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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @lizzie42! Can you also supply the reference range for that celiac antibody test? Each lab uses its own reference ranges for the celiac antibody tests so we can't comment otherwise until we know. And was that the TTG-IGA? There is also a TTG-IGG celiac antibody test. There is a growing tendency for physicians to forego the endoscopy...
  2. trents
    If I may put my two cents in here . . . Coffee (caffeine) is a double-edged sword when it comes to headaches. It can relieve them (that's why caffeine is put in many over the counter pain relievers) but it can also cause them - particularly if you consume coffee/tea/soda often and regularly and then are in a situation where you have to go without it...
  3. trents
    Welcome to the forum, @Deb888! There is also the possibility that you do not have celiac disease but are gluten sensitive (NCGS or Non Celiac Gluten Sensitivity). They share many of the same GI symptoms but NCGS is 10x more common. There are no tests for it. Celiac disease must first be ruled out. Before the blood draw, had you already begun to...
  4. trents
    Yes, lectins can be problematic for some people. IGG testing can be used to detect celiac disease but not IGE. IGE antibodies have to do with allergic reactions and ceilaic disease is not an allergy, it is an autoimmune reaction. The IGG tests are not as reliable for detecting celiac disease as are the IGA tests but they can be be very helpful, particularly...
  5. trents
    Welcome to the forum, @Nstvns03! Immunoglobulin A Qn is not a test for celiac disease per se. It's what we commonly call "total IGA" and it is a test used to determine if there is IGA deficiency. If there is IGA deficiency, the individual IGA tests done to look for celiac disease are going to be artificially low and this can produce false negatives....
  6. trents
    Thanks for the information, knitty kitty. It helps bring some clarity and reduces the confusion that misinformation such as is contained in this thread title introduces into the community. People new to the celiac experience are already struggling to wrap their minds around not being able to eat just wheat, barley and rye any longer. We don't need to unnecessarily...
  7. trents
    I did some research on what exactly is gluten . . . what defines it. "The term gluten usually refers to the elastic network of a wheat grain's proteins, gliadin and glutenin primarily . . . " "The types of grains that contain gluten include all species of wheat (common wheat, durum, spelt, khorasan, emmer and einkorn), and barley, rye, and some...
  8. trents
    I think Scott speaks truth. And I think there is more to this than the prospect of her having celiac disease. If it wasn't this issue, I'm betting it would be another.
  9. trents
    If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
  10. trents
    Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
  11. trents
    Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new...
  12. trents
    I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins...
  13. trents
    The oat protein, avenin, is not gluten. It is similar to gluten, however, and similar enough to cause a gluten-like reaction in some celiacs.
  14. trents
    Yes, the TTG-IGG was positive but not the TTG-IGA.
  15. trents
    Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well. If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.
  16. trents
    Welcome to the forum, @Tyoung! Apparently, folic acid in supplements is readily absorbed into the bloodstream as opposed to getting folate from natural food sources. So, high levels in the blood can happen quickly from supplementation: Your body doesn’t absorb folate as easily as it absorbs folic acid. It’s estimated that about 85% of folic aci...
  17. trents
    Welcome to the forum, @Connie Smitj! Can you give us a little more history about your celiac journey? How long ago were you diagnosed and how long have your been gluten free? Do you have other symptoms besides quick onset of hunger after eating and gut pain? How long have these symptoms being happening?
  18. trents
    Scott, am I missing something? For the TTG-IGA normal is anything 3 or less and his score less than 2. I think that one is in normal range. @Brown42186, if the GI doc is not interested in doing an endoscopy with biopsy of the small bowel lining based on the elevated TTG-IGG I would request a repeat on the bloodwork now that you have resumed gluten consumption...
  19. trents
    The elevated TTG-IGG could be caused by celiac disease but it can be elevated for other reasons as well. The centerpiece of celiac blood antibody testing is the TTG-IGA and apparently that was not elevated. When you had the blood draw done for the testing, had you already been cutting back on gluten?
  20. trents
    @Oriol, I am jealous!
  21. trents
    One of the manifestations of celiac disease that some people experience is a rash known as dermatitis herpetiformis. It has little pustules in the center of the bumps. There is no other know cause for dermatitis herpetiformis other than celiac disease. If properly biopsied during an outbreak, dermatitis herpetiformis can be used to diagnose celiac disease...
  22. trents
    Welcome to the forum, @JohannesW85! Your physician gave you bad advice in telling you to avoid gluten until the hospital calls you. Reducing gluten intake will invalidate celiac disease blood antibody testing but it will also invalidate the gastroscopy/biopsy if there is significant time involved between removing gluten and when the procedure is scheduled...
  23. trents
    From the article you linked: "Currently, there are no recommended methods to test for non-celiac gluten sensitivity." "No recommended methods" is the key phrase here. Just on the anecdotal evidence of reading many posts on this forum, I think we sometimes see some elevated igg test scores with NCGS. They seem to be mildly elevated in these cases, not high...
  24. trents
    Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds...
  25. trents
    Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis...
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