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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Kathleen, I am not sure I agree with you that your son is asymptomatic with regard to his celiac disease. The horrible stomach pains you describe in your first post could be celiac symptoms as easily as they could be H. Pylori or viral infection symptoms. Yes, the social impact of having celiac disease is perhaps the most difficult dimension of the disorder...
  2. trents
    Staci, take note of the forms of magnesium and zinc I recommended. With some of the vitamins and minerals, the formulation can be very important in how well they are absorbed. Many of the vitamin and mineral products on supermarket shelves are in a form that maximizes shelf life rather than bioavailability which, in your case, would seem to be a critical...
  3. trents
    Fantastic! Be sure to ask about continuing gluten until the procedure should the GI doc want to do an endoscopy/biopsy. He/she may also want to repeat antibody testing.
  4. trents
    Adding gluten back into his diet a few days before the biopsy will have little or no impact on ensuring a valid biopsy result if he has been off of gluten for months. ShRa, I recommend you do some research of the "gluten challenge" to get a more informed picture with regard to this issue. Many PCPs are not well-informed when it comes to celiac diagnosis and...
  5. trents
    If you have an official celiac diagnosis, some governments offer stipends for gluten free food purchases and extended follow-up care. Such is available in certain areas of the UK for instance. However, an official diagnosis can also be a handicap if you are paying for private healthcare insurance. For the most part, however, the benefit seems to be psychological...
  6. trents
    From OP's first post, it sounds like the PCP has already made that diagnosis?
  7. trents
    What do you mean by "asymptomatic of celiac disease"? Many celiacs are asymptomatic. We call them "silent" celiacs. Are you asking if your symptoms all have to do with something other than celiac disease?
  8. trents
    To be certain that the "gluten challenge" results in valid testing down the road, I would plan on having your daughter restart gluten consumption four weeks prior to the blood draw or the endoscopy/biopsy (whichever the GI doc wants to go for first) to the tune of 4-6 slices of wheat bread (approximately 10g of gluten) daily. But be aware that once you withdraw...
  9. trents
    Your doctor gave you a bum steer.
  10. trents
    Your story is one shared by many of us in the celiac community, Staci. Unfortunately, many of us lived for decades with celiac disease before we got a diagnosis and by then there was significant, sometimes irreversible, damage done to body systems. Fortunately, knowledge and awareness about celiac disease within the medical community and within the general...
  11. trents
    Yes, there are slim chances that his positive antibody ttg-ab IGA score is due to something besides celiac disease. But usually when that is the case, the antibody score is a weak positive. But consider the dilemma you will be in if your son goes gluten free now and there is a good amount of time that elapses before the biopsy (if the GI specialist...
  12. trents
    Welcome to the forum, @StaciField! That is a question for a dental professional. But let's get some background info from you in relation to things we are more qualified to give input about. Have you been diagnosed with celiac disease? If so, are you consistent in gluten free eating? If you haven't been checked for celiac disease, you...
  13. trents
    Welcome to the forum, @ShRa! First of all, celiac disease is not a food allergy. It is an autoimmune disorder. That is, the ingestion of gluten triggers the body's immune system to attack it's own tissues, primarily the tissues that line the small intestine. This causes inflammation. This inflammation produces certain antibodies that can be detected...
  14. trents
    What I liked: 1. Narrator had a good, clear speaking voice and smiled pleasantly. 2. Good practical information that was logically organized and succinct. What I didn't like: 1. Narrator was obviously reading from a teleprompter script, including topic headers, which seemed very wooden and unnatural. Almost like listening to a Joe Biden...
  15. trents
    This might be helpful as well:
  16. trents
    Welcome to the forum, Brianne03! It is relatively easy, as you have discovered, to identify gluten-free products when considering only intentional ingredients but it can be much more difficult or impossible to get definitive answers about cross contamination. Does your daughter fall into the supersensitive category of celiacs? That is, does she have...
  17. trents
    Welcome aboard, @Savannah Wert! There usually is a learning curve involved in arriving at a consistently gluten free diet since gluten is found in so many food products where you would never expect it to be. This article may be helpful: It is good that you have identified some other foods that you cannot tolerate at this point as this is so common...
  18. trents
    What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about...
  19. trents
    Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing...
  20. trents
    Not being able to implement all elements of a discipline does not necessarily mean going through with the rest of it will not benefit you.
  21. trents
    The problem with declaring something to have "zero parts gluten" is that we do not have detection technology capable of detecting gluten concentrations below a certain level. I think maybe 5 ppm may be the practical limit.
  22. trents
    Do you get an annual physical with bloodwork as part of your healthcare benefits? If so, kidney function tests are usually part of the CMP (Complete Metabolic Panel).
  23. trents
    Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity...
  24. trents
    I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
  25. trents
    Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
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