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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @Travel Celiac! The high total IGA does not indicate that your celiac disease is actively flaring up. Total IGA is not a test for celiac disease per se but rather is test given to determine if you are IGA deficient, which you are not. IGA deficient people will experience artificially low individual IGA antibody tests such as the...
  2. trents
    Welcome to the forum, @Kipman! When you say your Iga is low I assume you are referring to total IGA. Can you confirm this? If so, the antibody test score for the transglutaminase iga (what we generally refer to as tTG-IGA) test score cannot be trusted. Low total IGA (i.e., being "IGA deficient) will drive down the scores in the tTG-IGA test and can cause...
  3. trents
    Being gluten free for two weeks prior to testing can make a difference in the test results if the score is borderline.
  4. trents
    Ichthus is the Greek word (using English letters) for fish. The letters in the actual Greek word form an acronym that come from the first letters in the Greek words for "Jesus", "God's Son," "Savior". Now, back to your family's denial of your celiac disease, I think you can relate to this:
  5. trents
    Prolonged dehydration can cause kidney damage. How long has this been going on? Are you have diarrhea also? That's what the dyclomine is for I think.
  6. trents
    Thanks for noticing my avatar, or "profile pic" as you call it. It trust the ichthus symbol is meaningful to you as well. It's certainly nice to have an official diagnosis of celiac disease if that is the problem but I think you have discovered by experience in changing your eating habits that you either have celiac disease or NCGS (Non Celiac Gluten...
  7. trents
    Welcome to the forum, @nanny marley! Unfortunately, after bein on a gluten free diet or even a reduced gluten diet for weeks or months, you can expect test results to be negative.
  8. trents
    Sounds like your parents are in denial about your celiac disease. Do you have an official diagnosis? Have you been able to keep the anti nausea meds you mentioned down long enough to get into your system?
  9. trents
    Get someone to take you to the local ER and get some IV fluids on board. You already are or are at risk for serious dehydration. If you have no one who can transport you or you are too weak to make the trip in a car, call 911.
  10. trents
    Duodenal ulcers are not uncommon either and often result from H.Pylori infections. https://www.healthdirect.gov.au/duodenal-ulcer
  11. trents
    Just vitamin b1?
  12. trents
    Welcome to the forum, @Whyz! By "half way to being diagnosed" I assume you mean you have had the blood antibody testing done but not the gastroscopy with biopsy. Is this correct? Were the results of your blood work positive for celiac disease?
  13. trents
    Three days of no gluten is not likely to have much impact on serum antibody test results. I have more concern over exactly what test or tests were ordered. When you get the results back, please post them including the reference ranges for the tests for negative vs. positive. What country are you in? Do you have much choice in what doctors you see? Sounds...
  14. trents
    Welcome to the forum, @Art Maltman! Ask your physician to order serum antibody tests specifically designed to detect celiac disease. That's the place to start but you shouldn't be on a gluten free diet some weeks before the blood draw. You certainly have some symptoms that are characteristic of celiac disease and you have a first degree relative that...
  15. trents
    I just want to reinforce what Scott said and that is we have tended to think in these neat little black and white categories of it's either celiac or NCGS when in reality it may not be quite that neat. There's just a lot we don't know and the immune system is very complex. I often wonder if I had been gluten free as a child if I would have avoided developing...
  16. trents
    My best guess would be NCGS. Some experts in the field of gluten disorders believe NCGS can be a precursor to the development of celiac disease. Whether NCGS or celiac disease, the antidote is the same, total abstinence from gluten for life or at least until some scientific breakthrough occurs that allows those with gluten disorders to consume gluten. I think...
  17. trents
    Welcome to the forum @Newhere19! Yes, we have had many forum members that for one reason or another cannot go forward with the confirmation step of the endoscopy with biopsy. Usually it is because they have already been gluten free for a significant period and react so severely to gluten ingestion that they cannot undertake the gluten challenge without...
  18. trents
  19. trents
    Welcome to the forum, Jane! A very sad story! Thanks for sharing. Is there something we can help you with or did you just feel a need to unburden? Unburdening, by the way, is certainly okay and we all need to find safe places to do it once in a while.
  20. trents
    Welcome to the forum, @akacase! Recommendations from the medical community with regard to the gluten challenge are in flux lately and you will see a range of advice with regard to how much gluten and for how long. The general consensus, however, is that historically, guidelines were too relaxed and the trend in recommendations is for eating a higher...
  21. trents
    @marion wheaton, are you on vitamin and mineral supplements that are appropriate for bone health in order to offset the malabsorption problem until your gut heals thoroughly? I'm talking about supplements more potent than an adult multivitamin. We routinely recommend to newly diagnosed celiacs to be taking a high potency B-complex, 5-10k of D3, Magnesium...
  22. trents
    Both are valid concerns IMO. I developed osteopenia from celiac disease and was taking alendronate for a time. Honestly though, I can't remember if it was before diagnosis or after diagnosis of celiac disease. I was diagnosed over twenty years ago. I don't remember having any problems with the med itself but I do remember stopping it because I was concerned...
  23. trents
    Welcome to the forum, @marion wheaton! Can you be more specific about why the doctors were concerned about you taking the medication? Was there a connection between their concern and you having celiac disease?
  24. trents
    Jula, terminology can be confusing and the terms "gluten sensitive" and "gluten intolerant" are used by different people to mean different things. That's why I stick to using "celiac disease" and "NCGS" (Non Celiac Gluten Sensitivity) because those are the technical terms used by the medical community and it eliminates the confusion. As you point out...
  25. trents
    Jula, welcome to the forum. What possible benefit would having an official diagnosis give you at this point in your life? You already have medical test evidence that you are a celiac (antibody tests and genetic testing) and the symptom improvement when you went off gluten confirms what the testing already pointed to. Why on earth would you risk damaging...
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