Rhotitar
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frieze reacted to a post in a topic:
Newly diagnosed and desperate for some pain management suggestions
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Coeliac back pain
Rhotitar replied to Peter D.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Kind of late to this but my pain symptoms are like your right side pain under ribs that travels to my bag. Gets better when laying down. Hurts more when I breathe. My guess you are still getting gluten from accidental sources. -
Def gets worse it can also change even later. My co-worker who also has celiac since childhood yet she only started getting Dermatitis herpetiformis like 6 years ago.
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Not sure if you found relief but when I get glutened I drink lots of water mixed with glutamine it is an amino acid that normally you wouldn’t need, but in times of stress/injury it is depleted. It also plays a role in maintaining the integrity of the instestinal mucuosa. Anyway it works for me in reducing the days I have symptoms. I also swear it helps m...
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At first I thought it would be hard if not impossible to be vegan while also having to abstain from eating gluten due to celiac, but when I looked at online at my options I wasn't worried. If you can't/won't eat grains and legumes though I wouldn't recommend it. Right now my diet consists of Breakfast - Bob's Mill Gluten Free Steel Cut Oats mixed with...
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Drinking glutamine helps me with reducing the time I spend with pain when I accidentally ingest gluten. That's the major symptom I get and it only lasts a few days. The other symptoms insomnia, migraines, constipation/runny bowl movements/mucus in stool only lasts about a day so can't comment on how I would handle that. Herpetiformis dermatitis occurs most...
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Well I suppose they don't want my money.
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I just had a very intense reaction to Kettle brand Backyard BBQ potato chips. Ugh it was awful very intense pain certainly feels like more than a slight cross-contamination judging by the amount of pain I am feeling. And it's the only thing I ate then 2 hours later bam hit me like a truck. The funny thing is that I have eaten Kettle chips before with no problem...
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Wheatgrass? Is It Wheat?
Rhotitar replied to Robix's topic in Gluten-Free Foods, Products, Shopping & Medications
Don't touch the stuff anything that has wheat grass, barley grass, oats, or hemp can't trust the product. -
I also get pain on my upper right abdominal area right under my ribs about 3 to 4 hours after ingesting gluten and lasting about 2 days if of course nothing else is ingested accidentally. The more gluten that is ingested the greater the pain of course at the highest level the pain travels from around my rib and to around my back. Breathing actually makes...
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After diagnonisis, why go 100% gluten free
Rhotitar replied to sddave's topic in Related Issues & Disorders
I definitely didn't feel any shock to my system. Not having pain 24/7 was a miracle it was like a new lease on life. Definitely cutting all consumption of gluten is the right thing otherwise your symptoms will not improve. It definitely was an adjustment for sure I had always eaten bread every morning with my coffee and milk for 28 years. It was my comfort... -
This post is ancient but I just had to comment I also get the most extreme pain when I ingest gluten even if it's a little bit more than a cross-contamination accident you can bet that's going to be a level 10 pain. At that point I just want to die or be put under general anesthesia. I don't think any pain reliever would work as this is an inflammatory reaction...
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My main symptom is right upper abdominal pain I can feel a reaction in about 3 or 4 hours. This might be a delayed reaction however as the pain is somewhat lessened by sitting or laying down. Who know maybe it happens earlier but I am usually sitting or laying down after eating. I asked someone at work with celiac and they said 2 hours.
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What are the symptoms of being "Glutened"?
Rhotitar replied to SteveB's topic in Coping with Celiac Disease
I am not sure if it's new symptoms or I may just be more aware of it but I now know when I accidentally eat gluten I get migraines, insomnia, irritability, and fatigue in addition to my hallmark symptom of intense right uppper abdominal pain. Also someone I know who also has had celiac since she was a child developed herpetiformis dermatitis after being an... -
Yes strawberries and mushrooms are sometimes cross-contaminated. Strawberries because they are grown on beds of wheat straw and mushrooms are grown on rye or other gluten grains. Here is an article explaining it on strawberries https://www.verywell.com/are-strawberries-gluten-free-562818 and mushrooms https://www.verywell.com/are-mushrooms-gluten-free-56...
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Only thing that I feel is safe is some sushi at Chinese buffets I don't go to those places, but if I feel forced to because of a family event that's what I would eat.
