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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Welcome to the forum, @CarolTN! Can you give us some background? Have you been officially diagnosed with either celiac disease or dermatitis herpetiformis or both?
  2. trents
    @cam6, the problem I see with that is if multiple people call in an order around the same time using the name, "Gluten Allergy". You might get someone else's order.
  3. trents
    Recent research has shown that erythritol and xylitol likely increase the risk of cardiovascular events, due to causing platelet clumping, for higher risk people. This effect occurred when these sugar substitutes were used in concentrations commonly found in home made and commercially produced food products and may be a problem with other sugar alcohols as...
  4. trents
    Welcome to the forum, @Hocaco! First, we cannot comment with any certainty on your test values because you did not include the reference ranges for the test. There are no industry standards for the reference ranges and each lab constructs these tests a little differently. Second, recently updated "gluten challenge" guidelines recommend the daily...
  5. trents
    One thing to be aware of is that reactions to gluten can sometimes be more severe after having been gluten free for a significant period of time. Something to think about in connection with a gluten challenge.
  6. trents
    Welcome to the forum, @cococo! So. let me first clarify some terminology. Gluten intolerance is a general term that can refer either to celiac disease or NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity" for short). Having said that, in common, informal usage there is still a lot of mix up in the use of the terms "gluten sensitivity" and ...
  7. trents
    Were any other celiac antibody tests run besides the DGP-IGA? Was a total IGA test run to check for IGA deficiency? There are multiple IGA tests that can be run as well as several IGG tests when checking for celiac disease. The DGP-IGA test is helpful when diagnosing children whose immune systems are immature.
  8. trents
    I think we all wish that managing celiac disease was a simple as just avoiding gluten. And I think we all enter into the journey with that naive misconception. And for some, it is that simple. But for many, it is not. The same processes that resulted in the immune system misidentifying gluten as a threat opens the door for misidentifying other food proteins...
  9. trents
    The problem with oats is not necessarily cross contamination with gluten containing grains such as wheat, barley and rye. The problem, even with "certified gluten free" oats can be the oat protein avenin which is similar enough to gluten that it causes a "cross reaction" in about 8% of celiacs. Even a higher percentage of celiacs react to the protein...
  10. trents
    Welcome to the forum, @bpritch27! Is your daughter still consuming oats (even "gluten free" oats) and dairy?
  11. trents
    @Bernade, you might find this helpful. Ultimately, it would be up to the parents of the students in question to begin dialog with school officials and get the ball rolling. But perhaps you could could pass this information onto the parents somehow:
  12. trents
    Or, "vegetable fiber (from Australian plantago)".
  13. trents
    Do you have officially diagnosed celiac disease? Or are you not a celiac but gluten sensitive?
  14. trents
    Welcome to the forum, @Gluten Free Jeff! Are you asking this for yourself or for someone else say, as their parent?
  15. trents
    Welcome to the forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help:
  16. trents
    @ErinV, from you first post: " Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers." But then you say in your most recent post, "We’ve all tested and neither of us, nor my other daughter have the genetic markers for it." Those two state...
  17. trents
    @SoBannaz, how are you using the term "vegetable oil"? I think all the oils you mentioned in your above post would be considered vegetable oils since they aren't made from animal tallow.
  18. trents
    I'm like Cristiana. After getting glutened, in about two hours I start develop emesis that lasts for two or three hours with intense abdominal cramping. This is followed by several hours of diarrhea. It's like my body is doing everything it can to expel the gluten as it begins to leave my stomach and enter the small bowel. So, I'm not sure how much of it...
  19. trents
    How'd it happen?
  20. trents
    Welcome to the forum, @Michael McDonald! That's going to be a hard question to answer because of individual differences. I would think in most cases a few days to a couple of weeks to completely return to normal. How long are you into it now?
  21. trents
    The nausea and bloating are classic GI celiac symptoms and so are vitamin and mineral deficiencies. There are antibody blood tests specific to celiac disease that can be ordered. I would suggest you specifically request this be done for your boy friend. Make sure that at the minimum these two tests are ordered: total IGA and TTG-IGA. In addition to being...
  22. trents
    But you have already had the genetic testing done and you have results. You have one main celiac gene out of two main celiac genes. You have the HL-DQ8 gene. So, you do have the potential for developing celiac disease.
  23. trents
    Keep us posted about the scoping results. Make sure before the scoping you ask them to take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and is sometimes missed if insufficient sampling is done during the biopsying.
  24. trents
    Gliadin (Deamidated)Ab (IgA) is DGP-IGA. You really need to have a total IGA done. This might be helpful. As you can see, terminology varies from place to place but this article pretty much lays out all the options in that regard.
  25. trents
    No, if you are IGA deficient, your IGA celiac antibody test numbers will be lower than they ought to be so they should not be relied upon if they are in the normal range.
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