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trents

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Celiac.com Board Moderator

  1. trents started following Oats gluten free? , New diagnosis for 3 year old. Help! , What do these results mean? and 1 other
  2. trents
    Welcome to the forum, @lizzie42! Can you also supply the reference range for that celiac antibody test? Each lab uses its own reference ranges for the celiac antibody tests so we can't comment otherwise until we know. And was that the TTG-IGA? There is also a TTG-IGG celiac antibody test. There is a growing tendency for physicians to forego the endoscopy...
  3. trents
    If I may put my two cents in here . . . Coffee (caffeine) is a double-edged sword when it comes to headaches. It can relieve them (that's why caffeine is put in many over the counter pain relievers) but it can also cause them - particularly if you consume coffee/tea/soda often and regularly and then are in a situation where you have to go without it...
  4. trents
    Welcome to the forum, @Deb888! There is also the possibility that you do not have celiac disease but are gluten sensitive (NCGS or Non Celiac Gluten Sensitivity). They share many of the same GI symptoms but NCGS is 10x more common. There are no tests for it. Celiac disease must first be ruled out. Before the blood draw, had you already begun to...
  5. icon Itsabit reacted to a comment: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults
  6. icon Itsabit reacted to a comment: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults
  7. icon Liquid lunch reacted to a post in a topic: How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
  8. trents
    Yes, lectins can be problematic for some people. IGG testing can be used to detect celiac disease but not IGE. IGE antibodies have to do with allergic reactions and ceilaic disease is not an allergy, it is an autoimmune reaction. The IGG tests are not as reliable for detecting celiac disease as are the IGA tests but they can be be very helpful, particularly...
  9. trents
    Welcome to the forum, @Nstvns03! Immunoglobulin A Qn is not a test for celiac disease per se. It's what we commonly call "total IGA" and it is a test used to determine if there is IGA deficiency. If there is IGA deficiency, the individual IGA tests done to look for celiac disease are going to be artificially low and this can produce false negatives....
  10. icon Itsabit reacted to a post in a topic: How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
  11. icon Itsabit reacted to a post in a topic: How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
  12. icon Itsabit reacted to a post in a topic: How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
  13. icon knitty kitty reacted to a post in a topic: How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
  14. trents
    Thanks for the information, knitty kitty. It helps bring some clarity and reduces the confusion that misinformation such as is contained in this thread title introduces into the community. People new to the celiac experience are already struggling to wrap their minds around not being able to eat just wheat, barley and rye any longer. We don't need to unnecessarily...
  15. icon Scott Adams reacted to a post in a topic: Oats gluten free?
  16. trents
    I did some research on what exactly is gluten . . . what defines it. "The term gluten usually refers to the elastic network of a wheat grain's proteins, gliadin and glutenin primarily . . . " "The types of grains that contain gluten include all species of wheat (common wheat, durum, spelt, khorasan, emmer and einkorn), and barley, rye, and some...
  17. icon Scott Adams reacted to a post in a topic: My Adult daughter is blaming me for her "possible" Celiac disease.
  18. icon Scott Adams reacted to a post in a topic: Negative biopsy and seeking doctor recs in Los Angeles
  19. trents
    I think Scott speaks truth. And I think there is more to this than the prospect of her having celiac disease. If it wasn't this issue, I'm betting it would be another.
  20. trents
    If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
  21. trents
    Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
  22. trents
    Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new...
  23. trents
    I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins...
  24. trents
    The oat protein, avenin, is not gluten. It is similar to gluten, however, and similar enough to cause a gluten-like reaction in some celiacs.
  25. trents
    Yes, the TTG-IGG was positive but not the TTG-IGA.
  26. trents
    Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well. If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.
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