trents
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Latest Celiac Disease News & Research:
Everything posted by trents
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Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks. When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did... -
What is your plan for the gluten challenge?
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@melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once...
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Insomnia help
trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@cristiana, milk is also a good source of magnesium, another very important nutrient in nervous system/mood health. -
@cristiana, no, I'm asking if, when you eat out, do you actually experience symptoms of gluten exposure apart from any consideration of blood antibody test scores?
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Like you, I was a silent celiac. I was largely asymptomatic insofar as GI symptoms were concerned. The first real evidence, retrospectively, of having celiac disease was the development of mildly but persistently elevated liver enzymes which initially was discovered when I tried to donate blood at age 37. That was in about 1987. Of course, my PCP checked...
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Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years...
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Why Celiac Diagnosis Still Takes Years—and How to Change That
trents commented on Scott Adams's article in Winter 2026 Issue
@par18, I don't totally disagree with what you say in theory. But like many things in life, one size doesn't fit all. While a formal diagnosis of celiac disease or NCGS is certainly not essential since, in the big picture of things, eliminating gluten is the antidote to either, there are some other considerations that give importance to seeking a formal diagnosis...- 6 comments
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It needs to be said that 50k IU daily is certainly safe for correcting vitamin D deficiency when used for a limited amount of time, for a few months maybe, as was the case in the two studies linked by knitty kitty. But it would not likely be a safe dosage when used for an indefinite period of time.
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"I am quite convinced this gluten is coming from exposure whilst eating out. Small levels, that don't make me violently sick, but might give me a mild stomach upset." cristiana, are you saying this is your actual experience or are you speculating here?
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What is a Michelin star restaurant?
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Welcome to the the celiac.com community @colinukcoeliac! I am in the USA but I don't think it is any different here in my experience. In some large cities there are dedicated gluten free restaurants where only gluten free ingredients are found. However, there are a growing number of mainstream eatery chains that advertise gluten free menu items but they...
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Of course, I thought about the OP not being consistent with the gluten-free diet and about cross reactivity. But you would think those things would show some damage in the biopsy, especially as severe as the symptoms seem to be. SIBO? Perhaps. But then we are probably leaving a celiac diagnosis and that is the question.
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But knitty kitty, if OP does have celiac disease, why aren't her symptoms in abatement after practicing the gluten free diet for four years? If the OP was a refractory celiac, you would think the biopsy wouldn't be clean.
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Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics".
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Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease...
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Medical science has only recently begun to understand the link between the health of our gut biome and it's impact on other body systems. Very recently, scientists have discovered that gut bacteria play a role in the development of Parkinson's disease and Alzheimer's disease. Up until very recently, the only real concern in medical science circles about the...
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If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it. But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder...
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Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
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@ainsleydale1700, the additional test information you provided is very significant! Here is the important part: "This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG." It looks to me...
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Yes, other health challenges and even severe prolonged emotional distress are thought to be potential triggers for the latent celiac genes. Let me encourage you to get tested for celiac disease as soon as possible so that you can get on with eliminating gluten from your diet, which itself will involve a considerable learning curve in order to become consistent...
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Welcome to the celiac.com community @heart390! Genes connected with the development of celiac disease remain latent until triggered or activated by some biological stressor. The stressor can be many things and our knowledge in this area is incomplete. Suspects include viral infections, antibiotics, pesticides, preservatives and other harmful chemicals...
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Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people...
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Dried Chickpeas
trents replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
Welcome to the celiac.com community, @Thoughtidjoin! I would think so, yes. But you need to realize that cross contamination studies with lintels have shown the real problem isn't only coming in contact with gluten containing grains in processing but in the actual mixing in of cereal grain seeds in significant quantities with the lentils. I think it... -
Well, you have to do what you have to do. Sometimes the choices we have in life aren't optimal ones. Can you do yogurt with natural probiotic cultures?
