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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Shouldn't be. The problem is the proteins in grains, not the sugars. Although, some people have things like fructose (a sugar) intolerance.
  2. trents
    Can you request an endoscopy with biopsy? Do you have any input into your medical care or do you live in a place where the healthcare system is very inflexible?
  3. trents
    As others have said, the next logical step is to have an endoscopy done with biopsy of the small bowel lining to check for the damage that would be caused by celiac disease. But you would need to be eating generous amounts of gluten ahead of time for at least two weeks for it to be a valid test. An amount of gluten equivalent to 4-6 slices of bread daily...
  4. trents
    I fell like you are stuck in no man's land. Between not consuming enough gluten to produce valid test results but not willing to totally commit to a gluten free diet to see if your symptoms resolve.
  5. trents
    So, are you trying to avoid gluten right now or are you still doing a gluten challenge?
  6. trents
    Was the soup labeled gluten free? Who is "they"?
  7. trents
    What do you mean you may have gotten glutened again? "my soup happened to have noodles in them." If the noodles were made of wheat, you did get glutened. Why did you eat it? Did you not see the noodles or not read the ingredients?
  8. trents
    Yes, that is the goal. Although, appearances can be deceiving. There are studies that show some dimensions of villous mucosa healing may forever evade the celiac. Somethig thath has been termed "gene scaring".: https://www.beyondceliac.org/research-news/potential-drug-to-treat-celiac-disease-prevents-damage-caused-by-gluten-in-recent-study-of-molecular-action...
  9. trents
    Your total IGA is normal. Total IGA is not a test for celiac disease as such. The total IGA score simply establishes whether or not you are IGA deficient. If people are IGA deficient, then the individual IGA antibody tests cannot be trusted as being accurate because they will likely yield artificially low scores.
  10. trents
    In a person with celiac disease, the consumption of gluten causes an inflammatory response in the villous lining of the small intestine. This inflammatory response produces antibodies that can be detected by blood tests. When you withdraw gluten from the diet, the inflammation subsides and the antibodies in the blood begin to disappear and after a certain...
  11. trents
    Welcome to the forum, @jayjays! Was the tTG-IGA the only celiac antibody test done? A more complete panel should have been ordered. Had you been eating gluten free or reduced gluten at the time of the blood draw? Your symptoms all scream of celiac disease but in order to get confirmation indeed, you would need to return to a gluten rich diet (4...
  12. trents
    Welcome to the forum, @Layu! You say your "Gliadin g" is high high at 100 U/ml. This test terminology is unfamiliar to me but looking at the other test results you list and using the process of elimination I am guessing this test is what we know as "DGP-IGG". Can you confirm this? Here is an article that lists all the possible antibody tests that can...
  13. trents
    Good catch, RMJ. I didn't read his post carefully enough to realize the said "I did some research and found". So his ranges did not come from the lab that did the testing . . . and I explained the importance of that to him in an earlier post.
  14. trents
    There are other antibody tests that can be run which seem to be more accurate for those having been on reduced gluten diets leading up to the blood draw. Namely, the DGP-IGA and the DPG-IGG.
  15. trents
    So, for the tTG-IGA you have a weak positive result. I suspect if you had been consuming a greater amount of gluten as I mentioned in my post above, that score would have been higher.
  16. trents
    Is the (tTG) IgA Ab the only test they ran? That is far from a comprehensive celiac panel.
  17. trents
    What is the reference range? There are no universal standards for these tests. Each lab uses it's own scale for reference ranges so unless you supply the reference range for what that lab uses for the normal range, we cannot comment on the result.
  18. trents
    It is common for celiacs to develop additional food intolerances over time. Keep in mind that celiac disease is at heart a dysfunction of the immune system and it which tends to become more dysfunctional with time. I'm guessing there is something or somethings in your diet that are not gluten that you have become intolerant of since developing gluten intolerance...
  19. trents
    It's not the gluten in the oats that is the issue, it's the oat protein itself, which is not considered to be gluten so it's not violating the gluten free standard.
  20. trents
    It sounds like you are getting some dairy still and many celiacs are intolerant of dairy, either from the lactose or the protein, casein, in dairy which closely resembles gluten. Are you still consuming oats? Oats is another common cross reactor. Oat protein, avenin, is similar to gluten. Also, have you looked into MCAS/histamine intolerance?
  21. trents
    https://www.beyondceliac.org/research-news/potential-drug-to-treat-celiac-disease-prevents-damage-caused-by-gluten-in-recent-study-of-molecular-action/ Time will tell whether or not this new drug being tested proves to be effective and safe. There have been many attempts to develop a celiac drug that did not pan out. However, has been a valuable "spin...
  22. trents
    Did this actually happen? It feels contrived. I can't imagine this happening in real life. And the question raised at the end of the story seems to confuse what the issue really is. Is the issue the gluten sensitive woman's safety or is it selfishness? I don't see why allowing her pregnant friend to sample her gluten free meal would present a safety risk...
  23. trents
    That makes sense. Do you really make pickle beet pasta?
  24. trents
    Still, the scientific definition of osmosis involves a semipermeable membrane.
  25. trents
    That may not be enough. The most recent guidelines are calling for the daily consumption of 10g of gluten (an amount found in about 4-6 slices of bread) for at least two weeks leading up to the day of testing. One thing our community knows is that many medical practitioners are not up to date when it come to diagnosing celiac disease and advising their patients...
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