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Gluten-free-01

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Gluten-free-01 last won the day on October 24 2017

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  1. Gluten-free-01
    I’m getting tired of reading about fructans. Let’s say someone thinks they might be gluten sensitive. They get tested for celiac and the results are negative. So they remove gluten from their diet and see a huge improvement in their symptoms. If fructans were to blame, wouldn’t they get rid of the symptoms only after removing BOTH wheat, rye and barle...
  2. Gluten-free-01
    I'm glad that research is being carried out but looking at GI symptoms only is not enough.. 'We performed a double-blind crossover challenge of 59 individuals on a self-instituted gluten-free diet, for whom celiac disease had been excluded. The study was performed at Oslo University Hospital in Norway from October 2014 through May 2016. Participants...
  3. Gluten-free-01
    Dark humor! ..... Take it seriously, Matt.
  4. Gluten-free-01
    I have to admit I’ve read their press release twice and I still don’t understand if their aim is to differentiate celiac disease patients and NCGS patients or differentiate celiac disease patients and everyone else (including NCGS people). In other words, I don’t understand if they would be able to diagnose only celiac using the new method or diagnose both ...
  5. Gluten-free-01
    I’m glad I’m not the only one who feels this way Nice story btw. Even though I’m not a fan of Star Wars/Lord of the Rings (sorry ), I get the point. I can’t even imagine how I’d explain the diet restrictions to a child. ‘You can’t have this, you can’t have that..’ I had to explain this whole thing to myself in a way.. When I was a child, being ma...
  6. Gluten-free-01
    "too many times it comes back as a false positive" I didn't say that actually I was just quoting Lizzy (what her doctor said). Anyway, as we said, your doctor is not right, Lizzy. False positives are quite rare. It seems like he/she is unwilling to test you. Sometimes doctors don't take this condition seriously unfortunately. "Even though...
  7. Gluten-free-01
    This means your issues might be related to gluten sensitivity/celiac. I'm sorry your doctor has this attitude. They don't seem to be very helpful. Can you find another doctor or go to a lab and order the tests yourself? Note: You have to eat at least half a slice of bread for 12 weeks prior to testing. http://www.cureceliacdisease.org...
  8. Gluten-free-01
    Have you ruled out Dermatitis Herpetiformis? 'Dermatitis herpetiformis is an itchy, blistering skin disease that stems from intestinal gluten intolerance. The rash usually occurs on the elbows, knees, torso, scalp and buttocks. Dermatitis herpetiformis is often associated with changes to the lining of the small intestine identical to those of celiac...
  9. Gluten-free-01
    I can relate. Tbh I wouldn’t rely on the blood tests results for the following reasons: 1. approx. 10 percent of celiacs are seronegative https://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf 2. opinions vary as to how long a gluten challenge should last – as you said, according to Coeliac Aus...
  10. Gluten-free-01
    No, it's definitely not in your head. The doctor doesn't know what she's talking about - ignore her and act as if the test results were positive. NCGS is a real thing.
  11. Gluten-free-01
    I'm sorry, I'm working on 2 important projects now and the deadlines are tight, so I won't be able to chat. However, if you have any questions, you can ask here on the forum - there are many experienced people who have a lot of knowledge. Or you can read other discussions; search the website for keywords. I hope you feel better soon.
  12. Gluten-free-01
    I agree with Matt. Kirsty, the decision is up to you, of course..
  13. Gluten-free-01
    It depends.. It could be the only solution because when we are gluten intolerant, it can impact us in many different ways. Yes, even female hormones – PMS, menstrual cycle problems, fertility problems, pregnancy complications, miscarriage etc. Let us know what the holistic doctor says.. Normally, you would want to rule out celiac first and then c...
  14. Gluten-free-01
    Kirsty, in my experience, being ‘gluten light’ is not helpful. I think it doesn’t make any sense tbh – it does more harm than good. The withdrawal period is very different from being gluten-free long term. The withdrawal symptoms can be extremely unpleasant but they are temporary! Let’s say 4-6 weeks. I personally was feeling like a drug addict or...
  15. Gluten-free-01
    You've just realized you have a health condition which can't be diagnosed formally. You haven't felt ok for quite some time, but didn't really know why. You were thinking it was just stress. But then there was a couple of weeks which weren't particularly stressful, so you were wondering 'why am I feeling worse'? You felt like there was an underlying...
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