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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Ditto. An official celiac diagnosis is not worth permanently damaging your health.
  2. trents
    Let me caution you about one possible flaw in your logic when you say that departing from the carnivore diet to experiment with other foods like avocados gives you nausea, bellyaches, etc. I think when you eliminate any food from your diet for a long period of time and then go back to it you can have problems, even if you are a normal healthy person with...
  3. trents
    Just type the test results in a new post, please. Make sure you include not only the test scores but the reference ranges.
  4. trents
    This could happen if these numbers represent the lower limits of the detection technology. In this case, if celiac disease-like symptoms persist I would suspect NCGS since they share similar symptoms but there is no test for NCGS at this point in time.
  5. trents
    Welcome to the forum, @MamaBearLiv! The first thing I would make you aware of is that taking your son off of gluten before the endsocopy/biopsy (if this is planned) will invalidate the results. He would need to go back on regular amounts of gluten for weeks before the procedure for it to yield valid results. Second, is your son still consuming dairy...
  6. trents
    " but he basically told me that if the antibodies are negative then I do not have Celiac regardless of my GI symptoms (that have drastically improved since cutting gluten from my diet), the dermatitis herpetiformis, the + gene, the severe damage to my duodenum (ulcer, lymphocytosis, villous blunting) he said “these are all nonspecific findings.” I also exp...
  7. trents
    6 slices should be plenty. Doesn't matter whether it's wheat or white. Are you on Metformin for your diabetes?
  8. trents
    You can break off a few slices of bread at a time from the frozen loaf and put them in a ziplock bag for current use. How long a load lasts before it gets moldy depends on a lot of things. I keep my gluten-free bread loafs in the frig and warm them up in a popup toaster so that the loaf doesn't mold so quick. Sometimes I have gotten them and they were moldy...
  9. trents
    Krusteaz makes a line of gluten free cornbread mixes. We use the "honey cornbread mix" one by Krusteaz and it's good. Sweeter than homemade, somewhat like a cake, but it's pretty good. Can you take the frozen gluten free bread home and let it thaw out? They probably keep it in the freezer to keep it from molding as gluten free bread products generally...
  10. trents
    Well, if you are diabetic you may have to find a balance between skimping on gluten and "pigging out". Can you increase your diabetes meds to compensate?
  11. trents
    Unfortunately it is often the case that other family members don't buy into a celiac's need to be totally gluten free. Often they are skeptical that that this is really a disease and they certainly don't understand that, if the need to eat gluten free is unheeded, it can cause actual damage to body systems. They don't understand that celiac disease is not...
  12. trents
    Ginger, realize that the guidelines for the gluten challenge have recently been revised to recommend larger amounts of gluten consumption daily in order to produce valid test results. It used to be 3g of gluten daily but has been increased to 10g daily. So, you will still find older internet references to the lesser amount if you do searches. The amounts...
  13. trents
    Welcome to the forum, @Camorrison56! The answer to all your questions depends on how careful you and the others in your household are about dishwashing, countertop cleaning, and keeping gluten containing food separated from gluten free food in the pantry and in the fridge. If everyone is thorough and consistent, it shouldn't be a problem. Lots of families...
  14. trents
    knitty kitty, if B12 was not being absorbed, as in pernicious anemia, how could ShellyWesier's serum levels of B12 be elevated? She does not mention getting B12 injections.
  15. trents
    Don't overthink it. Err on the generous side. It could be loaf bread, pasta, cake, pie, cereal, etc. Just don't skimp. That's the point. Eat the amount of gluten-containing food that any person who wasn't concerned about celiac disease would eat on an approximately 2500 calorie per day diet
  16. trents
    Absolutely! Just make sure you consume 4-6 slices of bread daily or the gluten equivalent up the day of the procedure.
  17. trents
    Welcome to the forum, @ShelleyWeiser! If you had pernicious anemia, you would not have elevated B12 serum levels. By definition, pernicious anemia is caused by an inability to absorb B12. Are you still consuming dairy products and oats? Do you use NSAIDs regularly? Are you on blood pressure meds?
  18. trents
    You still have plenty of time to begin a proper "gluten challenge". No, one piece of bread a day is not near enough. I know that is not what you want to hear. But what you don't want to have happen is a negative biopsy and wind up with a result that conflicts with your antibody testing from the bloodwork. If you want, you can go gluten free up to about one...
  19. trents
    Ditto to what knitty kitty said about postponing the gluten free diet until after your endoscopy/biopsy is done. Very important!
  20. trents
    Welcome to the forum, @kerey knapp! This article might help you get started. Some of the precautions it mentions to avoid cross contamination in shared kitchens and avoiding gluten in topical personal hygiene products might be unnecessary depending on how sensitive to gluten you are but the basics will apply to everyone. The biggest challenge and greatest...
  21. trents
    Thanks for posting all the info. As it turns out, your doctor did order a full celiac panel and you are not IGA deficient. Immunoglobgulin A Result: 105 shows that to be the case. So, as long as you were consuming normal amounts of gluten when this blood draw was taken we can trust the test results to be accurate. The biopsy is the gold standard of celiac...
  22. trents
    There is such a thing as a Celiac Service Dog? How do you get these and what does it take to qualify for one? Can you share your story with us. I imagine you must have severe reactions to gluten. This might be a better option than a Nima gluten sensor!
  23. trents
    Welcome to the forum, @ShaynaL530! The first thing that needs to be said is that allergy testing cannot be used to diagnose celiac disease because it is not an allergy to gluten. It is an autoimmune disorder that is triggered by gluten. Entirely different immunes system pathway. The DQ2 gene is one of the two primary genes associated with celiac...
  24. trents
    Stay on liberal amounts of gluten until all testing for celiac disease is complete or the testing will be invalid.
  25. trents
    Welcome to the forum, @Kazbo! Unfortunately, your original testing, with only the TTG-IGA antibody test being ordered, was less than thorough and I certainly would not rule out celiac disease (aka, "gluten intolerance") just yet. I would like to see you get a more complete celiac panel done with these tests ordered: Total IGA TTG-IGA DGP...
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