trents
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Latest Celiac Disease News & Research:
Everything posted by trents
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Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms. -
Oh, yes, missed that factoid from your first post that your daughters are living in a gluten-free home. You may have to face this issue further down the line when they get older and are eating more often outside your home and making their own eating decisions. But for now, if it ain't broke, don't try to fix it.
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Recent updates to "gluten challenge" recommendations are recommending a minimum consumption of 10g of gluten daily (about the amount found in 4-6 slices of wheat bread) for at least two weeks leading up to the day of testing. This is for adults. I do not know of any pretest gluten consumption guidelines for children. You might consider the "wait and see"...
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- anti-tissue transglutaminase
- antibody levels
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Gluten in Escitalopram??
trents replied to Farmerswife's topic in Gluten-Free Foods, Products, Shopping & Medications
Welcome to the forum, @Farmerswife! You are correct. Cornstarch should not contain gluten unless there is an issue with "cross contamination" with wheat/barley/rye in the processing. Even then, I can't imagine there being enough gluten in those pills/caplets/capsules to cause a reaction. Is this med in pill form, caplet form or capsule form? If capsule... -
I see you tried to post a reply twice but both times it just contains the text from your original post and no new information. Are you having trouble with using the forum? If you need help, send me a personal message and I'll try to give you some direction. There is a forum tool for sending personal messages to members. Just click on my user name and you...
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Welcome to the forum, @Bernade! There are a couple of possibilities here what is causing your up and down experience since being diagnosed with celiac disease and beginning the gluten free journey. One is that you are not yet consistent in avoiding gluten. It is easy to avoid major sources of gluten such as bread and pasta but to arrive at a completely...
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Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
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Have you considered the possibility that you might have NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease? They share many of the same symptoms, the difference being that NCGS does not damage the lining of the small bowel. It is 10x more common than celiac disease. There is no test yet available for NCGS. Celiac disease must first be ruled out...
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Did your symptoms improve after going on a gluten-free diet?
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Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy.
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Gotcha!
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It is a biopsy but it's not a colonoscopy, it's an endoscopy.
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The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal...
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It is certainly possible that had you not been eating essentially gluten-free at the time of the blood draw, you would have tested positive for the TTG-IGA. That one seems to not have a lot of staying power once you begin to withdraw gluten. That is the value of some of these other tests. They can still throw up "celiac" flags further out from withdrawing...
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How long had you been practicing a reduced gluten diet by the time you had the blood draw?
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Thanks, Scott. I have that products containing lecithin have often disagreed with me.
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Keep us posted and let us know the results of the biopsy. Your case is atypical in a way in that you have this high DGP-IGA but normal TTG-IGA so knowing how it turns out will give us more data for similar situations that may be posted in the future.
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It would be helpful for this article to list by name common mono and diglycerides used in gluten-free food products.
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No, you don't necessarily need multiple testing methods to confirm celiac disease. There is an increasing trend for celiac diagnoses to be made on a single very high tTG-IGA test score. This started in the UK during the COVID pandemic when there was extreme stress on the healthcare system there and it is spreading to the US. A tTG-IGA score of somewhere between...
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The tests outlined in the article I linked are rated according to "sensitivity" and "specificity". Sensitivity refers to how well the test does in not missing those who actually have the disease being tested for, in this case, celiac disease. The DGP-IGA test is estimated to have a sensitivity of 75% to 95%. Specificity refers to how well the test...
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Welcome to the forum, @Jo Woodard! The problem with oats is not always cross contamination with gluten from other grains. The main protein found in oats is "avenin" and it has a structure similar to the wheat/barley/rye protein "gluten". It is similar enough to cause a gluten-like reaction in some celiacs. About 10% of celiacs cannot tolerate oats.
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You might find this interesting as it outlines the various antibody tests that can be ordered and rates them for their relative reliability: What symptoms do you experience and how long have you been experiencing them? Do you have any other blood work parameters that are out of range from say a CBC or CMP. For those with celiac disease, the immune system...
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Welcome to the forum, @Skg414228! You say that your DGP-IGA score is high and you give the absolute test score but you do not give the scale or units used by the lab doing the analysis so we cannot comment further on your conclusion. Different labs use different reference ranges for the same tests. There is no industry standard for these celiac antibody...
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This might be helpful to you at this point:
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But isn't it easier to just take a D3 supplement? Is the D light somehow a superior source? Links?
