Aussiemum

Hi just thought I'd update where we are at. Firstly whilst waiting for the GI follow up appointment I took my daughter to a paediatric dietitian who said even if biopsies are normal do you want to sit back and watch her get worse while you wait for her to show damage. So we started her on gluten free after a week her fatigue started to lift. GI appointment...

Well endoscopy done this morning. Said that all looked normal no sign of celiac seen normal duodenal cap and preserved villi. but need to wait for biopsies. Report stated mild antral gastritis with erythema found but non specific. Seems like they took a lot of Biopsies. Report stated they took them from lower 3rd and middle 3rd of oesophagus, the antrum...

My daughter is having her scope on Tue he said it could still be normal as her bloods even though positive they weren't highly positive. But due to the fact of her on going fatigue even with iron supplements her positive gene test and her dad being a type one diabetic he thinks it's best that he does the scope. Should I start gluten free trial straight after...

Finally got the results of the gene test today. She came back positive to DQ2 so our GP has sent a referal to a another paediatric gastro for us to take her to. This paed was also the same paed that the coeliac society suggested we see after I contacted them after the bad experience I had with the first gastro I was referred to.

Was back getting yet another blood test today as the person who took the gene test used the wrong tubes???luckily I could bribe her enough to get it done again this time thankfully with the blood lady that usually does her bloods and who does it correctly. She also said it will take two weeks to get result.

Thanks we went back to our usual GP as he wasn't the one who ordered the initial blood test and wasn't the one who sent us to the specialist. He said that we will redo coeliac screen and also do the gene test. He also gave me forms for my partner to go and have screening done too. We have had the testing done just waiting for the results does anyone know...

That's the frustrating part the dr said she wouldn't do a scope based on her blood results!!

Hi I have a 11 year old daughter who has had severe fatigue for several months. GP did blood test which showed that she was positive to deaminated gliadin Igg but negative to h-tTG iga and iga normal range 1.89 (.74-2.28) Her iron studies were normal except her TRF saturation was low 15% (16-45) she has the occasional GI symptoms sore muscles and...