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trents

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Everything posted by trents

  1. trents
    Yes, you can buy powdered gluten on Amazon or at many health food stores and, as knitty kitty said, add it to food or shakes after weighing it out. That takes the guess work out of it.
  2. trents
    knitty kitty, was there more to that thought?
  3. trents
    It is true that we don't have a clear understanding of NCGS. Some experts feel it can be a precursor to celiac disease. Most people assume it to be more of a uncomfortable/inconvenient condition than something damaging to your health as is the case with celiac disease but I'm not sure we know all there is to know in that regard.
  4. trents
    Hello, @smiths! Even if you don't have celiac disease you could still have NCGS (Non Celiac Gluten Sensitivity). There is real overlap in the symptoms, especially in the GI area. Both conditions require the elimination of gluten from your diet. The difference is that celiac disease is an autoimmune disorder and does damage to the lining of the small bowel...
  5. trents
    @Lintol, what kind of symptoms do you experience when you throw caution to the wind and eat significant amounts of gluten? Are the symptoms unbearable? I'm asking because I'm wondering how feasible it would be for you to undertake a rigorous "gluten challenge" now and create the conditions for valid testing so as to get a definitive answer of whether...
  6. trents
    " . . . and again my test results are above and I'm guessing my numbers would likely be higher if I was experiencing a flare." Celiac antibody test numbers do not respond that quickly. Isolated episodes of getting "glutened" as we say, or "flares" as you say, would not impact the numbers. It takes weeks or months of consistent and significant gluten...
  7. trents
    Welcome to the celiac.com community, @iceman2026x! Not sure how you are using the term "fresh" chicken. The only real fresh chicken would be that which is locally butchered. Fresh foods are locally produced and not branded. What is your concern with eggs? They are in a shell so there should be no concern about cross contamination. Same with bananas...
  8. trents
    @GFreeIowaMom, the two recent flareups that sent you to the ER. Do you know if you were "glutened" at those times or are you assuming it?
  9. trents
    One issue here is the definition of "gluten free". According to FDA regs, food product manufacturers can label a product "gluten free" as long as it doesn't contain more than 20ppm of gluten. And that is a standard that works for most celiacs but not for all. Some are sensitive to smaller concentrations. Would that same FDA standard be applicable to the food...
  10. trents
    How long were you regularly using Ibuprofen? There is evidence that the dairy protein casein can cause villous blunting in some individuals. Apparently, it's protein structure is similar to gluten. https://meddocsonline.org/annals-of-pediatrics/milk-protein-induced-villous-atrophy-and-elevated-serologies-in-four-children-with-celiac-disease-on-a...
  11. trents
    If you are not IGA deficient and your tTG-IgA was normal, it sounds like gluten is not the culprit. Here are some other possible causes of villous blunting and some of them could also cause ulcers: Causes of Villous Atrophy Beyond Celiac Disease Autoimmune and Inflammatory Conditions Autoimmune Enteropathy: A condition where the immune...
  12. trents
    Thanks for the additional information. From the test score and the range of what is normal which you supplied, it is apparent that the test you refer to in your first post is the Immunoglobulin A (IgA), also commonly known as "total IGA". It is not a test used to diagnose celiacc disease per se but to check for IGA deficiency. If you are IGA deficient, then...
  13. trents
    Welcome to the celiac.com community @Mimiof2! Can you be more specific about the "IGA" blood test result that came back? There are several different IGA tests that can be run when checking for celiac disease. Can you give a more complete description of the test name? Since it has been 16 years since your original diagnosis, what prompted this recent...
  14. trents
    Your new mayor is going to fix all that and make groceries free to boot I hear!
  15. trents
    @Lotte18, Cheese Its have wheat flour as a primary ingredient so they would not fall under the category of cross contamination. No celiac should consume those. Skittles, on the other hand, are actually gluten free, according to the package. But I don't eat those either.
  16. trents
    @Lotte18, I didn't say I don't use prepackaged gluten-free foods because I do use them to an extent. And, I'm not a super sensitive celiac so, I seem not to react to cross contamination exposures. I was just making the point that for most people there are alternatives to prepackaged gluten-free stuff. And the fact is, the prepackaged gluten-free foods are...
  17. trents
    Unless, that is, you limit yourself to eating only that which you make from scratch and to fresh meats, veggies and fruits. What we are talking about here is a problem created by our reliance on ready made, prepackaged gluten-free foods.
  18. trents
    Of course, manufacture in a gluten-free facility only covers part of the risk as there still could be amounts of gluten in the ingredients coming from their suppliers that are causing certain batches to exceed FDA standards in the finished product. And, as we all know, the laws governing testing of products advertised as gluten-free are very lax. Standards...
  19. trents
    Welcome to the celiac.com community @KristinH! My guess would be that something may have changed at the production facility such that cross contamination is now happening. So, the company no longer felt a liberty to deploy the gluten-free label.
  20. trents
    @Ben Cohen, another option is to purchase gluten in powdered form from a health food store. That way, with a food scale, you could weigh out precisely 10g and mix it in at intervals throughout the day with a shake and beverages.
  21. trents
    Thanks for the clarification. How old is your child? Make sure your child's testing included the Immunoglobulin A (IgA) (aka, "total IGA") to check for IGA deficiency. If IGA deficient, your child's other IGA test results, such as the tTG-IgA, could not be trusted. When there is IGA deficiency, the IGG tests are usually run reflexively. But their positive...
  22. trents
    I'll second that!🤚
  23. trents
    Good catch, knitty kitty! @Lizie certainly was not asymptomatic! But some of those symptoms were not dramatic and were inconsistent. Very typical for a lot of celiacs.
  24. trents
    @Aretaeus Cappadocia, I don't disagree with your advice about discounting the advice of "real doctors" over what is offered by this online community but I would add that the experience of a great many of us who participate in this community is that many doctors are fairly ignorant when it comes to gluten disorders and many in this community have received...
  25. trents
    @Lizie, you state, "but have had instances of accidental ingestion from cross contact I wasn't knowledgeable about before" but you also state you re asymptomatic. If you are asymptomatic, how do you know you had incidences of accidental ingestion from cross contact? Actually, many or most celiacs fit into a category we know as "silent celiac disease...
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