Jctb
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Jctb
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Thanks to both of you. Ok, so I was feeling not great and went grain free for 5 weeks. Then slowly started to introduce grains. All seemed ok, then I had an issue after 3 weeks, with blood in my stool. Celiac wasn't on my radar. In fact, rice and oats are what seem to bother me most. But the Dr added on the celiac test and it was indeterminate. So I was sent...
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I've posted a few different topics, so I thought I would just update in one post. I am seeing my GP later today, but apparently my biopsy results were negative. I have no further information on this. What I do know, is that I have been feeling much worse since giving up gluten after my gluten challenge. Half the days I have barely left the couch. I am so...
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Interesting- thank you for sharing. I saw my ND yesterday and she also suggested that after having been completely cleaned out for my procedures, my body could be trying to adjust. She is having me take a rest from the strong probiotics I was taking, and I'm focusing on eating foods that are more gentle (I tend to eat a lot of raw, very fibrous foods).
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Thanks for your reply. I'm currently grain free, although I ended up making kitchary because I needed something of substance in my stomach. Seems to have helped. Some other symptoms coming on strong, so just hoping I have some answers soon, to make sure I'm at least on the right path!
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Thanks for the reply. That's good to know.
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Would like to add to this- while eating gluten I would get a random hive here or there. Since giving up gluten a few days ago, I've had a hive pop up yesterday and today. I'm at such a loss as to why I'm feeling worse. Is this some sort of detox? Is this something experienced by others?
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Wow! 4 weeks, is that normal? I'm pretty sure the Dr. told me one to two weeks. I was just saying to my husband, however, that I remember very little about what they said, I was still so loopy. I wish they had of had him come in the room.
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As of Saturday I have given up gluten again. I had undergone a gluten challenge for my endoscopy. I didn't feel that bad while doing it, I easily could have continued. I did have increasingly bad indigestion and chest pain, but my digestive symptoms were not too bad. Now is another story, however. My stomach is upset, my heart palpitations and indigestion...
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Thanks. I'll post an update once I know what's going on.
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Thanks for your reply. My blood results were indeterminate (24, positive is 25).I had been gluten free for 5 weeks, followed by a slow re-introduction for 3 weeks. Bloodworks wasn't planned. I've been eating gluten for 2 weeks in preparation for this. Hopefully I'll hea in a week or so.
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So I went for my endoscopy and colonoscopy today. I was very nervous and didn't ask many questions. I was put under and still quite groggy when I left. I noticed my sheet at home, it said things look normal, that a biopsy was taken (this in the colonoscopy section). Would they normally mark down if they took more than one? The section on the sheet for the...
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Thank you, this is helpful.
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Help with Test Results for 7 year old
Jctb replied to alioubba's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks. I wasn't even suspecting celiac, but spent 5 weeks grain free as my naturopath was helping me with some issues. After 3 weeks of slowly adding grains back in I had an incident, with blood, etc. The clinic added the celiac test on, since I've been dealing with digestive issues for some time. I was 1 off from a positive (TTG IA was 24), my results were... -
Thanks very much. For some reason I thought I would have some sort of answers! Any clue how long it usually takes to get results?
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Help with Test Results for 7 year old
Jctb replied to alioubba's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for this info. I'm going for my endoscopy Friday, and if it's positive, I'm going to be having all three of my kids tested, but especially my 10 year old- he's already having some thyroid issues, among other things. We are in Ottawa as well. -
Hello! I got Friday for my endoscopy. I realized I know little about what will happen afterwards. Do they usually tell you anything after the procedure? Or do you need to wait for them to test? Sorry if this seems like a silly question, I just never thought to ask the Dr. I've already called the clinic twice today with questions, I don't want to bother them...
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Goodness...so sorry you've had such a rough time. And also, I'm sorry you have to deal with insurance issues. As a Canadian it's not something I've had to even think about. I'll for sure be having my kids checked if I results come back positive. We do have to pay for that bloodwork ($60), but it may be covered by our additional insurance through my...
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Thanks! I am very curious to see the results of all the testing. It's son confusing feeling well then unwell, etc, with what seems to be no explanation. I had some delicious sourdough with jam for breakfast yesterday. Definitely trying to enjoy all these goodies while the opportunity is here, haha.
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Hello! Quick background- was off of all grains for 5 weeks, then slowly started every couple of days for 3 weeks. Got sick, surprise bloodwork. Level was 24 (positive is 25). I'm currently on week 2 of a gluten challenge awaiting my endoscopy. Here's the thing. I don't feel as terrible as I expected (knock on wood). I had one day where I felt really nauseous...
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Thanks for me it will be the build up/arriving and having the iV put in. I was shaking in the waiting room today. Hopefully the Ativan will help with that a bit.
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Just thought I would update. Met the Dr. today. He was very nice and understanding of my medical anxiety. He had said it was best to be eating gluten for 6 weeks, but that 2 weeks should be ok. I go for my tests Sept 15, so I started eating it today. I am going to have a bit more sedation than he does on a daily basis, I think because I'm so nervous, but...
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I'm having both, haha. The same day though. Glad to know it's not bad. I know several people who said colonoscopies aren't bad, so it's good to know that the biopsy isn't as bad even. Although, who am I kidding, I'll still be a mess!
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Thanks. I most definitely do. I'm actually more afraid of the IV than anything, is that not weird? I'm going to tell the Dr. for sure, although I'll likely be in tears and shaky, so he'll no doubt know something is up. I think it's also scary, that although I want answers, not knowing what they will find is quite unsettling...if that makes sense.
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Thanks so much. I'm not feeling well today, so the idea of making myself feel worse is terrible. I'm going to ask when I go on Tuesday. I'll request to book it a couple of weeks out. Or maybe if I feel better tomorrow I'll start then. I'm wondering if they'll give me something to calm me...last time I went to the hospital my heart started racing, was...
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Thanks! Yes, I haven't had any gluten since last Thursday. I was hoping the appts would be once my kids were back in school (3 busy kids ages 5, 7, 10)....won't be fun feeling sick with them home I'm definitely not going alone, I know I'll be all shakey, my medical anxiety has gotten worse in the last year.