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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    So, I assume your symptoms have improved since reducing your gluten intake. Is this correct?
  2. trents
    Unfortunately, you may have sabotaged your testing by reducing your gluten intake in the month before the testing blood draw was done. You do have one positive result from the testing, however, and that is for the Deamidated Gliadin Abs, IgA which certainly could indicate you have celiac disease. And it only takes one positive test. They don't all have to...
  3. trents
    Welcome to the forum, @Chrisusa! We can't answer your question unless you also supply us with the ranges used by the lab for negative vs. positive. There are no industry standards for these things. Each lab develops there own tests and uses different scales. All you have given us are your raw scores. You will not be able to edit your original post...
  4. trents
    Until later, Jim. You have a great weekend as well.
  5. trents
    Celiac disease does have a hereditary component but it is not as strong as with many other health conditions. There are two primary genes associated with celiac disease: HLDQ2 and HLDQ8. Having either of these genes or both presents the potential for developing celiac disease. About 40% of the population has one or both of these genes but only 1-1.5% of the...
  6. trents
    No, my daughter does not have celiac disease. I am the one in the family with celiac disease. My daughter is adopted so I didn't pass those genes onto her. The fact that your son has packed on 20 lbs. since his diagnosis and going gluten free is a good indicator that his gut is healing. It can take a couple of years or more for full rebound of the villous...
  7. trents
    If you refer to the damage done to the villous lining of the small bowel, yes, it should heal with time and consistent gluten free eating. The damage done to the villous lining is caused by the inflammatory response to gluten caused by the immune system mistakenly interpreting it as an invader. Once you remove the gluten, the inflammation subsides and the...
  8. trents
    I understand the concept of rewarding those companies who are consistently in compliance with GFCO standards and the idea of doing so has merit but it is also true that while the cat is away the mice will play. As others have suggested, perhaps the introduction of unannounced, random drop in testing needs to be added to the mix to keep them on their toes...
  9. trents
    The reason I'm asking about this is the thought that the introduction of the iron supplement is not the only nutrient change his body is undergoing. The healing of the villous lining of the small bowel since going gluten free is allowing his digestive track to absorb all kinds of nutrients more efficiently than it was before. Have you had his iron levels...
  10. trents
    It should be safe to use this long term as this is not chemical stimulation but a bulk producing laxative that works by collecting and retaining water as it moves through the intestines. It would be no different than eating high fiber foods like fruits and veggies.
  11. trents
    Welcome to the forum, @Jimmy2014! May we presume your son is also now observing a gluten-free diet? How old is he? Did the iron supplementation begin about the same time as going gluten free?
  12. trents
    @Jennie6308, there are no industry standards for scaling the results of celiac antibody tests. Each lab develops their own test parameters. So, the only thing that counts is what the lab used that did the analysis of your celiac antibody test blood samples.
  13. trents
    Welcome to the forum, @Jennie6308! Yes, the reduction in gluten intake from the low carb diet of the past few weeks could certainly have pushed the scores in the TTG-IGA antibody test downward toward the negative range. It might also compromise the results of an endoscopy/biopsy. I'm wondering also if the Naltrexone therapy would suppress celiac antibody...
  14. trents
    Yeah, 5 days off gluten wouldn't have much if any effect on the testing. It does not appear you have celiac disease if the biopsy was negative, meaning no damage to the small bowel mucosa. It would seem your health issues are due to something else.
  15. trents
    The reason I asked is because eliminating or even seriously restricting gluten intake for weeks or months before testing will invalidate the tests due to rebound healing of the gut mucosa.
  16. trents
    By any chance had you already embarked on a gluten free diet or at least were seriously cutting back on gluten before the bloods were taken and the endoscopy/biopsy was done?
  17. trents
    Welcome to the forum, @milo2007! I have a few questions for clarity's sake. You say you have had "bloods" done. Do you refer to the specific antibody tests that are run to detect celiac disease or are you referring to general common blood work like a CBC/CMP? When you had the endoscopy done, did they biopsy the small bowel lining to microscopically...
  18. trents
    I had the same thought as Cristiana about your cough being related to GERD, which is a very common co-malady in the celiac community. If this be the case, be aware that most doctors will want to put you on a PPI (Proton Pump Inhibitor) which is not a road you want to go down if you can possibly avoid it. PPIs lower gut acidity which inhibits digestion and...
  19. trents
    Welcome to the forum, @BookLou! Many or most people with celiac disease do not have GI symptoms, or at least to any significant degree, until damage to the small intestine's villous lining becomes serious enough with time, often years of time. We call them "silent" celiacs. It is also possible that you have NCGS (Non Celiac Gluten Sensitivity) which...
  20. trents
    I have had food allergy testing done and have mixed feelings about it. First, realize there is more than one method of doing it so you need to look into that. There is skin prick testing and there are blood tests. What is interesting is that you can compare the results from various kinds of testing and they can be significantly different. But there is usually...
  21. trents
    Good reads. Would seem wise for celiacs to cut down on carbs, especially simple sugars as candida thrives on them.
  22. trents
    Matt, recent guidelines for the "gluten challenge" are 10g of gluten (the equivalent of 4-6 slices of bread) daily for at least 2 weeks. And this would apply to either the antibody blood testing or the endoscopy/biopsy. The term "gluten challenge" refers to those who have been gluten free for a significant period of time but then wish to get tested for confirmation...
  23. trents
    Can you provide us with some links to said research? Historically, celiac disease has been considered to be the only known cause for dermatitis herpetiformis - such that having dermatitis herpetiformis was confirmation of having celiac disease.
  24. trents
    Matt, ditto to what RMJ said about continuing to consume gluten until the endoscopy/biopsy is done. Many have made the mistake of not knowing to do that and there was enough healing of the villous lining of the small bowel to provide results that were not clear. They you are in the dilemma of conflicting test results. Having said that, there are some cases...
  25. trents
    Ditto with what RMJ said.
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