trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant... -
Sounds like your doctor is not very knowledgeable about celiac disease and may not be supportive of your efforts to run this down. Unfortunately, there is still a lot of ignorance in the medical community with regard to celiac disease. He/she may not even know what tests to run. Those of us who have been on the celiac journey for sometime have come to realize...
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I question your terminology. I believe "gluten intolerance" is used as a synonym for celiac disease in most circles today whereas "gluten sensitivity" is used of NCGS (Non Celiac Gluten Sensitivity) though you still see a lot of inconsistency in how the terms are deployed.
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Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and...
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Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates...
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@Brook G, would you explain what you mean when you say, "I'm assuming that I'm probably extremely gluten intolerant because QUINOA gives me a gluten reaction." Quinoa is naturally gluten free. However, it is possible to have been cross contaminated with gluten-containing grains and the seed coat lectins can make some people (like me) quite ill if it is unwashed...
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There are third party home test kits for celiac disease that do not involve needles. They use a cheek swab I believe. The cost is a little over $100 USD I believe for most of them. A 7 week "gluten challenge" should be more than enough. The absolute minimum according to guidelines is 2 weeks but I would not cut it that close. I usually recommend four...
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Welcome to the forum @cameo674! First, let me correct a misconception you have about celiac disease and intestinal anatomy. Celiac disease does not affect the colon. It damages the lining of the small bowel which is on the other end of the intestinal track from the colon. The small bowel, the duodenum, is the part of the intestines right below the stomach...
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Did I outgrow celiac
trents replied to Liamclarke's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, Liamclarke! We have reports from time to time of people whose celiac disease seems to go into remission. Often, however, it doesn't last. There is also the question of whether or not symptoms or lack of them tell the whole story. Many of us are "silent" celiacs who have very minor or no symptoms when consuming gluten yet slow, insidious... -
Celiac Disease Blood Antibody Tests
trents commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
Welcome to the forum, @MayraR! Immunoglobulin A is also known as "total IGA". It is not a test for celiac disease per se. There are some other potential health issues associated with this value being elevated: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ which suggests further testing. -
New and Frustrated
trents replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Tracey Thomas, Is that the only celiac test that was run? From the magnitude of the reference range, that looks like it was the "total IGA" test to check for IGA deficiency. It is not checking for celiac disease per se. If you are IGA deficient, it can cause false negatives in the individual IGA celiac antibody tests. Were there any other celiac antibody... -
Not necessarily. She may have NCGS and in that case doing a perfect gluten challenge would still yield negative antibody test scores. Don't beat yourself up over this.
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@MomofGF, I would refer you to the link from Scott's post above about Celiac Disease Blood Antibody tests as far as what labs we are looking for. That should narrow in down in that we are not looking for a complete CBC/CMP report. I would especially like to know from her labs if she is IGA deficient because that would make increase the likelihood of negative...
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Welcome to the forum, @Mary Miller A! May I ask, you say you are new to this online community but how long ago were you diagnosed as having celiac disease? You seem to have a good awareness of cross contamination issues but have you considered cross reactivity issues? Some of your cross contamination concerns should be addressed by FDA disclosure...
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A "gluten challenge" of two weeks would be the bare minimum for expecting to render valid testing, and that would have been paired with eating a minimum of 10 g of gluten each day (the equivalent of 4-6 slices of wheat bread). And with the three gluten free days in the midst of that two week gluten challenge I would not have confidence in the results of the...
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I'm very skeptical. The presenter makes statements that reflect a total misunderstanding of the nature of celiac disease. He talks about being "cured" of celiac disease. There is no cure for it in the sense of making it go away. Once the genes are switched on such that the genetic potential to develop celiac disease becomes actual celiac disease, drinking...
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@JenFur, if this is microwave popcorn you are using, check for added ingredients that could be causing a reaction such as flavorings which might be hidden sources of gluten.
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You got the genes from somewhere. Medical science has known about celiac disease since WWII but up until about 30-35 years ago it was considered to be a very rare condition, afflicting only about 1 in 5000 people. So, back in the day, many people were misdiagnosed as having IBS - and still are, actually.
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Welcome to the forum, @mark w! Did you hit the "Submit Reply" button before you finished typing your post? The thought seems incomplete and there is no punctuation to terminate it at the end of the sentence. Are you stating that you believe the odd episode of being "glutened" is responsible for your ongoing fatigue or are you asking the question of could...
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To me, this study might raise the "which came first, the chicken or the egg?" question. Did the withdrawal of wheat from the diet of the celiac group cause lack of complete gut biome healing or is there something inherent about celiac disease itself that prevents complete gut biome healing apart from anything to do with the absence of wheat in the diet? Of...
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Top Brands of Gluten-Free Mayonnaise
trents commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
@Kate Murray, thanks for your clarification. True confession here. I have a tendency to be hard-nosed and onery on this forum at times and to get hung up on details rather than seeing the big picture of what another may be trying to communicate, i.e, to miss the forest for the trees. We see so much misinformation and so many misconceptions shared on this... -
The article raises that same question but at this point in time I think the specific answers are not there yet. One question I have is, is there something specific to wheat fiber that creates this beneficent effect in the gut or are there are fiber food substitutes that will do the same thing? I mean, there are plenty of food products with high fiber content...
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Top Brands of Gluten-Free Mayonnaise
trents commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
@Kate Murray, I want to return to a statement you made in your first post: "While the product may contain “less than 2%” this could be okay for those with an intolerance to gluten, but for true Celiacs Disease, the 20ppm is still far too high and causes reaction." That is a patently false notion. "True Celiacs" is not defined by those who react to ...- 20 comments
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Welcome to the forum, @JenFur! You must be relatively new to the celiac journey. I wish it were as simple as just having to cut out gluten and all our gut issues magically disappear. It is very common for those with celiac disease to develop intolerance/sensitivity to other foods. Often it is because the protein structure of some other foods...
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Top Brands of Gluten-Free Mayonnaise
trents commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
But the onus is not on Jefferson Adams. What he reported in his article was true and accurate according to FDA regulations. What happened to your son daughter has happened to others regardless of how the food product was labeled, whether making no specific claim of being gluten free or whether it was labeled "Gluten Free" or even "Certified Gluten Free"....
