Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
  • Posts

    8,273
  • Joined

  • Last visited

  • Days Won

    487

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. Well then, I'd say he's making excellent progress. It can take some time for antibody numbers to normalize. Even though new antibodies are no longer being produced, it takes a while for the old ones to be disposed of. Make sure you keep an eye on the alkaline phosphatase levels. It is probably true that is tied to his adolescent growth spurt but it's...
  2. Welcome to the forum, @CeliacMom79! Not sure what you mean when you say you are pleased that his ttg levels are now at "detectable levels"? Earlier in your narrative you said they were originally above 250. Was 250 the upper limit of the scale that was used, such that you actually don't know how high they were originally, i.e. "off the charts"? Were...
  3. Two weeks is the minimum according to the guideline. I would go for four weeks if you can endure it, just to make sure.
  4. It applies to both blood tests and biopsies. Guidelines for the gluten challenge have been revised for the very issue your question raises. It was felt by medical professionals that the longer term but less intense consumption of gluten approach was not proving to be reliable for testing purposes and was resulting in too many false negatives. But do keep...
  5. Okay, so the term was being used loosely and informally, then.
  6. Alzheimer's is caused by a buildup of beta amyloid plaque tangles in the neurons. I don't see how that would be influenced by hearing loss. I can see where sensory deprivation could contribute to mental decline in indirect ways but Alzheimer's is a disease with a biochemical base.
  7. About 9% of celiacs react to the protein in oats (avenin) like they do gluten. The dairy protein casein is also known to damage small bowel villi like gluten does in some celiacs. In addition to that, many manufactured gluten-free food products contain difficult to digest polysaccharides like xanthan gum that are famous for causing digestive distress.
  8. @Pablohoyasaxa, if your diet is truly gluten free you should not still be experiencing stomach cramps and diarrhea. So, maybe gluten is still getting in there somehow or you have developed other food intolerances which, by the way, is very common in the celiac population. Are you still consuming dairy and oats (even gluten free oats)?
  9. Are you a super sensitive celiac? I shouldn't think that would be an issue for the average celiac. I would be more concerned about cross contamination in cooking areas.
  10. Welcome to the forum, @BlakeAlex! Is this the GI Reset product you are using?: https://inwellbio.com/wp-content/uploads/2023/08/GI-Reset_Info-Sheet.pdf There is a lot of weird stuff in that you could be reacting to. Personally, I would discontinue it as I doubt it's really doing you any good anyway. Getting to the point where you are truly...
  11. No. There is no damage done to the gut lining with NCGS.
  12. @MagsM, It concerns me that your physicians seem to be preoccupied with the concept of "classic celiac disease". That suggests to me their knowledge of celiac disease may be dated and they don't have a concept yet for the "silent celiac" who doesn't manifest with classic GI symptoms.
  13. @StuartJ, what brand of gluten-free flour did she use?
  14. Congrats! Can you share the recipe? We just picked up a bread maker from an estate sale and are experimenting.
  15. So, @StuartJ, are you @rjane's celiac spouse?
  16. Welcome to the forum, @Natosha! For future reference, when you share celiac blood antibody test scores, it is helpful to also include reference ranges for negative vs. positive since there are no industry standards in place. Each lab uses different scales. But, you have told us the results of the testing were negative, so we have the big picture. Looks...
  17. Wends is correct in that for generations the food pyramid chart we were given with carbs at the base is incorrect. The average person gets far too many of their calories from carbs and coincidentally, more calories than they need for good health since carbohydrate rich foods are also calory rich foods. The body can learn to convert protein and fat into energy...
  18. Welcome to the forum, @Stephanie Wakeman! I don't know how common it is but it is certainly possible. In fact, as you may already be aware that, if you live in the USA, the FDA lists it as one of the eight most common allergens and if it is present in a commercial food product it must be declared in the allergen section of the product's nutritional analysis...
  19. @rjane, yes, it often feels overwhelming in the beginning. But let me encourage you by saying that it will get easier. You and your husband will develop, over time, a sixth sense of how gluten is typically hidden in the food supply and where it is found and you will develop an inventory of foods that you can trust and to stock your pantry with. The largest...
  20. Has your hubbie been checked for SIBO (Small Intestinal Bacterial Overgrowth)? This is not uncommon in the celiac population. https://my.clevelandclinic.org/health/diseases/21820-small-intestinal-bacterial-overgrowth-sibo
  21. Welcome to the forum, @rjane! Making gluten free bread from scratch that both tastes good and holds together is a real challenge. There are some pretty good commercially made choices in the stores these days. Once the big food companies figured out there were enough of us out there for them to generate a profit, they went to work developing some good...
  22. Here is an article that gives an overview of all tests that can be used to detect celiac disease: As you can see, the different tests vary in their degree of specificity and sensitivity. So, it is to be expected that if someone has celiac disease, not all the tests will be positive. Also notice that the tests break down into two large groups...
  23. If you go to Barcelona, don't take your food outside. It may get soggy: https://www.msn.com/en-us/news/world/how-the-humble-water-gun-became-the-symbol-of-barcelonas-anti-tourism-movement/ar-AA1GTQJr
  24. I think your question needs clarification. Are you asking who gets sick from consuming some of these prolamins are all of them? Everyone in the celiac/gluten sensitive community will get sick from consuming gliadin, hordein and secalin. Some will also get sick from consuming avenin. Apparently, some don't do well with any of them.
×
×
  • Create New...