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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    If you go to Barcelona, don't take your food outside. It may get soggy: https://www.msn.com/en-us/news/world/how-the-humble-water-gun-became-the-symbol-of-barcelonas-anti-tourism-movement/ar-AA1GTQJr
  2. trents
    I think your question needs clarification. Are you asking who gets sick from consuming some of these prolamins are all of them? Everyone in the celiac/gluten sensitive community will get sick from consuming gliadin, hordein and secalin. Some will also get sick from consuming avenin. Apparently, some don't do well with any of them.
  3. trents
    So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
  4. trents
    I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
  5. trents
    Diarrhea is a classic symptom of celiac disease and may be the only symptom many people experience until damage to the small bowel lining becomes severe enough to spinoff other health issues. There are many with what we call "silent" celiac disease whose symptoms are so minor or occasional like yours that they blow them off. The only way to distinguish between...
  6. trents
    People get genetic modification confused with hybridization. Wheat, as has most of our food crops, has been altered through hybridization to make it more disease resistant, more drought resistant and even to increase the gluten content. Hybridization uses selective breeding/cross pollination to enhance certain characteristics. Genetic modification, on the...
  7. trents
    Welcome to the forum, @The Logician! Many antibiotics have anti-inflammatory properties. By the way, GMO wheat is not used in food products: https://www.chefsresource.com/faq/is-wheat-genetically-modified-in-the-united-states/ There is a common misconception that it is.
  8. trents
    I would think that as long as you keep your food on a wrapper or on a paper plate you would not be at risk for cross contamination. You may be overthinking it all which is common for those in the first year of the celiac journey. But let me ask you. Are you feeling self-conscious about having a celiac diagnosis? I notice the term "isolated" in your thread...
  9. trents
    Welcome to the forum, @Tanya177! Help us understand why you don't eat with the other staff members at the present time. I'm assuming you already pack your own lunch rather than eating school cafeteria food. Surely there are other staffers who bring their own lunches. How would this be different if you did not have celiac disease?
  10. trents
    Welcome to the forum, @DJBC! Which IGA test did you get done? From the magnitude of your score (336) that sounds like a total IGA score, not a tTG-IGA score. Total IGA is a test for IGA deficiency, not for celiac disease per se. The centerpiece test for celiac disease is the tTG-IGA. If there is IGA deficiency, it will result in an artificially low tTG...
  11. trents
    I would hesitate to recommend tetracycline or any antibiotic as a long term therapy option because of the negative impact it has on the gut biome. I took it for years as a teenager for acne and I'm convinced it was a contributing factor in my having developed celiac disease.
  12. trents
    Welcome to the forum, @Pamp8! As to your first question, it is possible to have only the epidermal form of celiac disease but it is not common. Most people who have dermatitis herpetiformis also have damage being done to the villous lining of the small bowel. As to your second question, most likely you are getting some gluten contamination from...
  13. trents
    When I was 13 or 14 years old, a buddy of mine talked me into smoking a cigarette. I only got part way through it before getting the green pukes. Common to a lot of people I understand who, nonetheless, persist on subjecting their systems to the toxic nicotine until they develop a kind of tolerance for it and don't get nauseous any longer. They may be doing...
  14. trents
    Early guidelines from years ago concerning D3 supplementation was unduly conservative. There was fear of toxicity in over-supplementing because D3 is a fat soluble vitamin and not a water soluble vitamin. More recent studies have shown we can supplement safely at considerably higher levels for extended periods. But yes, 50,000 IU would not be safe over an...
  15. trents
    That is one issue but the bigger issue may be the human tendency to rationalize it all away without an official diagnosis such that you keep falling off the gluten free bandwagon. But there is the option of going for the gluten challenge in a more robust way and getting retested.
  16. trents
    A slice of bread weighing 50g isn't the same as 50g of gluten. Bread dough contains other components besides gluten. At any rate, at the end of the day, the antidote for celiac disease and for NCGS is the same, life-long avoidance of gluten. My hunch is that you do have celiac disease but are in the early stages of it. Some experts in the field believe...
  17. trents
    Tell us about your "longer gluten challenge". Current guidelines for the gluten challenge are the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least 2 weeks leading up to the blood draw day or the scoping/biopsy. "I just received the pathology report with the doctor's comments, and it shows "findings...
  18. trents
    knitty kitty brought up something that also occurred to me. Namely, the reason you don't like bread and pasta may be that your body has been instinctively telling you, "this is harming me" and so you avoid it. Cake, on the other hand, has less gluten and lots of other goodies like sugar and butter and chocolate that mask what gluten there is.
  19. trents
    Also, concerning your apprehension about family pushback, you might relate to this:
  20. trents
    First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten...
  21. trents
    Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some...
  22. trents
    A classic case of more than one medical problem going on at a time. We often forget that can happen. Are you concerned about your weight loss? Is your current weight too thin for your height, gender and general build?
  23. trents
    @Shining My Light, I am not a doctor or a trained medical professional of any kind. However, I was a hospital chaplain for many years and sat in on countless numbers of medical team meetings with doctors and nurses discussing the medical issues of their patients as well as tests administered and interventions applied. What I can tell you is that many diseases...
  24. trents
    @Shining My Light, what do you mean when you say "the blood test not being 100%"? Were you expecting all possible celiac blood antibody tests to be positive in the case of someone who actually does have celiac disease? That seldom, if ever, happens. You are gauging too much on how you feel when you consume gluten and not paying enough attention to test...
  25. trents
    Welcome to the forum, @terrymouse! Your GI doc is correct. Going gluten free now will allow healing to occur in the villous lining of the small bowel such that the endoscopy/biopsy may not show the damage to the villous architecture that is characteristic of celiac disease. Since your celiac blood antibody tests results are on the low side and don't...
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