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Gluten-free-01

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gluten-free-01

  1. Gluten-free-01
    Posterboy, I’m currently interested in vitamin and mineral deficiencies and their impact on proper nerve function. So, if you don’t mind me asking: which vitamins or minerals helped you with the nerve inflammation? You mentioned B12 and magnesium – is there anything else you found useful? Also, it would be great if you could say how exactly you were ...
  2. Gluten-free-01
    Thank you, Awol cast iron stomach. It's really hard to tell which ingredient(s) is the wrong one for me. I think I'll eliminate all additives as much as possible because they are unhealthy anyway and then if that doesn't work I'll eliminate corn and dairy, too.
  3. Gluten-free-01
    Thank you everyone for your replies. ravenwoodglass: Your advice was helpful I’ll try to avoid items like this which have so many unnecessary and artificial ingredients – they make me feel out of control. A food and symptom diary is a great idea - especially when trying out new brands of foods. artistsl: Thanks for the tip – I don’t live in the ...
  4. Gluten-free-01
    Hi guys, I had a really bad reaction to a certain brand of kefir yesterday. The reaction was neurological and I think it must have been an accidental glutening or an allergic reaction to an additive. The problem is I don’t know which ingredient had caused it. I was wondering if anyone has experienced a negative reaction to any of the following ingredients: ...
  5. Gluten-free-01
    In my case the hair loss started about a month after I went off the pill and lasted for about half a year. But I also had a lot of stress at the time so maybe this could be another reason for the hair loss. In general, the withdrawal effects can really last for a year or so.. e.g. irregular periods. I wouldn’t say that the process can be facilitated.....
  6. Gluten-free-01
    I had been on birth control for many years and then the side effects of going off it were scary. I lost a lot of hair, my hair was greasy, I had acne, my periods were irregular, I had panic attacks, heart palpitations and tachycardia. My endocrinologist told me the withdrawal effects can last for a year or even more. I also met a paramedic at the time...
  7. Gluten-free-01
    egs1707: I was writing the previous post in a hurry and really simplified the paragraph about the costs and benefits. So, I’d like to specify it because maybe it didn’t make any sense. I hope there are no economists here Alternative 1: Gluten-free diet Benefits: health, no unpleasant symptoms, no pain Costs: fewer meal/food options, social iso...
  8. Gluten-free-01
    Option no. 1 is the better one. In my opinion, the gluten free diet is not miserable. That said I’m not a vegetarian so I do realize I have more options in restaurants etc. and can enjoy a greater variety of foods. Thankfully I like cooking – I think this has saved me lol. Have you ever studied economics? I think this whole thing basically comes dow...
  9. Gluten-free-01
    Matt has given good advice. I'd like to add one more thing: some celiacs are seronegative so the blood tests are not 'perfect'. I tested negative for celiac but didn't have an endoscopy/biopsy so I can be either a ncgs or a seronegative celiac. The important thing is my symptoms have improved so much on the gluten free diet that this is a proof that I do...
  10. Gluten-free-01
    What do you typically eat in a day? I’m wondering if nutritional deficiencies could be the problem.. As for the anxiety/depression/brain fog/lack of energy - these issues can be confusing because they can be either symptoms of health conditions or withdrawal/detox side effects. For example, brain fog was a gluten intolerance symptom for me and then a...
  11. Gluten-free-01
    Sometimes I find the discussions on this forum fascinating. People give good advice with the best of intentions and go out of their way to help others and yet their advice is hardly ever appreciated.
  12. Gluten-free-01
    Thank you. I agree. I’m glad we’ve been able to figure it out ourselves – I think we’re smart actually When I imagine that I would treat each of my symptoms separately with different kinds of medicine, it’s a scary idea. E.g.: chronic migraines – triptans for a lifetime, anxiety – antidepressants and benzodiazepines, thyroid issues – thyroid hor...
  13. Gluten-free-01
    Wildfire123, I googled it (‘heterozygous for the C677T polymorphism in the MTHFR gene’) briefly and many research articles came up. I have to admit that I’m neither a medical professional nor a native English speaker. If I spent hours reading about it and used a medical dictionary, I’m sure I’d learn a lot about the subject. However, I don’t have so much tim...
  14. Gluten-free-01
    I have no idea what it means, sorry.. I'd have to google it.
  15. Gluten-free-01
    I see, I'm a bit suspicious of it myself.. Did you eat anything before the blood test or is this the 'fasting glucose' test? There are other tests available btw: HbA1c, Oral glucose tolerance test, C-peptide, GAD antibodies.
  16. Gluten-free-01
    Well, the following applies to you: Celiace disease very unlikely. Exception: approx. 10% of patients with celiac disease are seronegative. (the left side of the diagram) However, If I were in your situation, I would either persuade a doctor to order the full celiac panel or go to a lab and order it/pay for it myself (that's what I did eventually beacuse...
  17. Gluten-free-01
    Ok, so you've had TTG IgA - negative, Deamidated Gliadin IgA - negative and Total IgA - normal. A full celiac panel would also include the following: Deamidated Gliadin IgG Endomysium IgG Endomysium IgA TTG IgG Have you seen the diagram cyclinglady has given a link to? It's very interesting and useful. Let us know if you...
  18. Gluten-free-01
    Exactly. Another biopsy would just mean additional stress and even if you found out the villi are healing more slowly than you expected, there wouldn’t be much you could do. You said you’re in your early 30s, right? Me too. I think I’ve read the younger a person is, the faster the healing. So I think you’ll be ok. I haven’t had an endoscopy/biopsy my...
  19. Gluten-free-01
    Can you get copies of your blood test results? Trust me, it's better to see the results yourself, if possible. Let's say your GI doctor ordered the full celiac panel and the results are negative AND they are relevant because you were eating gluten at the time. You haven't had a biopsy but you still have unpleasant symptoms. Basically, there are two...
  20. Gluten-free-01
    I can only confirm all that has been said. Yes, you will harm yourself if you do that. The absorption issues are physical symptoms! Please, try to learn a bit more about celiac.. this forum is a good source of info, for instance. The gluten free diet has to be strict - 100%. Cheating wouldn't pay off because the villi in your small intestine would never...
  21. Gluten-free-01
    What do you mean?
  22. Gluten-free-01
    I'm sorry to hear that. The only thing that comes to my mind that hasn't been mentioned yet is hormone fluctuations/imbalance or gynecological issues such as an ovarian cyst, a myom or endometriosis. D can be a symptom. I think a gyn. ultrasound and blood tests to check your hormone levels would be a good idea.
  23. Gluten-free-01
    Well, if I were in your situation, I would ignore the doctor who says you don’t have celiac and trust the other one who says you do. There are doctors who just don’t get it! As for the results of your endoscopy, it's very unlikely that you don’t have celiac, in my opinion. If I understand it correctly, your iron and ferritin levels went up thanks to the g...
  24. Gluten-free-01
    I think, in general, anemia can be related to celiac. There are many types of anemia, though. So probably not all of them can be related to c. Since celiac interferes with nutrient absorption, I'd say that at least iron deficiency a. and B12 a. can be caused by celiac. This thread came to my mind: AmyHauchtest and cyclinglady both said they had iron...
  25. Gluten-free-01
    I just wanted to say that I find your posts here very helpful. I’m interested in the neurological aspects of gluten sensitivity/celiac because my symptoms have been mainly neurological (terrible chronic migraines, anxiety, panic attacks, dizziness etc.) and a blood relative of mine had epilepsy. So tbh I’m scared of this kind of symptoms and don’t want to un...
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