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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    @ErinV, from you first post: " Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers." But then you say in your most recent post, "We’ve all tested and neither of us, nor my other daughter have the genetic markers for it." Those two state...
  2. trents
    @SoBannaz, how are you using the term "vegetable oil"? I think all the oils you mentioned in your above post would be considered vegetable oils since they aren't made from animal tallow.
  3. trents
    I'm like Cristiana. After getting glutened, in about two hours I start develop emesis that lasts for two or three hours with intense abdominal cramping. This is followed by several hours of diarrhea. It's like my body is doing everything it can to expel the gluten as it begins to leave my stomach and enter the small bowel. So, I'm not sure how much of it...
  4. trents
    How'd it happen?
  5. trents
    Welcome to the forum, @Michael McDonald! That's going to be a hard question to answer because of individual differences. I would think in most cases a few days to a couple of weeks to completely return to normal. How long are you into it now?
  6. trents
    The nausea and bloating are classic GI celiac symptoms and so are vitamin and mineral deficiencies. There are antibody blood tests specific to celiac disease that can be ordered. I would suggest you specifically request this be done for your boy friend. Make sure that at the minimum these two tests are ordered: total IGA and TTG-IGA. In addition to being...
  7. trents
    But you have already had the genetic testing done and you have results. You have one main celiac gene out of two main celiac genes. You have the HL-DQ8 gene. So, you do have the potential for developing celiac disease.
  8. trents
    Keep us posted about the scoping results. Make sure before the scoping you ask them to take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and is sometimes missed if insufficient sampling is done during the biopsying.
  9. trents
    Gliadin (Deamidated)Ab (IgA) is DGP-IGA. You really need to have a total IGA done. This might be helpful. As you can see, terminology varies from place to place but this article pretty much lays out all the options in that regard.
  10. trents
    No, if you are IGA deficient, your IGA celiac antibody test numbers will be lower than they ought to be so they should not be relied upon if they are in the normal range.
  11. trents
    I agree with Scott. This same question has been asked many times on the forum and for the reasons Scott stated the consensus is that there it is very unlikely that cross contamination is occurring in these scenarios. Hey, looking forward to hearing back about your igg and iga numbers. We would need the reference ranges as well as different labs used...
  12. trents
    @Sammy Web, I'm sorry if I offended you. I was just seeking some clarification. Colloquialisms vary from place to place in the English speaking world. They can even differ from place to place in a given English speaking country.
  13. trents
    Keep us posted as to your progress, Cathijean90.
  14. trents
    Okay, so, "make you feel poorly or experience poor health" then. Many celiacs in the early and middle stages of progression are not doing poorly. We call them "silent celiacs". They are largely asymptomatic.
  15. trents
    Welcome to the forum, @Lynda scott! Lynda, your sentence is a little awkward so could you provide some clarity? You say, "if I go out for bread it's what I choose as little gluten free choices". Are you speaking of going grocery shopping or going out to eat at a restaurant? You seem to be saying there are few gluten free choices but I am not sure...
  16. trents
    "no they didn't , but doesn't celiac make you really poorly ? This definitely isn't the case." Make you what poorly? @Sammy Web, I think you left out a key word there.
  17. trents
    Welcome to the forum, @Mettedkny! Your ttg-igg numbers are elevated but what about your ttg-iga numbers? Were your ttg-iga numbers elevated at your original diagnosis? The reason I ask is because elevated igg antibody test scores are more likely to be caused by something else besides a celiac reaction to gluten. The ttg-iga test is considered to be the...
  18. trents
    Thanks for reporting back @Nicbent35! You seem to understand the options and the risks. So, it is a decision you will just have to make. But you don't have to make it right away. You might consider keeping her gluten-free for a while yet. I would give it six months before considering adding gluten back in. Make sure the improvement you are seeing is due to...
  19. trents
    If you have been on a strict gluten-free diet for several years, it would be normal for testing to show no evidence of celiac disease. No gluten, no inflammation. No inflammation, no antibodies and healing of the small bowel lining would result. Personally, I think the doc gave you bad advice and I feel confident that trialing a return to gluten consumption...
  20. trents
    Welcome to the forum, @jkinloch! That is unusual because celiac disease is a genetically based autoimmune disorder. One the latent genes are triggered such as to produce active celiac disease they are "on" permanently. Celiac disease doesn't go away. But first, let's establish some fact-based history before we speculate any further about how this...
  21. trents
    Celiac disease does not damage the stomach. It damages the lining of the small bowel, the part of the intestines immediately below the stomach. Also called the duodenum. Do you know if biopsies were taken from this area to look for celiac disease?
  22. trents
    herminia, Omeprazole may mask some of the symptoms of celiac disease but it will not prevent the damage being done to the villous lining of your small bowel that defines the disease. You seem not to be taking that very seriously.
  23. trents
    Sammy, I have doubts as to whether you were eating enough gluten to render any of the celiac testing you had done valid. Recently revised guidelines for pretest celiac blood antibody analysis is the daily consumption of at least 10 g of gluten (about the amount found in 4-6 slices of wheat bread) for at least 2 weeks before the blood draw.
  24. trents
    From: https://en.wikipedia.org/wiki/Gluten "Gluten is a structural protein naturally found in certain cereal grains. The term gluten usually refers to the elastic network of a wheat grain's proteins, gliadin and glutenin primarily, that forms readily with the addition of water and often kneading in the case of bread dough. The types of grains that contain...
  25. trents
    The blistery rash is almost certainly dermatitis herpetiformis, a classic indicator of celaic disease and for which celiac disease is the only known cause. There really isn't much doubt that she has celiac disease given all the evidence so far.
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