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Hatbox121

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Hatbox121

  1. Hatbox121
    Last check(last fall sometime) my b12 and folate were fine. He did check my iron and it was fine. My potassium is technically normal, but lower than my cardio wants(I'm on q med that depletes it). Last time I had a full and extensive panel run was years and years ago. I recall my copper being high(but no one ever retested it), vit d and a couple others were...
  2. Hatbox121
    So Dr called. Labs normal. See ya I. 3 years.
  3. Hatbox121
    No anti-sm(lupus)? Yes, anti dsDNA is for SLE(lupus). No ENA panel,anti-RNP, anti-SS-A, anti-SS-B, anti histone, scl-70, etc? I'd ask for a referral, if you feel that there is something going on. I think that would be a logical step because of the positive ANA and lack of investigation. 1:640 is definitely positive.
  4. Hatbox121
    My MCH is always high too. Have some other oddities but doc always say labs are great as well. I dont think they ever really bother with the MCH. I'm also in testing and showed negative on the same ones you did. My IGA is fine though. As far as the other tests, maybe your girls GI can order or you could try your primary.
  5. Hatbox121
    Blood work in so far- Tissue Transglutaminase IgA Ab 7/18/17 <2 U/mL Comment: Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase IgG Ab Reference Range: ...
  6. Hatbox121
    Have you not been sent to rheumatology to further investigate the positive ANA? A positive ANA alone can't diagnose anything but it does warrant further investigation and more blood work, ie lupus, RA, scleroderma, etc depending on symptomology. There is also an anemia of chronic disease which I think can be connected to certain connective tissue disorders...
  7. Hatbox121
    I do not partake in alcohol so that is not a factor. I will add that 5 years ago I had a MRI of my hip which revealed an incidental finding. I was rushed over to oncology to rule out cancer in my femur. I had a MRI 6 months later which revealed a stable area in my bone marrow. In the end the oncologist ruled it either an infarct or fibrous dysplasia and I...
  8. Hatbox121
    Just to keep this going in case someone later on is in a similar situation- I did my bloodwork today. I don't have all of it back yet of course but do have some. My RBC is normal for the first time in over 13 years. It's the lowest number that normal can be on the ref range. My transferitin and TIBC are both low. Iron level is normal. MCH is high. My...
  9. Hatbox121
    I read that. I'm going to do the blood work tomorrow, but will keep my current diet(what little there is) until all is said and done. Just in case.
  10. Hatbox121
    Yes to the sleep. I was diagnosed with idiopathic hypersomnia after a sleep study with a MSLT. Can't do energy drinks as i have another issue that causes tachycardia. I do not dream, ever. And yes I am diagnised with polyperiphrial neuropathy of unknown origin plus patches of skin that has no feeling. I often lose grip on stuff, have terrible perioperspection...
  11. Hatbox121
    Just got a call from nurse. Dr will do blood work. Anemia panel, CBC, and Celiac Panel, Antigliadin Abs, and Human ttg. That's what in my file as ordered. Will go tomorrow to do those. Are those the right ones? No idea what celiac panel means, just what's listed in there.
  12. Hatbox121
    Thanks. He noticed the flattened mucosa during my colonoscopy so that's why he decided to check. I had a EGD two years ago but no biopsies for that.
  13. Hatbox121
    So never had blood tests. Did a repeat(5 yr) colonoscopy after polyps were found on previous colonoscopy(rectal bleeding due to fissure, 8 colon polyps non cancerous, ulcer and few other things). One biopsy taken of terminal ileum due to flattened mucosa. This one showed melanosis coli(rarely take stool softeners and never laxatives-they make me cramp really...
  14. Hatbox121
    Thanks. I'll call on Monday. Dr said 2 weeks before results of mine, so maybe this Friday but might be next Monday before I hear any results. Going to try her pedi first, but if denied will try my GI.
  15. Hatbox121
    I was already having a colonoscopy for other reasons. Had polyps before so was on a 5 yr repeat. Dr saw something in terminal ileum and took biopsies.
  16. Hatbox121
    So I'm waiting biopsy results, no blood panel for me yet(will call my GI tomorrow). I'm wondering if I should go ahead and request a panel for my daughter. Backstory on her is- has multiple health issues including JIA (autoimmune arthritis for kids) now in remission. She has been to the pedi numerous times for stomach pain, nausea, vomiting, etc. They give...
  17. Hatbox121
    My current list- of GI stuff anyway Sigmoid diverticulosis Benign neoplasm of ascending colon Benign neoplasm of descending colon Benign neoplasm of sigmoid colon Other hemorrhoids Gastric...
  18. Hatbox121
    It's ulcers. Well "excavated lesions. H. Pylori negative according to biopsy. Can't recall exact point off top of my head, will have to look at patient portal.
  19. Hatbox121
    Thanks! I'll give my GI a call Monday. I already need to ask about something else anyway. Thinking my gut may be why my RBC count is always low.
  20. Hatbox121
    I had a repeat colonoscopy last week. I'm 36. My first one was due to rectal bleeding that wouldn't stop. They found a fissure, but also a bunch of polyps so I get to be an overachiever and have colonoscopies early. Anyway when I woke up the DR said he found more polyps and sent those off. No surprise. He also found a few other odd things but nothing major...
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