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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Celiac disease damages the villous lining of the small bowel. This is the area of the intestinal track where all of our nutrition is absorbed. Long term, undiagnosed celiac disease invariably results in vitamin and mineral deficiencies. It typically takes two years or longer after going gluten free to experience full healing of the small bowel lining so that...
  2. trents
    It's also important to understand that celiac disease is not an allergy to gluten. It is an autoimmune disorder fueled by gluten consumption. Food "sensitivity/intolerance/allergy" testing does not address this spectrum of the immune system response. Autoimmune disorders are characterized by the immune system attacking the body's own tissues. Having said...
  3. trents
    An ordinary adult multi vitamin is not a high potency supplement so I think you need something stronger than gummies.
  4. trents
    Welcome to the forum, @Suzyq112! Many or most of the symptoms you describe are not unusual in the celiac community. There is this misconception out there that celiac disease only produces GI symptoms but we now have identified over 200 medical conditions and symptoms associated with celiac disease. Many doctors are still in the dark about this, however...
  5. trents
    Welcome to the forum, @Rageagainstthewheat! First, let's deal with terminology because you may not be using the term "intolerance" in the same way as it is normally deployed when referring to gluten-related disorders. Gluten is found not only on wheat but in barley and rye. Though you will find some inconsistency in how people use the terms "intolerance...
  6. trents
    @Gemz, 14 weeks should be plenty of time for the gluten challenge but make sure you are also eating enough gluten daily during that time. More recent guidelines call for the daily consumption of at least 10gm of gluten (the amount found in about 4-6 slices of bread) for at least 2 weeks before either the blood antibody test or the endoscopy/biopsy. So, however...
  7. trents
    Welcome to the forum, @Gemz! Shame on your doctors and their ignorance.! It does matter whether or not you have been eating gluten free before being tested for celiac disease, whether it be the blood antibody test or the endoscopy/biopsy. We hear this same story from new members all too often! The fact that you have an issue with gluten is indisputable...
  8. trents
    Welcome to the forum, @Crackerjack! Nothing you describe is unusual in the celiac community. Dairy intolerance, either from the sugar component (lactose) or the protein casein, is very common among celiacs. And about 10% of celiacs cross react to oats (even gluten free oats) because the oat protein avenin is similar in structure to gluten. Spices...
  9. trents
  10. trents
    Scott, I agree with your criteria and I don't think that is too much to ask. Those kinds of requirements are common practice in many other industries.
  11. trents
    I believe Bob's Red Mill does their own testing. I called them some years ago and asked about what testing method they used and IIRC, this is what they told me.
  12. trents
    My guess would be that it's not gluten in the Larabars that's causing the problems but other ingredients. It is common for celiacs to develop additional food intolerances/sensitivities over time.
  13. trents
    I had a conversation with a woman the other night who used to own an organic farm who shared with me the tight regulation their industry was subject to. And part of it was unannounced drop in inspections by regulatory agencies. It works.
  14. trents
    It is clear to me that testing standards and protocols are much too relaxed in the gluten free/certified gluten free food sector. It's somewhat of a crap shoot for us who are dependent on them. I'm beginning to wonder if the label "Gluten Free" actually carries any more benefit than using mainline food products that don't list wheat/barley/rye as an ingredient...
  15. trents
    At the same time, Italy has the reputation of being very celiac friendly in the sense of a good national awareness of the celiac phenomenon. Supposedly, eateries there are generally conscientious about avoiding cross contamination and it is easy to find good gluten-free meal alternatives.
  16. trents
    Welcome to the forum, @enigma..! This may be partly the reason store bought gluten free bread loafs are so small. That, and the economics of it all. Seriously, though, baking your own homemade bread is not something many celiacs do because it is extremely difficult to get good results. When I was a newly diagnosed celiac my wife used to try and...
  17. trents
    Which flavor or flavors of larabars have you been eating?
  18. trents
    Welcome to the forum, @alip866! Did you get a reaction?
  19. trents
    Welcome to the forum, @brianvobrien! Despite anecdotal stories about celiacs who travel to Europe and seem to be able to safely eat wheat products while there I certainly would not recommend doing so. These are just that, anecdotal stories. There have been no systematic studies to support the idea that wheat food products in Italy or other European countries...
  20. trents
    Here is a primer for understanding blood antibody testing for celiac disease: The normal diagnostic process involves two steps. The first is to have the blood antibody testing done first. These can be ordered by a primary care doc. If any of the tests run turn up positives, there is typically a referral to a GI doc who will order and endoscopy with...
  21. trents
    Before you continue very far into your gluten free diet experiment, let me encourage you to seek out standard celiac disease blood antibody testing. The symptoms you describe could easily be due to something besides celiac disease and your constipation could be due to the removal of the fiber you were getting from wheat products. You could have NCGS (Non...
  22. trents
    Welcome to the forum, @Holls! You say you paid for the health testing. What do you refer to by "health testing"? Genetic testing cannot be used to diagnose celiac disease but only to establish the potential to develop celiac disease. about 40% of the general population has one or more of the genes connected with celiac disease but only 1-1.5% ever develop...
  23. trents
    If you can do so without wrecking your health, yes, you definitely should be consuming gluten up to the day of your biopsy, 4-6 slices of bread or the gluten equivalent. Actually, the guidelines state that amount daily for a minimum of two weeks before the biopsy but if you are not yet on a gluten free diet just keep going.
  24. trents
    I second what Wheatwacked is saying. You can eat gluten-free and more healthily in many cases without paying the premium prices of food that is labeled and sold as "gluten-free" if you use discernment in shopping for mainline products. They key is being willing to cook for yourself and to choose things that are simple and fresh. Fresh meats, eggs, fruit,...
  25. trents
    Bogger, the form of magnesium you take is critical. The cheapest and most common form you see on store shelves is magnesium oxide. It is not absorbed well and acts like a laxative (think, "milk of magnesia"). Because it isn't absorbed well it draws water into the colon and causes loose stools. Magnesium glycinate and magnesium citrate are much better absorbed...
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