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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I think insufficient bile/pancreatic enzymes may be a problem in the under digestion of fats and other foods but I think in celiac disease the damage to the villous lining is the big factor since it can greatly reduce the ability to absorb nutrients from the food we consume. Floating, oily stools is a very common, even classic symptom of celiac disease and...
  2. trents
    Mari, isn't non tropical sprue just a synonym for celiac disease? Sprue is just an older term for the disease is my impression.
  3. trents
    10,000 IU of D3 daily would be an upper limit and should be plenty. How long have you been taking that amount? Your vitamin D3 levels should be higher than 30 ng/ml unless you have only recently started taking the D3 supplement amount you mention. I think 30 ng/ml is like the low end of what is considered normal. But it is certainly not optimum. I do...
  4. trents
    Well, you with a total IGA score of almost 1000 you certainly aren't IGA deficient which is one thing that can suppress tTG-IGA scores. Some other things are that can suppress tTG-IGA are diabetes, thyroid disease, anemia and having a reduced gluten intake weeks in advance of the antibody test blood draw. But as Scott said, I would go back to your doctor...
  5. trents
    The pepper may or may not have enough gluten to produce a celiac reaction. Best to avoid things that you are unsure about and we cannot give certain answers to those kinds of questions any more than you can. It depends on too many things and if there is any gluten in that pepper and how much may vary from one batch of it to to another depending on how well...
  6. trents
    Are you aware of the big flap created recently by the testing Mom's of America had done on Trader Joe's bagels that showed they were way out of tolerance with regard to the 20ppm FDA standard for using "Gluten Free" claims? There was a big story that surface on this forum recently if you care to search for it. I would not recommend Trader Joe's as a safe...
  7. trents
    I think Bfree does now offer a sour dough gluten free loaf bread. I believe I bought some at Costco back this spring.
  8. trents
    If the pepper package says it could contain traces of gluten I would avoid it. How long have you know that you are a celiac? How long ago were you diagnosed? Different celiacs vary significantly in how sensitive they are to trace amounts of gluten and that's something it can take time to get a handle on as an individual. I think the cashier job...
  9. trents
    Welcome to the forum @Dora77! I would not expect you to get any significant exposure to gluten from tactile or airborne means as a supermarket cashier. I think your worries are overdone in that scenario. But it is not true that you are asymptomatic if you are experiencing "floating, light brown and undigested stools". That is a classic symptom...
  10. trents
    Both NCGS and Celiac Disease are life-long medical conditions. Neither will "pass". Furthermore, some experts in the field believe NCGS can be a precursor to the development of celiac disease.
  11. trents
    Your small intestine is supposed to be sterile? Are you sure about that?
  12. trents
    Welcome to the forum, @MSawhill! Not sure about the collagen part, but all manner of bowel diseases are more common in the celiac population than in the general population. Celiac disease is an autoimmune disease and when you have one autoimmune condition you are likely to develop others. The tend to cluster. That we know.
  13. trents
    Shouldn't be. The problem is the proteins in grains, not the sugars. Although, some people have things like fructose (a sugar) intolerance.
  14. trents
    Can you request an endoscopy with biopsy? Do you have any input into your medical care or do you live in a place where the healthcare system is very inflexible?
  15. trents
    As others have said, the next logical step is to have an endoscopy done with biopsy of the small bowel lining to check for the damage that would be caused by celiac disease. But you would need to be eating generous amounts of gluten ahead of time for at least two weeks for it to be a valid test. An amount of gluten equivalent to 4-6 slices of bread daily...
  16. trents
    I fell like you are stuck in no man's land. Between not consuming enough gluten to produce valid test results but not willing to totally commit to a gluten free diet to see if your symptoms resolve.
  17. trents
    So, are you trying to avoid gluten right now or are you still doing a gluten challenge?
  18. trents
    Was the soup labeled gluten free? Who is "they"?
  19. trents
    What do you mean you may have gotten glutened again? "my soup happened to have noodles in them." If the noodles were made of wheat, you did get glutened. Why did you eat it? Did you not see the noodles or not read the ingredients?
  20. trents
    Yes, that is the goal. Although, appearances can be deceiving. There are studies that show some dimensions of villous mucosa healing may forever evade the celiac. Somethig thath has been termed "gene scaring".: https://www.beyondceliac.org/research-news/potential-drug-to-treat-celiac-disease-prevents-damage-caused-by-gluten-in-recent-study-of-molecular-action...
  21. trents
    Your total IGA is normal. Total IGA is not a test for celiac disease as such. The total IGA score simply establishes whether or not you are IGA deficient. If people are IGA deficient, then the individual IGA antibody tests cannot be trusted as being accurate because they will likely yield artificially low scores.
  22. trents
    In a person with celiac disease, the consumption of gluten causes an inflammatory response in the villous lining of the small intestine. This inflammatory response produces antibodies that can be detected by blood tests. When you withdraw gluten from the diet, the inflammation subsides and the antibodies in the blood begin to disappear and after a certain...
  23. trents
    Welcome to the forum, @jayjays! Was the tTG-IGA the only celiac antibody test done? A more complete panel should have been ordered. Had you been eating gluten free or reduced gluten at the time of the blood draw? Your symptoms all scream of celiac disease but in order to get confirmation indeed, you would need to return to a gluten rich diet (4...
  24. trents
    Welcome to the forum, @Layu! You say your "Gliadin g" is high high at 100 U/ml. This test terminology is unfamiliar to me but looking at the other test results you list and using the process of elimination I am guessing this test is what we know as "DGP-IGG". Can you confirm this? Here is an article that lists all the possible antibody tests that can...
  25. trents
    Good catch, RMJ. I didn't read his post carefully enough to realize the said "I did some research and found". So his ranges did not come from the lab that did the testing . . . and I explained the importance of that to him in an earlier post.
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