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Gluten-free-01

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gluten-free-01

  1. Gluten-free-01
    I’m getting tired of reading about fructans. Let’s say someone thinks they might be gluten sensitive. They get tested for celiac and the results are negative. So they remove gluten from their diet and see a huge improvement in their symptoms. If fructans were to blame, wouldn’t they get rid of the symptoms only after removing BOTH wheat, rye and barle...
  2. Gluten-free-01
    I'm glad that research is being carried out but looking at GI symptoms only is not enough.. 'We performed a double-blind crossover challenge of 59 individuals on a self-instituted gluten-free diet, for whom celiac disease had been excluded. The study was performed at Oslo University Hospital in Norway from October 2014 through May 2016. Participants...
  3. Gluten-free-01
    Dark humor! ..... Take it seriously, Matt.
  4. Gluten-free-01
    I have to admit I’ve read their press release twice and I still don’t understand if their aim is to differentiate celiac disease patients and NCGS patients or differentiate celiac disease patients and everyone else (including NCGS people). In other words, I don’t understand if they would be able to diagnose only celiac using the new method or diagnose both ...
  5. Gluten-free-01
    I’m glad I’m not the only one who feels this way Nice story btw. Even though I’m not a fan of Star Wars/Lord of the Rings (sorry ), I get the point. I can’t even imagine how I’d explain the diet restrictions to a child. ‘You can’t have this, you can’t have that..’ I had to explain this whole thing to myself in a way.. When I was a child, being ma...
  6. Gluten-free-01
    "too many times it comes back as a false positive" I didn't say that actually I was just quoting Lizzy (what her doctor said). Anyway, as we said, your doctor is not right, Lizzy. False positives are quite rare. It seems like he/she is unwilling to test you. Sometimes doctors don't take this condition seriously unfortunately. "Even though...
  7. Gluten-free-01
    This means your issues might be related to gluten sensitivity/celiac. I'm sorry your doctor has this attitude. They don't seem to be very helpful. Can you find another doctor or go to a lab and order the tests yourself? Note: You have to eat at least half a slice of bread for 12 weeks prior to testing. http://www.cureceliacdisease.org...
  8. Gluten-free-01
    Have you ruled out Dermatitis Herpetiformis? 'Dermatitis herpetiformis is an itchy, blistering skin disease that stems from intestinal gluten intolerance. The rash usually occurs on the elbows, knees, torso, scalp and buttocks. Dermatitis herpetiformis is often associated with changes to the lining of the small intestine identical to those of celiac...
  9. Gluten-free-01
    I can relate. Tbh I wouldn’t rely on the blood tests results for the following reasons: 1. approx. 10 percent of celiacs are seronegative https://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf 2. opinions vary as to how long a gluten challenge should last – as you said, according to Coeliac Aus...
  10. Gluten-free-01
    No, it's definitely not in your head. The doctor doesn't know what she's talking about - ignore her and act as if the test results were positive. NCGS is a real thing.
  11. Gluten-free-01
    I'm sorry, I'm working on 2 important projects now and the deadlines are tight, so I won't be able to chat. However, if you have any questions, you can ask here on the forum - there are many experienced people who have a lot of knowledge. Or you can read other discussions; search the website for keywords. I hope you feel better soon.
  12. Gluten-free-01
    I agree with Matt. Kirsty, the decision is up to you, of course..
  13. Gluten-free-01
    It depends.. It could be the only solution because when we are gluten intolerant, it can impact us in many different ways. Yes, even female hormones – PMS, menstrual cycle problems, fertility problems, pregnancy complications, miscarriage etc. Let us know what the holistic doctor says.. Normally, you would want to rule out celiac first and then c...
  14. Gluten-free-01
    Kirsty, in my experience, being ‘gluten light’ is not helpful. I think it doesn’t make any sense tbh – it does more harm than good. The withdrawal period is very different from being gluten-free long term. The withdrawal symptoms can be extremely unpleasant but they are temporary! Let’s say 4-6 weeks. I personally was feeling like a drug addict or...
  15. Gluten-free-01
    You've just realized you have a health condition which can't be diagnosed formally. You haven't felt ok for quite some time, but didn't really know why. You were thinking it was just stress. But then there was a couple of weeks which weren't particularly stressful, so you were wondering 'why am I feeling worse'? You felt like there was an underlying...
  16. Gluten-free-01
    Ok, you're fed up with doctors - but you'll have to communicate with them to some extent if you want a formal celiac diagnosis.. Ennis has given you good advice: As for the immunosuppressants - yes, they will probably affect the celiac test results. I'm not a doctor though. You should really ask a specialist. 'Because of the possibility...
  17. Gluten-free-01
    It's not that confusing. NCGS is a real thing. Please don't believe in the myth that NCGS may not even exist. It's a genuine condition which can have a profound impact on almost all aspects of a person's life (especially if the condition is unrecognized!): both physical and mental health, all kinds of relationships (with family members, friends, partners...
  18. Gluten-free-01
    I agree with Judy3 - malnutrition, vitamin / mineral deficiency. You can read the following article: 'Nutrition and nail disease': http://www.sbne.org.br/pdf/AC-Nutrition-and-nail-disease.pdf Beau's lines are discussed on page 423: - protein deficiency - pellagra = B3 deficiency - dysregulated blood mineral levels - such as low...
  19. Gluten-free-01
    There are two misconceptions I'd like to correct - can't decide which one I'd choose: 1. Celiac disease is temporary - once you heal, you can eat gluten again. 2. I'm a diagnosed celiac but don't have any symptoms - this means I'm fine / healthy - the tests were wrong (false positive) and I'll keep on eating gluten.
  20. Gluten-free-01
    Hi, just a short reply: - Gliadin IgA, Gliadin IgG, TTG IgA, TTG IgG, Endomysium IgA, Endomysium IgG + Total IgA (= serum level of total immunoglobulin A) - 10 percent of celiacs are seronegative, i.e. negative blood test + positive intestinal biopsy - some people are non-celiac gluten sensitive (NCGS) - no tests available - DH is diagnosed...
  21. Gluten-free-01
    Yes, I wouldn't recommend them for brain fog either - I should have said it, sorry. It really depends on what kind of issues Mat82 has. Also, we don't know if he has any positive/negative experience with benzodiazepines. So, it was only a suggestion. They can help with anxiety, panic attacks, trembling, cold sweats, jitters etc. They can help with things...
  22. Gluten-free-01
    If I were in your situation, I’d eat only the minimum amount of gluten. According to this source, it is ½ slice of bread each day for 12 weeks. http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ I think the more gluten you consume, the worse you feel. So, it wouldn’t be a good idea to eat more than necessary.. If you are alre...
  23. Gluten-free-01
    Posterboy, thank you very much for your reply - it’s very helpful to me. I’ll read the studies and blog posts you have recommended.
  24. Gluten-free-01
    I’ve kind of reprioritized things in my life recently. If I were to choose among different career paths now, I’d choose the one which is not very stressful. So if my options were: 1) less stress/lower salary and 2) more stress/higher salary, I’d choose the first one. The main reason is I’m convinced that extreme stress was actually a trigger of my n...
  25. Gluten-free-01
    Thank you, ravenwoodglass. I feel more calm after reading your reply My own experience with supplements is very limited, so seeing the high doses on the B-complex label freaked me out a bit. I will definitely purchase the sublingual B12 next week. Another B vitamin that is not included in the B-complex is B9 (folate) so I guess I’ll get that as well. ...
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