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trents

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Everything posted by trents

  1. trents
    Welcome to celiac.com, @Heavenly Flower! You're off to a good start but you can certainly branch out some. White rice is fairly devoid of nutrition. Baked potatoes with the skin (washed) would be a better choice for the starch unless, that is, you don't do well with members of the nightshade family. Yams or sweet potatoes would be even better because...
  2. trents
    @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even...
  3. trents
    From the link you included: "The agency has received a citizen petition on this matter and has reviewed available data and reports including the most recent reports by the Food and Agriculture Organization of the United Nations expert consultation. The FDA’s review of this information indicates that there are several serious data gaps limiting our a...
  4. trents
    @catnapt, as you already know I believe, a DNA test cannot be used to diagnose celiac disease but it can be used to rule it out. That might be helpful to you in distinguishing between celiac and NCGS. If you don't have the celiac genes, you can put to rest any and all suggestions to undertake a gluten challenge.
  5. trents
    @Known1, let me assure you, there are lots of celiacs who already find it very difficult to afford specifically gluten free products. We here this all the time on this online community. If prices go up more because of increasing regulation, many will not be able to afford it any longer. And whether more testing is done at the supplier level or the end product...
  6. trents
    @Known1, another thing to consider is the question of how far do we want to push food manufacturers in this matter? Let me give some context. I was diagnosed with celiac disease 25 years ago. At that time, there were precious few "gluten free" products on the market and they all tasted like cardboard. Since then, there has developed in the medical community...
  7. trents
    After the expose's I mentioned earlier, many of us were left wondering if we were any better off purchasing products labeled gluten free than we were just being careful in buying mainstream food products by reading their labels and using some common sense . . . especially when you consider the extra you pay for the "Gluten Free" label.
  8. trents
    @Known1, your post brings to mind some issues connected with gluten free labeling. First, In the US, marketing products as "Gluten Free" doesn't actually require them to be tested beforehand. I think food companies sometimes assume that because they do not intentionally or knowingly include gluten-containing grains in their products, they will automatically...
  9. trents
    I don't think the problem is that eateries "lie" about the gluten free offerings on their menu so much as it is that they don't usually have a good understanding of the issue of cross contamination in the preparation and handling of the gluten free food. I don't know where you live @Teaganwhowantsanexpltion, but where I live here in the US I've noticed a...
  10. trents
    Welcome to the celiac.com community, @Nfitz321! I wonder if there is a connection between the development of NALFD and long term undiagnosed celiac disease. We now know that one of the atypical symptoms of celiac disease is elevated liver enzymes. It occurs in about 18% of celiac cases. In fact, years of mildly elevated liver enzymes was what eventually...
  11. trents
    According to what I find on the internet https://redcliffelabs.com/myhealth/vitamin/vitamin-d-test-normal-range-benefits-and-why-it-matters/ : Adequate or sufficient: 20–50 ng/mL or 50–125 nmol/L is considered normal for most people. Optimal: According to experts, to maximize health benefits, aim for 30–50 ng/mL (75–125 nmol/L). And I think...
  12. trents
    @Known1, have you been tested and confirmed to have a vitamin D deficiency? 2000IU daily is pretty conservative if you are trying to address a deficiency.
  13. trents
    I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free. Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by...
  14. trents
    I believe the GFCO does use a common logo for certified gluten free products (those containing not more that 10ppm of gluten) but nothing universal yet from the FDA for standard gluten free products (those containing not more that 20ppm).
  15. trents
    You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
  16. trents
    @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the...
  17. trents
    No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
  18. trents
    Contact them.
  19. trents
    Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
  20. trents
    Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
  21. trents
    I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
  22. trents
    Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
  23. trents
    Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
  24. trents
    @Maggieinsc, let me correct a partial misconception on your part about European celiac diagnostic protocols. During the COVID pandemic, because of increased pressures on the healthcare system, the UK adopted a protocol that allowed for an official diagnosis of celiac disease without an endoscopy/biopsy if tTG-IGA blood antibody scores were 10x normal or greater...
  25. trents
    Welcome to celiac.com, @Aretaeus Cappadocia! My guess would be that essential tremors may sometimes be connected to a vitamin or mineral deficiency and that as your small bowel villous lining has healed you are now absorbing nutrients more efficiently once again. It would be interesting to see a study done where a population of those with essential tremors...
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