it deadens me a bit. I'm working hard to get off it. I have a ton of stress so I find it hard to sleep so I take trazadone and love it. I take a little blue pill for anxiety, can't recall the name of it, and I also take 5mg methadone once a day for the chronic pelvic pain I have from the nerve damage they did during the hysterectomy. Yes, the hysterectomy I didn't need gave me a lifetime of pain. Tried a year of pt to no avail. it's a lot of pills and I feel so old.
i have this tailbone pain that comes on at any time of day or night that's so bad it makes me cry. Docs have never found a reason for it. Goes away in about 20 minutes with 3 or4 ibuprofen and a heating pad. This pain comes intermittently. Could come twice in a week, or skip a month and come twice the next month.
also my body feels like all my insides are going to fall out onto the ground, and I get bad pelvic pain, when I've been standing and walking for most of a day, which happens usually several times a week. I always thought this is because I lack the uterus.
my lower back hurts a lot during the day and I feel like an old lady walking from the car to the house at the end of the day. Starting physical therapy now and hope to see results soon.
also ive got severe sleep apnea, and love my Cpap machine.
my very personal part of my life is good. I have a loving husband of nearly 30 years and 3 teenage boys who are all smart and don't get in trouble!
Although ive been eating gluten-free for many years, I still learn things from this board every day. This is the best place to hang out and just read. I love people's stories and love to see people find their way and get better. I hope to be smart enough at some point that I can help people too!