trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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@Manaan2, have you considered the possibility that she might be cross reacting to some food or foods that technically don't contain gluten but whose proteins closely resemble gluten. Chief candidates might be dairy (casein), oats (avenin), soy, corn and eggs. One small study showed that 50% of celiacs react to CMP (Cow's Milk Protein) like they do gluten... -
One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
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Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is...
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@Marie70, it is very important that your daughter not begin experimenting with eating gluten free until all testing for celiac disease is complete. Doing so will invalidate the testing. Normally, the testing involves two stages. The first stage is blood antibody testing as per the article linked by Scott above. As you can see from the article, there are a...
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@Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard...
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We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
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Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of the general population carries one or both of these genes. However, only about 1% of the general population ever develops...
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Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant...
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Sounds like your doctor is not very knowledgeable about celiac disease and may not be supportive of your efforts to run this down. Unfortunately, there is still a lot of ignorance in the medical community with regard to celiac disease. He/she may not even know what tests to run. Those of us who have been on the celiac journey for sometime have come to realize...
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I question your terminology. I believe "gluten intolerance" is used as a synonym for celiac disease in most circles today whereas "gluten sensitivity" is used of NCGS (Non Celiac Gluten Sensitivity) though you still see a lot of inconsistency in how the terms are deployed.
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Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and...
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Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates...
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@Brook G, would you explain what you mean when you say, "I'm assuming that I'm probably extremely gluten intolerant because QUINOA gives me a gluten reaction." Quinoa is naturally gluten free. However, it is possible to have been cross contaminated with gluten-containing grains and the seed coat lectins can make some people (like me) quite ill if it is unwashed...
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There are third party home test kits for celiac disease that do not involve needles. They use a cheek swab I believe. The cost is a little over $100 USD I believe for most of them. A 7 week "gluten challenge" should be more than enough. The absolute minimum according to guidelines is 2 weeks but I would not cut it that close. I usually recommend four...
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Welcome to the forum @cameo674! First, let me correct a misconception you have about celiac disease and intestinal anatomy. Celiac disease does not affect the colon. It damages the lining of the small bowel which is on the other end of the intestinal track from the colon. The small bowel, the duodenum, is the part of the intestines right below the stomach...
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Did I outgrow celiac
trents replied to Liamclarke's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, Liamclarke! We have reports from time to time of people whose celiac disease seems to go into remission. Often, however, it doesn't last. There is also the question of whether or not symptoms or lack of them tell the whole story. Many of us are "silent" celiacs who have very minor or no symptoms when consuming gluten yet slow, insidious... -
Celiac Disease Blood Antibody Tests
trents commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
Welcome to the forum, @MayraR! Immunoglobulin A is also known as "total IGA". It is not a test for celiac disease per se. There are some other potential health issues associated with this value being elevated: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ which suggests further testing. -
New and Frustrated
trents replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Tracey Thomas, Is that the only celiac test that was run? From the magnitude of the reference range, that looks like it was the "total IGA" test to check for IGA deficiency. It is not checking for celiac disease per se. If you are IGA deficient, it can cause false negatives in the individual IGA celiac antibody tests. Were there any other celiac antibody... -
Not necessarily. She may have NCGS and in that case doing a perfect gluten challenge would still yield negative antibody test scores. Don't beat yourself up over this.
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@MomofGF, I would refer you to the link from Scott's post above about Celiac Disease Blood Antibody tests as far as what labs we are looking for. That should narrow in down in that we are not looking for a complete CBC/CMP report. I would especially like to know from her labs if she is IGA deficient because that would make increase the likelihood of negative...
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Welcome to the forum, @Mary Miller A! May I ask, you say you are new to this online community but how long ago were you diagnosed as having celiac disease? You seem to have a good awareness of cross contamination issues but have you considered cross reactivity issues? Some of your cross contamination concerns should be addressed by FDA disclosure...
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A "gluten challenge" of two weeks would be the bare minimum for expecting to render valid testing, and that would have been paired with eating a minimum of 10 g of gluten each day (the equivalent of 4-6 slices of wheat bread). And with the three gluten free days in the midst of that two week gluten challenge I would not have confidence in the results of the...
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I'm very skeptical. The presenter makes statements that reflect a total misunderstanding of the nature of celiac disease. He talks about being "cured" of celiac disease. There is no cure for it in the sense of making it go away. Once the genes are switched on such that the genetic potential to develop celiac disease becomes actual celiac disease, drinking...
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@JenFur, if this is microwave popcorn you are using, check for added ingredients that could be causing a reaction such as flavorings which might be hidden sources of gluten.
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You got the genes from somewhere. Medical science has known about celiac disease since WWII but up until about 30-35 years ago it was considered to be a very rare condition, afflicting only about 1 in 5000 people. So, back in the day, many people were misdiagnosed as having IBS - and still are, actually.
