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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Why do you say that?
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The B-vitamins support one another as a group and it is wisest to supplement the whole spectrum of B's instead of targeting just one. They need to be in balance with each other. So, a B-complex supplement is best IMO.
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@Gabriellas mom, can you post the names and results of the specific tests you are referring to? There are blood antibody tests that are specific for celiac disease detection such as the TTG-IGA. Can you post them with results and with reference ranges for negative vs. positive. And then you mention that your daughter's bloodwork "shows a growth deficiency...
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Welcome to the forum, @Gabriellas mom! Although you don't use these terms, it sounds like celiac antibody blood tests were done and were strongly positive. That is normally the first stage of celiac diagnosis. The second stage is an endoscopy with biopsy of the small bowel lining to check for damage to that membrane. This is done to confirm the positive...
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Celiac Disease and My Brain and Muscles
trents replied to ling27's topic in Coping with Celiac Disease
I would also add that the B vitamins are water soluble so there is no concern with overdosing on them. Excess is just urinated out. Make sure all your vitamins and supplements are gluten free. Costco is a good place to find vitamins and supplements at a reasonable price and reasonable quality. Many or most of their vitamins and supplements are gluten free... -
Type 1 diabetes does have a genetic component: https://www.webmd.com/diabetes/diabetes-type-1-genetics You are more likely to develop Type 1 diabetes than the general population if one of your parents have it. As far at Type 1 being a disability, I see that the same as having celiac disease. If you are in a setting that allows you to do what you need...
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Is the Celiac diagnosis correct??
trents replied to Maureen555's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It was a pleasure to be able to help you, Maureen! You will be aware of much of this already from working with your son's celiac diagnosis but there may be some areas you hadn't thought about such as gluten in meds and oral hygiene products, kitchen appliances and surfaces, etc.: -
Increasing Symptoms
trents replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The endoscopy with biopsy is considered to be the gold standard of celiac disease diagnosis. Usually, the antibody blood tests are done first and then the endoscopy/biopsy is used to confirm the diagnosis if the antibody testing is positive. However, if the damage to the mucosal lining of the small bowel from celiac disease is patchy or if the onset of the... -
8 year with Coeliac
trents replied to Dan Maggs's topic in Parents, Friends and Loved Ones of Celiacs
Good question and should be pursued to rule out cross contamination or other overlooked gluten exposure. -
Increasing Symptoms
trents replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"Most of my symptoms are not GI related, which is making me lean towards Celiac/Gluten intolerance." Not sure what you are intending to say here as the statement seems to contradict itself. There always has been some confusion/inconsistency over terminology when talking about gluten-related disorders. Having said that, most in the know these days... -
Increasing Symptoms
trents replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @Vozzyv! Blood antibody testing for celiac disease must be done while are still consuming regular, generous amounts of gluten. The latest recommendations for a "gluten challenge" for those having already embarked on the gluten free diet is the daily consumption of at least 10g of gluten (the equivalent of 4-6 slices of bread) for... -
Different Reactions
trents replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @Jordan Carlson! More severe reactions to gluten exposure after a significant period of withdrawing gluten from the diet is quite normal for the celiac. When we are consuming gluten daily our bodies are forced to develop some semblance of tolerance to it like it would for any toxic substance. I was largely a "silent" celiac with... -
Is the Celiac diagnosis correct??
trents replied to Maureen555's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is a 4x increase in lymphoma of the small bowel for celiacs compared to the general population. That sounds scary but the incidence is still small. The other family members you mentioned had other kinds of cancer. -
Is the Celiac diagnosis correct??
trents replied to Maureen555's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"-Partially denuded fragments of duodenal mucosa with mild increase in intraepithelial lymphocytes and active inflammation." This sure sounds like celiac disease mucosal damage to me! -
Scott, what do you mean by "gluten sensitivity being the bigger picture"? Do you mean in the sense of setting the stage for the development of full blown celiac disease?
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Really Good Hummus Dip (Gluten-Free)
trents commented on Jefferson Adams's article in Indian & Middle Eastern
An eight year old thread, Elizabeth Want. Not sure many will see your post. -
Some foods are naturally gluten free and by the nature of what they are should not suffer from cross contamination. For instance: a hardboiled egg, a baked potato, fresh fruit, steamed broccoli. The lack of a gluten free menu does not equate with lack of gluten free options if you take this into consideration. Also, you can request from the chef that your...
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Does anyone experience these symptoms?
trents replied to Staxey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I hope your recent hiatus from gluten doesn't invalidate the testing. You've been back on gluten for a month now, correct? How much gluten have you been consuming. Newer "gluten challenge" guidelines are calling for 10g of gluten daily for at least 2 weeks. 10g is the equivalent of 4-6 slices of bread. So, there's a time element and an intensity of exposure... -
TESTING $650 :(
trents replied to GAIL OROURKE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm guessing you hit the nail on the head, RMJ. So, the OP needs to get some "real" celiac disease blood testing done if she wants to nail this down, not allergy testing. -
Welcome to the forum @Shanon! Blood type eating plans have dubious scientific support: "A naturopath called Peter D’Adamo popularized the idea that a diet based on blood type could help a person achieve good overall health and reduce the risk of developing certain diseases. However, research on the effects of a blood type diet is scarce, ...
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TESTING $650 :(
trents replied to GAIL OROURKE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"IgG Gluten" test is probably a reference to the DGP-IGG but it's an informal misnomer because these tests are checking for antibodies from the inflammation caused by gluten consumption, not gluten levels in the blood. -
Personally, I hesitate to use the term "allergy" because it can communicate to people that if you eat this it may just cause me to sneeze and have watery eyes or develop an itch rash. Anaphylaxis wont' necessarily come to their mind when they here the term "allergy". That's one reason I don't like to use the term allergy when referring to celiac disease....
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TESTING $650 :(
trents replied to GAIL OROURKE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gail, the way celiac disease works is that gluten triggers an autoimmune response that generates inflammation in the lining of the small bowel. This is the area of the intestines where all of the nutrition in our food is absorbed and why long term untreated celiac disease generally results in stunted growth and medical issues related to vitamin and mineral...