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Oneloved

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    Female
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    Parenting, education, keeping my GF kids healthy
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    Oregon

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Married, mother of four

  1. Oneloved
    UPDATE: I decided to try eliminating nitrates in August 2017 after advice from a friend. Within days my daughter was no longer complaining of constantly itching all over. Despite being off nitrates, her itching symptoms returned two months later. I began to suspect that the daily ½ dose of Miralax every evening was to blame. She has been on ...
  2. icon Oneloved reacted to a post in a topic: Non-stop Itching / Skin Crawling, No Rash
  3. Oneloved
    Thank you, Tessa. I definitely would not order a test like this without the supervision of a doctor. I've been hesitant to do it at all, since I don't want to put her through a gluten challenge, but neither do I want her to have a false negative. This would be a question for the gastroenterologist.
  4. Oneloved
    Thank you, cyclinglady. I definitely would not order a test like this without the supervision of a doctor. I've been hesitant to do it at all, since I don't want to put her through a gluten challenge, but neither do I want her to have a false negative. This would be a question for the gastroenterologist.
  5. Oneloved
    Thank you for your feedback. About two years ago, I researched everything I could find on healing the gut and put her on a daily coconut milk shake that included Soothing GI Combination by Integrative Therapeutics, L-Glutamine, probiotic powder, children's vitamin and mineral powder, and collagen. I also made sure her diet included bone broth, coconut milk...
  6. Oneloved
    The prep says no fasting, but wouldn't this kind of test require a "gluten challenge" for several weeks prior?
  7. Oneloved
    There was only one endoscopy done, when they were trying to figure out why she was still having constipation issues after years of being gluten-free.
  8. Oneloved
    Is DH usually localized? My daughter's symptoms are all over her body.
  9. Oneloved
    I hate to admit it, but I think you're right. We do need a formal diagnosis. I just know that she'll be constipated with stomach cramps within a day, and I can't imagine torturing her like that for weeks. Ugh. There's GOT to be a better way! You can order a HLA genetic test online, but I haven't seen a home test for celiac antibodies. A recent...
  10. Oneloved
    Ugh, that's what I'm afraid of. If this is neurological, I don't want permanent nerve damage to be done while the doctors keep grasping at straws. But I have to tread lightly since they've already labeled it "idiosyncratic." I want them to work with us, not dismiss me as some sort of over-reactive mama who reads too much Web M.D.
  11. Oneloved
    Yes, I saw that link, thank you. The "Products allowed/disallowed" chart is helpful. I was just hoping to find something that explained it in more laymen's terms, LOL. I had ruled out DH because there were no blisters or bumps, but it's interesting to hear that it can manifest without external signs.
  12. Oneloved
    Yes, I need to get a formal diagnosis, especially for my 7-year-old, but I don't want to have to feed her gluten for the blood test. She gets horribly constipated and it's difficult to keep her regular as it is. I don't think our insurance will cover genetic testing , either. An endoscopy showed that we healed her gut successfully, so a biopsy would...
  13. Oneloved
    The celiac antibodies panel is the blood test, correct? I'm worried that if it comes back negative because there's not enough gluten in her system, it will go into her medical record that she tested negative for celiac, and that will make it much more difficult for me to get her the help she needs. Unfortunately, I'm dealing with a lot of doctors who...
  14. Oneloved
    Thank you for the suggestion. The food sensitivity test we did is different from an allergy test. It's an IGg blood panel, not a histamine panel, so it looks for a delayed immune response, not an allergic one. My naturopath did it for us since our doctor poo-pooed it.
  15. Oneloved
    Honestly, this is where my thinking is headed. When the allergist said it didn't appear to be a histamine reaction, I asked the pediatrician if it might be neurological, but she wants us to try the dermatologist first. I don't know why, when there are no outward rashes or symptoms, but that was her recommendation. Unfortunately, it'll be a month before...
  16. Oneloved
    That's a good question. I hadn't even thought about the dog food. I'll have to double check that. We did have the dog staying with my parents for two months (we're in the process of getting ready to sell), and the itching didn't stop while he was gone. Hmm... As for the pest control poison, it's all been outdoors, and the last treatment was 8 months...
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