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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Make sure you don't reduce your gluten intake (wheat/barley/rye products) until all testing for celiac disease is complete. The first stage of testing involves a blood draw which is sent to a lab to check for celiac antibodies. If any of the celiac antibody tests are positive, you will likely be scheduled for an endoscopy with biopsy of the small bowel lining...
  2. trents
    Unless you live in the western US, you likely will not find Franz products in your stores.
  3. trents
    Welcome to the forum, @Dee4825! Is the consistency of your bowel movements normal or are you experiencing diarrhea? Have you added into your diet any pre-prepared/pre-packaged gluten-free foods and snacks or are you just going with naturally free main stream foods? BTW, I notice you also posted your question in another place in the forum. Please don...
  4. trents
    As I think about it more, you may have a valid point about it being osmosis but the experiment outlined in the article, as limited as it was, suggests that not much osmosis actually happened. And I wonder if you're example of adding fish sauce to the water makes the pasta take on the fish sauce flavor because it has crossed the semipermeable membrane (as...
  5. trents
    Thyroglobulin antibody: nearly 1,000 (ref: 0.0 to 0.9)! What's with that? It's super high! Do you have Hashimotos? Maybe you said that already somewhere back in this long thread.
  6. trents
    @GardeningForHealth, when is the last time you had a follow-up endoscopy or even a follow-up antibody panel?
  7. trents
    What do you mean about seeing Cheerios having so many pros and cons about it? Do you mean about whether or not it is truly gluten free?
  8. trents
    What you are describing is reconstitution, not osmosis.
  9. trents
    sc'Que?, I think your science is bad. Osmosis is the movement of liquid in a solution across a semipermeable membrane from an area of higher solution concentration to an area of lower solution concentration. Hard pasta is not in solution and there is no semipermeable membrane present. The salt simply raises the boiling temperature of the water and also adds...
  10. trents
    If you had four positive out of six celiac antibody tests and there was inflammation in your duodenum as the pathology report stated, I would say that is pretty conclusive for celiac disease. You may have caught it early enough before villi blunting was happening.
  11. trents
    Welcome to the forum, @NoMoreBreadForMe! You said you are not anemic but are your blood oxygen saturation levels within the normal range?
  12. trents
    I asked about the dairy because a significant proportion of the celiac population reacts to CMP (Cow's Milk Protein) like they do gluten. Oats is another common cross reactor. https://www.beyondceliac.org/research-news/cows-milk-protein-allergy-could-be-the-culprit-when-some-children-dont-recover-on-the-gluten-free-diet/?_hsmi=243747802&_hsenc=p...
  13. trents
    Welcome to the forum, RK37! I don't have any bright ideas as to what is causing the bone edema. That's something I have never heard of in children or adults. So, it's the actual bone that is swelling and not the synovium or the compartment around the bones? Is he consuming dairy products by any chance? I'm also curious about how he was diagnosed...
  14. trents
    When is the gastroscopy scheduled for? If there is a significant wait period, I would ask the doctor to run additional blood tests including: Total IGA DGP-IGA DGP-IGG If the gastroscopy is coming soon, just go for that. But don't start the gluten free diet until all testing is done. Make sure you are consuming an amount of gluten daily...
  15. trents
    Hmm. You must have allergies to wheat or one of the other two gluten containing grains. Celiac disease is not an allergy but an autoimmune disorder which engages a different immune system pathway than do allergies.
  16. trents
    Not every dermatologist knows how to biopsy for dermatitis herpetiformis correctly. Check with your derm doctor first to see if the have had much experience with biopsying dermatitis herpetiformis. For one thing, the biopsy needs to be taken from tissue adjacent to a bump, not on a bump.
  17. trents
    I could be wrong but the pathology report doesn't seem to describe the kind of damage to the lining of the small bowel caused by celiac disease that we normally see. Celiac disease causes a blunting of the villi. It wears them down and reduces the nutrient absorbing efficiency of what starts out to be millions and millions of tiny finger-like projectiles...
  18. trents
    So, you are referring to dry cereal and not hot cereal?
  19. trents
    When the blood draw for the antibody test was taken, had you already begun cutting back on gluten ahead of that? The gastroscopy with biopsy of the small bowel lining is considered the gold standard diagnostic test for celiac disease. But like with the blood antibody test, to be a valid diagnostic tool, you would have need to have been consuming regular...
  20. trents
    We have had several reports like yours over the years of those who have resumed gluten consumption with no apparent reaction after years of being gluten free. But usually, it doesn't last and there is eventual relapse.
  21. trents
    Are you still consuming oats? Even gluten free oats?
  22. trents
    As Scott said, celiac disease cannot be diagnosed with a colonoscopy because celiac disease is a disease of the small bowel, the upper part of the intestines just below the stomach, whereas a colonoscopy does not go up that far. The first stage of celiac disease diagnosis is usually the blood antibody test. If there are positives in the antibody testing,...
  23. trents
    An endoscopy without a biopsy of the small bowel lining would not necessarily be a good diagnostic for celiac disease. If the damage to the small bowel lining is profound enough, and if the scope resolution is good enough, and if the person doing the scoping is experienced enough to recognize "villi blunting" then it can be seen without the aid of a microscope...
  24. trents
    The most recent "gluten challenge" guidelines for those having been gluten free for a long period of time and wishing to be tested are the daily consumption of 4-6 slices of wheat bread (or the gluten equivalent - 10g) for at least two weeks prior to the antibody test blood draw. I would recommend mor like four weeks to be sure. Many people find they...
  25. trents
    Just for the sake of clarity, there are two gluten disorders that often get confused because the terminology is used carelessly. There is celiac disease, aka, "gltuen intolerance" and there is NCGS (Non Celiac Gluten Sensitivity), aka, "gluten sensitivity". There is overlap in their symptoms but the distinguishing factor is that celiac disease causes inflammation...
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